JIA Flares, Recapture of Inactive Disease, and the Patient’s Voice
Project Period:
2025-2027
Grant Category:
Clinical Management of JIA Grant
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Patients and families dealing with juvenile idiopathic arthritis (JIA) need good information to make the best health choices. Many want to stop medicines once the disease is under control, but doctors can’t always tell who will have a flare and who will stay well without medicine. Our research team will use the CARRA Registry to see if patients’ and caregivers’ views on disease activity can predict flares and how well they can be controlled. We will also look for ways to predict who will have easy-to-control flares and who might have more trouble. By listening to patients and families, we aim to help doctors and researchers better understand the importance of their experiences. This research will help everyone make better decisions about stopping or reducing medicines. It will also set the stage for future work to improve the lives of young people with well-controlled JIA.
Investigators

Daniel Horton, M.D., M.S.C.E.
Rutgers, The State University of New JerseyRelated Awarded Grants
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Assessment of juvenile idiopathic arthritis outcomes and place of residence in Canada: identifying disparities in care
Disease Area:
Juvenile Idiopathic Arthritis (JIA)
Genetic Ancestry Powered studies (GAPs) in JIA
Disease Area:
Juvenile Idiopathic Arthritis (JIA)