Phone: (414) 918-9822    Email: [email protected]

Research

Overview

CARRA and the Duke Clinical Research Institute (DCRI) are collaborating to launch the second phase of the CARRA Registry, a registry of children and young adults with pediatric-onset rheumatic conditions such as juvenile idiopathic arthritis (JIA). The scope of the existing registry, the CARRA Legacy Registry, is being expanded to help researchers learn more about the progression of the disease and medication safety.

The new CARRA Registry provides additional opportunities for research through identification of subjects eligible for future studies and by serving as a data repository. The Registry is a cornerstone of CARRA and provides disease and treatment data on children with a variety of rheumatic diseases. CARRA aims to make it possible for all affected children in North America to have the opportunity to participate in meaningful and high quality clinical and translational research.


Enrollment (as of 3/16)

REGISTRY

STOP-JIA

FROST

PEPR

5,186

337/400

27/200

205/400


Leadership

Yukiko Kimura, MD

Yukiko Kimura, MD Chief, Pediatric Rheumatology Professor of Pediatrics Hackensack University Medical Center

Laura Schanberg, MD,
Professor of Pediatrics
Duke University

Timothy Beukelman, MD, MSCE, Associate Professor of Pediatrics, University of Alabama at Birmingham