Dr. Danny Soulsby is a Pediatric Rheumatologist at UCSF Children’s Hospital Oakland, where he balances clinical care with research focused on social determinants of health in pediatric rheumatic diseases, particularly Juvenile Idiopathic Arthritis (JIA) and Systemic Lupus Erythematosus (SLE). His interest in rheumatology began in medical school when he cared for a complex patient who …
Dr. Mariana Correia Marques, located in Bethesda, MD, is a physician-researcher at the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). With a focus on autoinflammation and systemic juvenile idiopathic arthritis (sJIA), Dr. Marques is dedicated to identifying pathways involved in autoinflammatory diseases and optimizing treatments for patients, particularly those with refractory cases …
This episode of The CARRA Podcast was recorded live in Washington, D.C. at CARRA’s event at ACR, the American College of Rheumatology’s annual conference. Claudette Johnson, the host of The CARRA Podcast, spoke to the crowd of more than 200 physicians, research professionals, industry representatives and patient advocates at the CARRA event at ACR. She …
Dr. Sivia Lapidus is a full-time Pediatric Rheumatologist at Joseph M. Sanzari Children’s Hospital, Hackensack Meridian Health, with a passion for translational science research, particularly focused on autoinflammatory diseases. She has been the leader of the CARRA PFAPA/Autoinflammatory Disease Work Group since its inception in 2013 and is also actively involved in the CRMO, Kawasaki …
Families living with a pediatric rheumatic disease know that school can be a frustrating cycle of missed lessons and makeup work. However, there is very little evidence in medical literature about the burden of school-related issues and the exact barriers that kids with pediatric rheumatic diseases face at school. Mia Chandler, M.D, M.P.H, a pediatric …
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) is reflecting on the remarkable life and legacy of Norman Ilowite, M.D. Norm, who passed away at age 70 on July 30, was a founding member of CARRA, a dedicated leader in pediatric rheumatology, and a dear friend to many in the CARRA community. Norm was a …
When a child is diagnosed with a rare and complex disease like scleroderma, families experience a lot of stress and often feel like they are completely alone. You are never alone. That is why we will dedicate several episodes of The CARRA Podcast to exploring different diseases that make up our CARRA community. We will …
ATLANTA (July 15, 2024) — The Arthritis Foundation and Childhood Arthritis and Rheumatology Research Alliance (CARRA) are pleased to announce the awardees of this year’s CARRA-Arthritis Foundation research grants totaling more than $1.6 million. Since this partnership began in 2016, it has led to more than $8.1 million in funding to support research into pediatric rheumatic and related …
Members of the Childhood Arthritis and Rheumatology Research Alliance (CARRA) are mourning the loss of one of CARRA’s co-founders who made a tremendous impact on the pediatric rheumatology community. Dr. Elizabeth “Betsy” Mellins, who passed away on March 24, 2024, was a co-founder and the first chairperson of CARRA. In addition to helping establish CARRA, …
Have you ever wondered what it’s like to be a kid with a rare autoimmune disease? In this special episode, the host of The CARRA Podcast Claudette Johnson, who is a teenager living with a rare autoimmune disease, interviews another teenager who has a rare autoimmune disease about their experiences with school, sports, friends, medical …