September 2016 Update

To follow Laura Schanberg as President of CARRA is a daunting task! Under Laura’s leadership, we successfully enrolled the CARRA Legacy Registry, formed a 501c3 organization replete with a Board of Directors, an External Advisory Council, and new by-laws. We have a new website and a partnership with the Arthritis Foundation. We funded and launched the new CARRA Registry, began the first CTP comparative effectiveness study, and are working with Novartis and Roche on post marketing surveillance. CARRA is a part of PARTNERS, a patient-powered research network and began incorporating patient engagement in research. The 2016 annual meeting was a tremendous success, had a record attendance, and the energy was palpable. read more

Register Now for the CARRA Meetings at ACR!

CARRA will be hosting a brief meeting followed by a reception with a cash bar and heavy hors d’oeuvres on Monday, November 14 at 7:45 PM. All CARRA members in addition to supporters and colleagues outside of CARRA are invited to attend. read more

New JIA Study

Study To Identify Factors Most Important To Patients With JIA, And Their Parents/Guardians In Deciding When To Stop Medications We are conducting a study to identify the factors most important to patients with JIA (ages 13 and older, any category) and their...

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CARRA Grants

CARRA offers its members several funding opportunities that leverage the CARRA network to further research, positively impact the pediatric rheumatology scientific community, and advance the CARRA mission. For more information on these opportunities, please visit the Grants & Funding page.

Registry Update October 7, 2016

CARRA Registry Stats Enrollment: 2,002 8 sites have enrolled 1-5 patients 31 sites have enrolled 6-49 patients 14 sites have enrolled 50 or more patients Top Enrolling Registry Sites: PI Sarah Ringold/SC Luke Reichley, Seattle Children's Hospital: 228 PI Christi...

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STOP-JIA Press Release March 2016

The Childhood Arthritis and Rheumatology Research Alliance (CARRA), Inc. announced today that the first two patients had enrolled in the Start Time Optimization in Polyarticular Juvenile Idiopathic Arthritis (STOP-JIA) project. STOP-JIA aims to answer a critical question facing patients and doctors: “When is the best time to start biologic medications in polyarticular JIA?” read more

Some breast milk a day keeps the IVIG away?

Perhaps you missed the New York Times article published in October 2015,  “Overselling Breast Feeding” or the firestorm that erupted afterwards. I didn’t. I was up nursing my newborn on our first week home and reading resultant Facebook posts, emails, and even an...

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We are grateful for our partnership with the Arthritis Foundation. Read Arthritis Foundation News & Announcments.



partners logoCARRA is part of a new national research network called PARTNERS, which links researchers, patient communities, clinicians, and health care systems.