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March 2017 Update

Yukiko Kimura, MD
Yukiko Kimura, MD

2017 has clearly brought many changes in our world, both internal and external to CARRA. Time will tell what the impact of political and economic forces will be on our organization, but there is one certainty: CARRA must prepare to be able to withstand the many challenges that we are likely to face in the next few years to continue and build on the progress and momentum that we have all worked to create in the last few years.

CARRA has enjoyed astounding growth and change in the last few years (http://www.the-rheumatologist.org/article/future-pediatric-rheumatology-grounded-evolution-childhood-arthritis-rheumatology-research-alliance/). Now more than ever, we must focus and align our collective energy with CARRA’s mission, core values and operating principles. This means we have to work together to build unity and consensus around our research strategies, more clearly define and standardize processes and procedures, and maintain the transparency and democratic principles upon which CARRA was founded.

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CARRA Names Grant Scientific Review Committee (SRC) Chair

We received an enthusiastic response to our call for SRC member applications and are excited to announce that Terry L. Moore, MD, FACP, FAAP, MACR, has been selected as the inaugural chair for CARRA’s SRC.  Dr. Terry Moore has been a faculty member at Saint Louis University School of Medicine and has served as a Director of the Division of Adult Rheumatology and Pediatric Rheumatology since 1983. He has risen to the position of Professor of Internal Medicine, Pediatrics, and Molecular Microbiology and Immunology at the Medical School. He received the award of Master of the American College of Rheumatology (ACR)/Research Education Foundation (REF), the highest honor bestowed on a member of the ACR/REF. He is presently one of 10 Rheumatology Division Director’s across the country to be named as a member of the ACR Director’s Task Force/Director’s Special Committee to guide the ACR in the upcoming years.

View the full announcement

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Call For Nominations: CARRA Ethics Committee

Nominations are due: September 1
Applications are due: September 22

The CARRA Elections Committee is seeking nominations for the Ethics Committee (5 open positions). You may nominate yourself or someone else by September 1.

Click here to view the full Call for Nominations

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CARRA Large (up to $50K) and Small (up to $25K) Grant Applications Due 10-2-17

CARRA is pleased to announce CARRA Large (up to $50k) and Small (up to $25k) Grant Applications Due 10/2/17.

For more Information visit the Grants & Funding page.

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Registry Update September 15, 2017

ENROLLMENT

CARRA RegistryCARRA Registry: 3,874
STOP-JIA: 259/400
FROST: 17/200
PEPR: 20/450

STOP-JIA Press Release March 2016

The Childhood Arthritis and Rheumatology Research Alliance (CARRA), Inc. announced today that the first two patients had enrolled in the Start Time Optimization in Polyarticular Juvenile Idiopathic Arthritis (STOP-JIA) project. STOP-JIA aims to answer a critical question facing patients and doctors: “When is the best time to start biologic medications in polyarticular JIA?”

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CARRA is Growing

As of June 2017, there are 555 members and 119 sites in the United States and Canada.

The below chart shows the growth of CARRA from 2003 to 2016:

CARRA's Growth Chart

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CARRA Membership Numbers Reach Record Levels!

We are very excited to announce that CARRA had a record year for membership growth! We had 125 new members join in 2016, bringing our current membership total to...

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What Caught My Eye: Breaking the Seal on P Values

Jay Mehta, MD, MS
The Children's Hospital of Philadelphia.

When I was in medical school, there was a saying: “P = M.D.” In this case, “P” referred to a passing grade and this was usually said late at night while studying for a major test. The point was that all we needed to do was pass the test and we’d be ok in our quest to graduate from medical school. A passing grade was sufficient. There was no need to aim higher than that.

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We are grateful for our partnership with the Arthritis Foundation. Read Arthritis Foundation News & Announcements.

 

 

partners logoCARRA is part of a new national research network called PARTNERS, which links researchers, patient communities, clinicians, and health care systems.