CARRA Newsletter: July 2017, Issue 1
2017-2018 CARRA Interns Selected!
CARRA Registry Interns
Congratulations to Marinka Twilt (Alberta Children’s Hospital) and CJ Inman (University of Utah) for being selected as our two new CARRA Registry interns for 2017-2018. We are also excited to announce that our current interns, Mary Beth Son and Sarah Ringold, will continue for a second year. The CARRA Registry Internship is designed to immerse the selected investigator in the operational, leadership, and scientific aspects of the multicenter observational CARRA registry. This is a unique opportunity to interact intensively with the CARRA Registry leadership team, to learn skills and gain knowledge that will inform pediatric rheumatology research and change practice. CARRA funds at least one position annually for up to two years.
CARRA Research Informatics Intern
The goal of the CARRA Research Informatics Training Internship is to provide promising young investigators with research informatics training and mentorship. The goal of the internship is to enable the individual to become an independently funded researcher in bio- or clinical informatics, who will contribute back to the pediatric rheumatology community. Interns will conduct their own project which has value to CARRA and the CARRA Registry. CARRA funds each selected intern for up to two years.
Congratulations to Jon Hausmann (Boston Children’s Hospital) for being selected as CARRA’s inaugural Research Informatics Intern.
CARRA ELECTIONS: CARRA Fellow Co-Chairs!
Congratulations to newly elected CARRA Fellow Committee Co-Chairs Cuoghi Edens (Rainbow Babies Children’s Hospital) and Miriah Gillispie (Baylor College of Medicine). Cuoghi and Miriah will serve one year terms leading the CARRA Fellows group.
CARRA REGISTRY UPDATES
CARRA Opens Enrollment to all JIA Patients (and Rolls Out a New Logo!)
CARRA is now enrolling ALL JIA patients in addition to new onset lupus patients. Enrollment criteria:
JIA: Participants should have:
SLE: Participants should have diagnosis of one of the following in the past 24 months:
215 of 400 STOP-JIA (Start Time Optimization of biologics in Poly-JIA) enrolled (13 with biosamples).
Please make it a priority to enroll all new poly JIA and systemic JIA patients in STOP-JIA and FROST if your site is participating. AND it is very important that we collect SAMPLES on these patients (prior to starting treatment if at all possible).
Congratulations to the study team at the University of Utah including principal investigator CJ Inman and study coordinators Suzy Jones and Jennifer Huntington for becoming the new top enroller for the CARRA Registry!
The CARRA Registry has a new logo and an updated brochure! Look for the new brochure to be shipped to participating CARRA Registry sites this August!
Announcements and Reminders
Annual Meeting Reimbursements are on Their Way
Call for Nominations Coming Soon
ACR Save the Date
CARRA Grant Deadlines
Lupus Foundation of America Announcement
DO YOU HAVE GOOD NEWS TO SHARE?
iPeer2Peer Mentorship Program
2017 JA Camps
Arthritis Foundation Local Leadership Boards