Childhood Arthritis and Rheumatology Research Alliance

A Message from the President

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March 2016 Update

Laura Schanberg, MDOver 250 CARRA members and supporters have already registered for the Annual Meeting in Toronto, April 14-17. We are appreciative of the work Executive Director Kelly Mieskalski has done to develop the program with the planning group including Stacey Ardoin, Suzanne Li, and Peter Blier.  They have designed a vibrant meeting with a schedule that includes scientific discussions, work group planning, organizational and research updates, networking, and fun.

Becky Bosworth, Meetings and Conventions Manager, Arthritis Foundation has been very involved in the logistics of hotel, food, and transportation.  We are grateful for the support.

The Arthritis Foundation recently underwent a strategic and geographic reorganization.  They have a new office in Atlanta where we met in January and learned about the new regional division of the United States.  Each of these regions is led by a regional vice president, and this team, along with Rick Willis, Senior VP, Strategic Affairs; Laura Marrow, Director, Partnerships Liaison; Cindy McDaniel, Senior VP, Consumer Health; Andrea Ring, Senior Director, Community Help & Support; and Anne Palmer, President and CEO, will be among representatives from AF attending the Toronto meeting.  Many of you will be in meetings with all or part of the AF team, and we encourage you to seek them out, discuss CARRA and the difference their support is making, share your experiences working with the local AF teams.

2016 ANNUAL SCIENTIFIC MEETING LOGO-2

Annual Meeting Updates

Many thanks to all attendees for a productive and exciting Annual Meeting! We look forward to seeing you again in May 2017 in Houston, TX, for CARRA's 2017 Annual Meeting.

Meeting reimbursement information

 

WHAT CAUGHT OUR EYE

More on the Mind

By Ken Schikler, MD After Rob Fuhlbrigge’s previous entry regarding the “power of the mind” and physiologic symptoms, I thought it timely to bring up a somewhat related paper. As CARRA members, we are involved in clinical trials that assess the safety and efficacy of an “active intervention” as compared to a “sham” or Placebo […]

ARTHRITIS FOUNDATION

REGISTRY NEWS

Meet the DCRI Team

Helen Bristow, is a Project Leader in the Outcomes Research and Assessment Group at DCRI. With a Masters degree in Public Health, Helen brings over a decade of project management experience and experience in health economics and outcomes research, as well as previous professional experience in clinical trials research and data analysis to her role as […]

NEWSLETTER

CARRA Newsletter: April 4, 2016

CARRA Newsletter: April 4, 2016 CARRA REGISTRY UPDATE We have surpassed the important 1000 patient milestone in enrollment! We could not have achieved this without the help and hard work of everyone connected to the Registry. Thank you for all you have done and what you will do as we work together to develop the […]

STOP-JIA

LetsStopJIATogether

STOP-JIA is a project of CARRA (Childhood Arthritis Rheumatology Research Alliance), whose Registry will help answer a critical question for patients, their families, and healthcare providers: When is the best time to begin biologic medications to achieve the best possible outcomes?

PARTNERS

partners-relationship-diagram

CARRA is part of a new national research network called PARTNERS, which links researchers, patient communities, clinicians, and health care systems.

 

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