Juvenile Fibromyalgia in Patients with Juvenile Idiopathic Arthritis: Utility of the pain and symptom assessment tool

Tesher MS, Graham TB, Ting T, Kashikar-Zuck S, Lynch N, Wroblewski K, Weiss JE. Juvenile Fibromyalgia in Patients With Juvenile Idiopathic Arthritis: Utility of the Pain and Symptom Assessment Tool. Arthritis Care Res (Hoboken). 2021 Jul 1. doi: 10.1002/acr.24739. Epub ahead of print. PMID: 34197032.

Arthritis Care & Research
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Principles of Pediatric Lupus Nephritis in a Prospective Contemporary Multi-Center Cohort

Vazzana KM, Daga A, Goilav B, Ogbu EA, Okamura DM, Park C, Sadun RE, Smitherman EA, Stotter BR, Dasgupta A, Knight AM, Hersh AO, Wenderfer SE, Lewandowski LB; CARRA Registry investigators. Principles of pediatric lupus nephritis in a prospective contemporary multi-center cohort. Lupus. 2021 Sep;30(10):1660-1670. doi: 10.1177/09612033211028658. Epub 2021 Jul 4. PMID: 34219529.

Lupus
2021

Carra Program:
Registry and Biorepository

Disease Area:
Lupus and Related Conditions (SLE/RC)

Publication Type:
Manuscript

Incidence and Risk Factors of New-Onset Hypogammaglobulinemia and Infectious Complications Associated with Rituximab Use in Pediatric Rheumatic Diseases

Ong MS, Rothman D, Barmettler S, Son MB, Lo M, Roberts J, Natter M. New-onset hypogammaglobulinaemia and infectious complications associated with rituximab use in childhood-onset rheumatic diseases. Rheumatology (Oxford). 2022 Apr 11;61(4):1610-1620. doi: 10.1093/rheumatology/keab626. PMID: 34329428.

Arthritis and Rheumatology
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

The MUSICAL pediatric ultrasound examination – a comprehensive, reliable, time efficient assessment of synovitis

Vega-Fernandez P, Ting TV, Oberle EJ, McCracken C, Figueroa J, Altaye M, Cassedy A, Kaeley GS, Roth J; CARRA Musculoskeletal Ultrasound Workgroup. The MUSICAL pediatric ultrasound examination - a comprehensive, reliable, time efficient assessment of synovitis. Arthritis Care Res (Hoboken). 2021 Jul 30:10.1002/acr.24759. doi: 10.1002/acr.24759. Epub ahead of print. PMID: 34328679; PMCID: PMC8800943.

Arthritis Care & Research
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Development and validation of juvenile spondyloarthritis disease flare (JSpAflare) measure

Weiss PF, Brandon TG, Ryan ME, Treemarcki EB, Armendariz S, Wright TB, Godiwala C, Stoll ML, Xiao R, Lovell D. Development and Validation of a Juvenile Spondyloarthritis Disease Flare Measure: Ascertaining Flare in Patients With Inactive Disease. Arthritis Care Res (Hoboken). 2021 Aug 7:10.1002/acr.24763. doi: 10.1002/acr.24763. Epub ahead of print. PMID: 34363343; PMCID: PMC8818809.

Arthritis Care & Research
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Community Poverty Level Influences Time to First Pediatric Rheumatology Appointment in Polyarticular Juvenile Idiopathic Arthritis

Balmuri N, Soulsby WD, Cooley V, Gerber L, Lawson E, Goodman S, Onel K, Mehta B; CARRA Registry Investigators,. Community poverty level influences time to first pediatric rheumatology appointment in Polyarticular Juvenile Idiopathic Arthritis. Pediatr Rheumatol Online J. 2021 Aug 14;19(1):122. doi: 10.1186/s12969-021-00610-5. PMID: 34391453; PMCID: PMC8364108.

Pediatric Rheumatology Online Journal
2021

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Differences In Rituximab Use Between Pediatric Rheumatologists And Nephrologists For The Treatment Of Refractory Lupus Nephritis And Renal Flare In Childhood-onset SLE

Gilbert M, Goilav B, Hsu JJ, Nietert PJ, Meidan E, Chua A, Ardoin SP, Wenderfer SE, von Scheven E, Ruth NM; Pediatric Nephrology and Rheumatology Collaborative Group, the Childhood Arthritis and Rheumatology Research Alliance, and the American Society for Pediatric Nephrology. Differences in rituximab use between pediatric rheumatologists and nephrologists for the treatment of refractory lupus nephritis and renal flare in childhood-onset SLE. Pediatr Rheumatol Online J. 2021 Aug 30;19(1):137. doi: 10.1186/s12969-021-00627-w. PMID: 34461932; PMCID: PMC8404338.

Pediatric Rheumatology Online Journal
2021

Carra Program:
Consensus Treatment Plans (CTP)

Disease Area:
Lupus and Related Conditions (SLE/RC)

Publication Type:
Manuscript

N-Acetylaspartate, Serine Predict Juvenile Idiopathic Arthritis in Older Adolescents Relative to Healthy Controls: A Cross-Sectional Untargeted Metabolomics Study

Lewis, K.A., Osier, N., Carrasco, R. et al. Serine, N-acetylaspartate differentiate adolescents with juvenile idiopathic arthritis compared with healthy controls: a metabolomics cross-sectional study. Pediatr Rheumatol 20, 12 (2022). https://doi.org/10.1186/s12969-022-00672-z

Pediatric Rheumatology Online Journal
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

A multi-center study of utility and acceptability of depression and anxiety screening in adolescents and young adults with childhood-onset systemic lupus

Rubinstein TB, Dionizovik-Dimanovski M, Davis AM, Smith C, Faust L, Rutstein B, Mitchell M, Jones JT, Harris JG, Rodriguez M, Tesher M, Onel K, Gabbay V, Stein RE, von Scheven E, Knight AM; and for the CARRA Mental Health Workgroup. Multicenter study of utility and acceptability of depression and anxiety screening in adolescents and young adults with childhood-onset systemic lupus. Arthritis Care Res (Hoboken). 2021 Nov 21. doi: 10.1002/acr.24825. Epub ahead of print. PMID: 34806329.

Arthritis Care & Research
2021

Carra Program:
Intramural Grant Program

Disease Area:
Lupus and Related Conditions (SLE/RC)

Publication Type:
Manuscript

Best Practices for Enrollment of Teenagers in a Biobehavioral Study Comparing Cases with Healthy Controls

Lewis, K.A., Brooks, S., Carrasco, R. et al. Best practices for recruitment of adolescents for biobanking and precision health research: a retrospective analysis comparing juvenile idiopathic arthritis cases with healthy controls.Pediatr Rheumatol 19, 169 (2021). https://doi.org/10.1186/s12969-021-00652-9

Pediatric Rheumatology Online Journal
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Psoriasis Rate Is Increased by the Exposure to TNF inhibition in Children with JIA

Zhao Y, Sullivan E, Son MB, Beukelman T. Psoriasis rate is increased by the exposure to TNF inhibition in children with JIA. Ann Rheum Dis. 2022 May;81(5):662-665. doi: 10.1136/annrheumdis-2021-221694. Epub 2022 Jan 27. PMID: 35086815.

Annals of the Rheumatic Diseases
2022

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

External validity and generalizability of the Effects of Youngsters’ Eyesight on Quality of Life questionnaire in children with uveitis

Cassedy A, Altaye M, Andringa J, Cooper AM, Drews-Botsch C, Engelhard G Jr, Hennard T, Holland GN, Jenkins K, Lambert SR, Lipscomb J, McCracken C, McCurdy DK, McDonald J, Mwase N, Prahalad S, Stahl E, Utz VM, Walker AA, Yeh S, Angeles-Han ST. Assessing the Validity and Reliability of the Effects of Youngsters' Eyesight on Quality of Life Questionnaire Among Children With Uveitis. Arthritis Care Res (Hoboken). 2022 Mar;74(3):355-363. doi: 10.1002/acr.24491. Epub 2022 Feb 9. PMID: 33085849.

Arthritis Care & Research
2022

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript