Registry & Biorepository Research Projects

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Disease Area:

Biosample Available:

CARRA Childhood Lupus Registry

CDC-funded program to describe how lupus presents in children, how doctors treat it and describe risk factors that prevent kids from getting the right care.

Disease Area:
Lupus and Related Conditions (SLE/RC)

Biosample Status:
No Biosample

Start Time Optimization of Biologic Therapy in Polyarticular JIA (STOP-JIA) Study

First large-scale study comparing the effectiveness of three CARRA treatment plans for polyarticular JIA

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Biosample Status:
No Biosample

FiRst-line Options for Systemic JIA Treatment (FROST) Study

One of the first and largest studies looking at the outcomes of current treatments for patients with newly diagnosed systemic JIA.

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Biosample Status:
Biosample Available

Improving Outcomes in Limited Juvenile Idiopathic Arthritis (LIMIT-JIA)

Phase 3 study to determine if early treatment of limited oligoJIA with a biologic can prevent severe disease extension.

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Biosample Status:
Biosample Available