Feasibility and representativeness of online strategies to recruit parents of children with rheumatic diseases for research

Hausmann JS, Vizcaino-Riveros J, Marin AC, Minegishi M, Cox R, Chang ML, Schanberg LE, Natter M, Weitzman ER; CARRA Legacy Registry Investigators. Feasibility and Efficacy of Online Strategies to Recruit Parents of Children With Rheumatic Diseases for Research. ACR Open Rheumatol. 2022 May;4(5):410-416. doi: 10.1002/acr2.11360. Epub 2022 Feb 11. PMID: 35150085; PMCID: PMC9096518.

Journal of Rheumatology
2022

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Translating Research into Practice - Implementation Recommendations for Pediatric Rheumatology; Proceedings of the Childhood Arthritis and Rheumatology Research Alliance 2020 Implementation Science Retreat

Yildirim-Toruner C, Pooni R, Goh YI, Becker-Haimes E, Dearing JW, Fernandez ME, Morgan EM, Parry G, Burnham JM, Ardoin SP, Barbar-Smiley F, Chang JC, Chiraseveenuprapund P, Del Gaizo V, Eakin G, Johnson LC, Kimura Y, Knight AM, Kohlheim M, Lawson EF, Lo MS, Pan N, Ring A, Ronis T, Sadun RE, Smitherman EA, Taxter AJ, Taylor J, Vehe RK, Vora SS, Weiss JE, von Scheven E; MAS for the CARRA Implementation Science Workgroup. Translating research into practice-implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat. Pediatr Rheumatol Online J. 2022 Feb 7;20(1):10. doi: 10.1186/s12969-022-00665-y. PMID: 35130904; PMCID: PMC8822721.

Pediatric Rheumatology Online Journal
2022

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Outcomes of SARS-CoV-2 Infection among Children and Young People with Pre-existing Rheumatic and Musculoskeletal Diseases.

Kearsley-Fleet L, Chang ML, Lawson-Tovey S, Costello R, Fingerhutová Š, Švestková N, Belot A, Aeschlimann FA, Melki I, Koné-Paut I, Eulert S, Kallinich T, Berkun Y, Uziel Y, Raffeiner B, Oliveira Ramos F, Clemente D, Dackhammar C, Wulffraat NM, Waite H, Strangfeld A, Mateus EF, Machado PM; CARRA Registry Investigators; COVID-19 Global Pediatric Rheumatology Database Investigators, Natter M, Hyrich KL. Outcomes of SARS-CoV-2 infection among children and young people with pre-existing rheumatic and musculoskeletal diseases. Ann Rheum Dis. 2022 Mar 25:annrheumdis-2022-222241. doi: 10.1136/annrheumdis-2022-222241. Epub ahead of print. PMID: 35338032; PMCID: PMC8977459.

Annals of the Rheumatic Diseases
2022

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Survey of current practices in the management of anti-TNF failure in Juvenile Spondyloarthritis

Srinivasalu H, Oliver M, Stoll ML, Weiss PF, Colbert RA; CARRA Juvenile Spondyloarthritis Workgroup. Survey of current practices in the management of anti-TNF failure in juvenile spondyloarthritis. Clin Exp Rheumatol. 2022 Jul;40(7):1442-1446. doi: 10.55563/clinexprheumatol/gyrtjo. Epub 2022 Apr 20. PMID: 35485412.

Journal of Rheumatology
2022

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Coding Joint (CJ) to Kappa-Deleting Recombination Excision Circle (KREC) ratio and Serum B-cell Activating Factor (BAFF) Level: Predict Juvenile Dermatomyositis (JDM) Response to Rituximab Therapy

Ochfeld E, Hans V, Marin W, Ahsan N, Morgan G, Pachman LM, Khojah A. Coding joint: kappa-deleting recombination excision circle ratio and B cell activating factor level: predicting juvenile dermatomyositis rituximab response, a proof-of-concept study. BMC Rheumatol. 2022 May 9;6(1):36. doi: 10.1186/s41927-022-00265-z. PMID: 35527253; PMCID: PMC9082850.

BMC Rheumatology
2022

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Dermatomyositis (JDM)

Publication Type:
Manuscript

Multi-modal single-cell sequencing identifies immunophenotypes associated with juvenile dermatomyositis disease activity

Neely J, Hartoularos G, Bunis D, Sun Y, Lee D, Kim S, Ye CJ, Sirota M. Multi-Modal Single-Cell Sequencing Identifies Cellular Immunophenotypes Associated With Juvenile Dermatomyositis Disease Activity. Front Immunol. 2022 Jun 21;13:902232. doi: 10.3389/fimmu.2022.902232. PMID: 35799782; PMCID: PMC9254730.

Frontiers in Immunology
2022

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Dermatomyositis (JDM)

Publication Type:
Manuscript

Investigation of Inactive Disease States Among Juvenile Idiopathic Arthritis Patients in the Childhood Arthritis and Rheumatology Research Alliance Registry

Mannion ML, Xie F, Beukelman T; CARRA Registry Investigators. Investigation of Inactive Disease States Among Patients With Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry. ACR Open Rheumatol. 2022 Jul 16. doi: 10.1002/acr2.11485. Epub ahead of print. PMID: 35841332.

Arthritis Care & Research
2022

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Latent Classes of Early Response Trajectories to Biologics Initiation in Juvenile Idiopathic Arthritis: An Analysis of Four Trials

Lim LSH, Shobhan S, Lokku A, Ringold S, Pullenayegum E. Latent classes of early response trajectories to biologics initiation in juvenile idiopathic arthritis: an analysis of four trials. Pediatr Rheumatol Online J. 2022 Jul 30;20(1):57. doi: 10.1186/s12969-022-00719-1. PMID: 35907978; PMCID: PMC9338501.

Pediatric Rheumatology Online Journal
2022

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Probability of Response in the First 16 Weeks After Starting Biologics: An Analysis of Juvenile Idiopathic Arthritis Biologics Trials

Lily Siok Hoon Lim MBBS, MRCPCH, FRCPC, PhD,Armend Lokku PhD,Eleanor Pullenayegum PhD,Sarah Ringold MD, MSc First published: 17 August 2022 https://doi.org/10.1002/acr.25003

Arthritis Care & Research
2022

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript