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September 2016 Update

To follow Laura Schanberg as President of CARRA is a daunting task! Under Laura’s leadership, we successfully enrolled the CARRA Legacy Registry, formed a 501c3 organization replete with a Board of Directors, an External Advisory Council, and new by-laws. We have a new website and a partnership with the Arthritis Foundation. We funded and launched the new CARRA Registry, began the first CTP comparative effectiveness study, and are working with Novartis and Roche on post marketing surveillance. CARRA is a part of PARTNERS, a patient-powered research network and began incorporating patient engagement in research. The 2016 annual meeting was a tremendous success, had a record attendance, and the energy was palpable.

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Cure JM Announcement: Free CME Activity

2017 Update on Juvenile Myositis Care and Research Invitation from Lisa Rider, MD Cure JM Medical Advisory Board, Chair Deputy Chief, EAG, NIEHS, NIH, Bethesda, MD and Ruy Carrasco, MD                             Cure JM Medical Conference, Medical Director Chief,...

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RAAC to Host Joint Exam Live-Streamed Webinar 12/7

This is the first in a series of educational webinars being organized by the CARRA Research Associate Advisory Committee (RAAC). Children’s Hospital of Pittsburgh fellows Laura Tasan, MD and Paul Tsoukas, MD will demonstrate how to perform a joint exam. This webinar...

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CARRA Grants

CARRA offers its members several funding opportunities that leverage the CARRA network to further research, positively impact the pediatric rheumatology scientific community, and advance the CARRA mission. For more information on these opportunities, please visit the Grants & Funding page.

STOP-JIA Press Release March 2016

The Childhood Arthritis and Rheumatology Research Alliance (CARRA), Inc. announced today that the first two patients had enrolled in the Start Time Optimization in Polyarticular Juvenile Idiopathic Arthritis (STOP-JIA) project. STOP-JIA aims to answer a critical question facing patients and doctors: “When is the best time to start biologic medications in polyarticular JIA?”

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The CARRA Data Request Portal is Now Open

You can now initiate a request for data through the Data Request Portal for the following datasets: CARRA Legacy Registry CARRA 2 Registry Other CARRA-related databases (CTP pilots, APPLE) Access the web-based submission portal for data requests via the CARRA...

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The CARRA Members-Only Collaboration Site Has Launched

CARRA is pleased to announce that our Members-Only Collaboration Site is now up and running. The Members-Only Collaboration Site includes resources, such as: CARRA Registry Documentation Diseases & Research Committee Spaces Data Request Portal To access the...

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What Caught My Eye

It is not unusual for pediatric rheumatologists to be asked to see a child with persistent fever, without arthritis, who may or may not have had rash. Usually by the time the rheumatologist is called, the child has often been treated with antibiotics, and bacterial cultures have been done and were negative, and serologic or PCR studies for tick related illnesses and other infectious etiologies are in process or negative. Viral studies are done, and how specific/ disease related is the finding of a positive recovery of a respiratory pathogen from a nasal swab?

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ARTHRITIS FOUNDATION NEWS & ANNOUNCEMENTS

We are grateful for our partnership with the Arthritis Foundation. Read Arthritis Foundation News & Announcments.

 

 

partners logoCARRA is part of a new national research network called PARTNERS, which links researchers, patient communities, clinicians, and health care systems.