Donor Bill of Rights
Philanthropy is based on voluntary action for the common good. It is a tradition of giving and sharing that is primary to the quality of life. To assure that philanthropy merits the respect and trust of the general public, and that donors and prospective donors can have full confidence in the not-for-profit organizations and causes they are asked to support, we declare that all donors have these rights:
1. To be informed of the organization’s mission, of the way the organization intends to use donated resources, and of its capacity to use donations effectively for their intended purposes.
2. To be informed of the identity of those serving on the organization’s governing board, and to expect the board to exercise prudent judgment in its stewardship responsibilities.
3. To have access to the organization’s most recent financial statements.
4. To be assured their gifts will be used for the purposes for which they were given.
5. To receive appropriate acknowledgment and recognition.
6. To be assured that information about their donations is handled with respect and with confidentiality to the extent provided by law.
7. To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature.
8. To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors.
9. To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share.
10. To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.
DEVELOPED BY:
American Association of Fund-Raising Counsel (AAFRC)
Association for Healthcare Philanthropy (AHP)
Council for Advancement and Support of Education (CASE)
Association of Fundraising Professionals (AFP)
ENDORSED BY:
Childhood Arthritis and Rheumatology Research Alliance, 2024
Donor Privacy Policy
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) prioritizes the safeguarding and confidentiality of personal information and data within its organization and across its projects and initiatives.
CARRA has implemented governance and management frameworks to uphold this commitment. These frameworks include processes and systems designed to enhance operational effectiveness and reinforce governance, internal controls, security, information protection, and risk management practices. This policy outlines how we collect, use, and protect donor information:
1. Information Collection: We collect personal information such as names, addresses, and donation amounts. This information is collected through our website, donation forms, and during special events.
2. Use of Information: The information collected by CARRA is used to process donations, send acknowledgments, and provide updates on programs and initiatives. CARRA does not sell, share, or trade donor names or personal information with any other entity.
3. Access or Corrections to Personal Information: Donors can contact CARRA at any time to review personal information collected and request corrections. Contact details are provided on the CARRA website and donation forms. Donors may also send a request to CARRA, Attn: Steven Spinner, 1050 Connecticut Avenue, NW, Suite 500, Washington, DC 20036 or to [email protected] or (202) 772-1028. Please allow 14 days to process requests.
4. Opt-Out Options: Donors have the option to opt-out of any future communications. If at any time a donor does not want to receive direct marketing messages or communications from CARRA, a request can be sent to CARRA, Attn: Steven Spinner, 1050 Connecticut Avenue, NW, Suite 500, Washington, DC 20036 or to [email protected] or (202) 772-1028. Please allow 14 days to process requests.
5. Retention of Personal Information: CARRA will only keep personal Information for as long as it is needed for any purpose for which it was collected or is required to be retained under United States law. Where possible, all personal Information which is no longer needed or required by law to be retained will be properly de-identified or destroyed.
6. Anonymity: Donors may request to be listed as anonymous or through a pseudonym. CARRA will accommodate these requests if they are lawful, possible and practical to do so.
7. Online Donations: Donations made online via CARRA’s website or social media channels are processed in real time using a secure payment gateway. Donations are processed in US Dollars. For questions or concerns about making an online donation, please contact CARRA, Attn: Steven Spinner, 1050 Connecticut Avenue, NW, Suite 500, Washington, DC 20036 or to [email protected] or (202) 772-1028.
8. Security Measures: We employ robust security measures, including encryption and secure servers, to protect personal information provided by our donors. These measures ensure that your data is protected against unauthorized access and breaches.
9. Privacy Data Breach Obligations: Donors who become aware of any breach of security are encouraged to contact CARRA immediately. If it is determined there has been a data breach, CARRA will comply with its obligations and responsibilities under all relevant US privacy laws, including any obligation to notify a donor of any security breach and take effective remedial action to protect donor personal information.
DEVELOPED AND ENDORSED BY:
Childhood Arthritis and Rheumatology Research Alliance, 2024