Reproductive Health Concerns in Pediatric Onset Rheumatic Diseases: Filling the Needs of Patients and Parents Through Provider Education

Project Period:
2020-2023

Grant Category:
Small Grant

Disease Area:
Juvenile Idiopathic Arthritis (JIA), Lupus and Related Conditions (SLE/RC), Juvenile Dermatomyositis (JDM)

Reproductive health is an encompassing term used to describe many different topics including but not limited to pregnancy, contraception, sexual relations, infertility, puberty, and monthly periods. Children with rheumatic diseases and their parents have unique reproductive health concerns as it relates to their disease and medications. There has been very little research on this topic in terms of their concerns and how to address them. Patients and parents might ask their pediatric rheumatologists about this topic, but they do not have any resources or dedicated training in this area. This study aims to understand and address the concerns and knowledge gaps of these populations and create a handout to address the needs discovered.

Investigators

Cuoghi Edens, MD

The University of Chicago

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