Newsletters

CARRA Newsletters

The CARRA Newsletter is a monthly, electronic newsletter published by CARRA for its members and other stakeholders. Each issue includes information about the organization, including upcoming events, activities, calls for submissions, and updates on the work of CARRA.

Click here for the current issue of the CARRA newsletter.

CARRA Newsletter Archive

August 2022

July 2022

The CARRA Registry Newsletter is published three times a year for patients, families, and caregivers.

Click here for the current issue of the CARRA Registry Newsletter.

CARRA Registry Newsletter archives

Spring 2022

Fall 2021

Summer 2021

To sign up to receive the CARRA Newsletter or the CARRA Registry Newsletter, click here.