Two-Year Trajectories of Health-Related Quality of Life Among Adolescents Newly Diagnosed with Systemic Lupus Erythematosus

Project Period:

Grant Category:
Large Grant

Disease Area:
Lupus and Related Conditions (SLE/RC)

Children with lupus report that the quality of their life is not as good as that of children without lupus. This poor quality of life continues to happen in spite of improvements in lupus treatments and less organ damage. Studies show that children with lupus have more pain, fatigue, anxiety, depression in their lives compared to healthy children. In fact, most of these studies focus on how these issues (e.g. pain, fatigue, etc.) are linked to who the children are (e.g. race, sex, etc.) and/or how lupus affects them. Studies also look at how what changes their quality of life. However, we do not know how the quality of life changes in the two years after a child is diagnosed with lupus. So for this work, we want to figure out the patterns of how quality of life changes two years from when a child is diagnosed with lupus. We also want to find out what affects the pattern of life changes.


Onengiya Harry, MD, MPH, MSc

Wake Forest University Health Sciences

Related Awarded Grants

Disease Area:
Lupus and Related Conditions (SLE/RC)

CARRA Samples for funded LRA Global Team Science Award