Association of Organ Screening with Clinical Characteristics and Socioeconomic Status in Juvenile Systemic Sclerosis Using SCORE Database

Project Period:
2026

Grant Category:
Data Analysis Support Grant

Disease Area:
Scleroderma

This study analyzes data from the SCORE multi-center project, focusing on children with juvenile systemic sclerosis (jSSc). We will examine the adherence of these patients to recommended organ screenings within six months of enrollment, according to the Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) guidelines of care for jSSc. Our goal is to identify factors that influence adherence to these screening recommendations, ultimately helping us understand and overcome barriers to early detection and management of complications in jSSc.

Investigators

Christy Zigler, PhD, MSEd

University of Pittsburgh