Search Projects:
Disease Area:
Biosample Available:
Child/Adolescent Lupus: Understanding Etiology (CLUE) Study
Study to better understand the biology of lupus through genetics.
Disease Area:
Lupus and Related Conditions (SLE/RC)
Biosample Status:
Biosample Available
CARRA Registry Research Network for SJIA-LD (CARE-NETS) Study
This project launches the first research network to collect clinical data and blood samples from children with systemic JIA and lung disease through the CARRA Registry.
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
Biosample Available
Advancing the Science of Pediatric Patient-Reported Outcomes for Children with Chronic Disease (PEPR)
Validation of patient-reported outcomes in chronic diseases.
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
No Biosample
Precision Decisions
Study to develop a biomarker tool to predict response to treatment in polyarticular JIA.
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
Biosample Available
Disease Recapture after Drug Discontinuation and Flare in Juvenile Idiopathic Arthritis (Recapture-JIA)
Study to characterize rates and predictors of disease recapture in children with JIA who re-start medication to treat flares.
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
Biosample Available
Predicting Response of Methotrexate Treatment (PROMOTE)
Study evaluating predictors of methotrexate response in JIA.
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
Biosample Available
Juvenile Dermatomyositis in the CARRA Registry & Biorepository
In partnership with the CureJM Foundation, CARRA collects disease information and biosamples on children and young adults with JDM.
Disease Area:
Juvenile Dermatomyositis (JDM)
Biosample Status:
Biosample Available
Post-Marketing Surveillance Studies
Regulatory mandated post-marketing safety studies for systemic and polyarticular JIA treatments.
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
No Biosample
CARRA Childhood Lupus Registry
CDC-funded program to describe how lupus presents in children, how doctors treat it and describe risk factors that prevent kids from getting the right care.
Disease Area:
Lupus and Related Conditions (SLE/RC)
Biosample Status:
No Biosample
Start Time Optimization of Biologic Therapy in Polyarticular JIA (STOP-JIA) Study
First large-scale study comparing the effectiveness of three CARRA treatment plans for polyarticular JIA
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
No Biosample
FiRst-line Options for Systemic JIA Treatment (FROST) Study
One of the first and largest studies looking at the outcomes of current treatments for patients with newly diagnosed systemic JIA.
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
Biosample Available
Improving Outcomes in Limited Juvenile Idiopathic Arthritis (LIMIT-JIA)
Phase 3 study to determine if early treatment of limited oligoJIA with a biologic can prevent severe disease extension.
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Biosample Status:
Biosample Available