Adverse Childhood Experiences in Youth with Juvenile Idiopathic Arthritis

Project Period:
2019-2023

Grant Category:
Large Grant

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Adverse Childhood Experiences (ACEs) are major stressors such as abuse, parental incarceration, and hunger. Almost half of children in the United States have experienced at least 1 ACE. ACEs are associated with chronic illness in childhood and adulthood. Studies show that ACEs are associated with worse disease outcomes among adults with rheumatologic diseases, but there have not yet been any studies of the effect of ACEs on children with rheumatologic diseases. The first part of this study will assess how to best screen for ACEs among children with juvenile idiopathic arthritis, with the goal of making sure that complete information is obtained in a way that is comfortable for families. The second part of this study will assess whether ACEs are associated with worse disease activity, pain, physical function, and quality of life in children and teenagers with juvenile idiopathic arthritis.

Investigators

Tamar Rubinstein, MD

The Children's Hospital at Montefiore

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