This episode of The CARRA Podcast was recorded live in Washington, D.C. at CARRA’s event at ACR, the American College of Rheumatology’s annual conference. Claudette Johnson, the host of The CARRA Podcast, spoke to the crowd of more than 200 physicians, research professionals, industry representatives and patient advocates at the CARRA event at ACR. She …
Families living with a pediatric rheumatic disease know that school can be a frustrating cycle of missed lessons and makeup work. However, there is very little evidence in medical literature about the burden of school-related issues and the exact barriers that kids with pediatric rheumatic diseases face at school. Mia Chandler, M.D, M.P.H, a pediatric …
When a child is diagnosed with a rare and complex disease like scleroderma, families experience a lot of stress and often feel like they are completely alone. You are never alone. That is why we will dedicate several episodes of The CARRA Podcast to exploring different diseases that make up our CARRA community. We will …
Have you ever wondered what it’s like to be a kid with a rare autoimmune disease? In this special episode, the host of The CARRA Podcast Claudette Johnson, who is a teenager living with a rare autoimmune disease, interviews another teenager who has a rare autoimmune disease about their experiences with school, sports, friends, medical …
Kids with rheumatic and autoimmune diseases rates face an elevated risk of anxiety and depression. Researchers are working hard to improve access to mental health care and to better support children and teens living with rheumatic and autoimmune diseases. In a special two-part series on mental health and mental health awareness, The CARRA Podcast explores …
It’s no secret that mental health issues are on the rise for children and teenagers, but imagine being a kid with a complex, chronic illness. In a special two-part series on mental health and mental health awareness, The CARRA Podcast explores how kids living with autoimmune diseases can face additional mental health issues. The first …
In this second episode of The CARRA Podcast, Claudette Johnson talks with Dr. Mary Beth Son, who is the Co-PI of the CARRA Registry. Dr. Son is Clinical Chief of the Division of Immunology and Section Chief of the Rheumatology Program at Boston Children’s Hospital, as well as an Associate Professor of Pediatrics at Harvard …
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) is a collaborative research network that was created in 2002 by a small group of dedicated physicians working in pediatric rheumatology. From the very beginning, they partnered with patients and families at every stage of research. Today, CARRA has 600 members at more than 120 institutions and …