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March 2017 Update

Yukiko Kimura, MD

Yukiko Kimura, MD

2017 has clearly brought many changes in our world, both internal and external to CARRA. Time will tell what the impact of political and economic forces will be on our organization, but there is one certainty: CARRA must prepare to be able to withstand the many challenges that we are likely to face in the next few years to continue and build on the progress and momentum that we have all worked to create in the last few years.

CARRA has enjoyed astounding growth and change in the last few years (http://www.the-rheumatologist.org/article/future-pediatric-rheumatology-grounded-evolution-childhood-arthritis-rheumatology-research-alliance/). Now more than ever, we must focus and align our collective energy with CARRA’s mission, core values and operating principles. This means we have to work together to build unity and consensus around our research strategies, more clearly define and standardize processes and procedures, and maintain the transparency and democratic principles upon which CARRA was founded.

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CTP Webinars

Brian Feldman and Emily von Scheven will host two webinars to provide education to CARRA members on consensus methodology and best practice for CTP development and to answer any questions you may have about the guidance document (Download PDF): CTP Webinar 1 Date:...

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CARRA Research Informatics Internship

CARRA is pleased to announce a new Research Informatics Training Internship intended to advance informatics-related research in Pediatric Rheumatology by increasing the pool of independent informatics researchers in our field. Through this internship, CARRA will fund...

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CARRA Grants

CARRA offers its members several funding opportunities that leverage the CARRA network to further research, positively impact the pediatric rheumatology scientific community, and advance the CARRA mission. For more information on these opportunities, please visit the Grants & Funding page.

STOP-JIA STUDY OVERVIEW

STOP-JIA Press Release March 2016

The Childhood Arthritis and Rheumatology Research Alliance (CARRA), Inc. announced today that the first two patients had enrolled in the Start Time Optimization in Polyarticular Juvenile Idiopathic Arthritis (STOP-JIA) project. STOP-JIA aims to answer a critical question facing patients and doctors: “When is the best time to start biologic medications in polyarticular JIA?”

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The CARRA Data Request Portal is Now Open

You can now initiate a request for data through the Data Request Portal for the following datasets: CARRA Legacy Registry CARRA 2 Registry Other CARRA-related databases (CTP pilots, APPLE) Access the web-based submission portal for data requests via the CARRA...

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ARTHRITIS FOUNDATION NEWS & ANNOUNCEMENTS

We are grateful for our partnership with the Arthritis Foundation. Read Arthritis Foundation News & Announcments.

 

 

partners logoCARRA is part of a new national research network called PARTNERS, which links researchers, patient communities, clinicians, and health care systems.