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Member Publications

CARRA Related Publications back to 2015 can be found on this page. Publications prior to 2015 can be found on the archives page:

Publications Archive


2018 Publications

Full Length Articles

Stevens, B., et al. Clinical characteristics and factors associated with disability and impaired quality of life in children with juvenile systematic sclerosis. Arthritis Care and Research (Hoboken), 2018 Feb 18. doi: 10.1002/acr.23547 [Epub ahead of print]

Hersh, A., et al. Predictors of disability in a childhood-onset systemic lupus erythematosus cohort: results from the CARRA Legacy Registry. Lupus, 2018; 27(3):494-500.

Samad, A., et al. Adiposity in Juvenile Psoriatic Arthritis. The Journal of Rheumatology, 2018; 45(3):411-418.

Chalia, D., et al. Predictors of changes in disease activity among children with juvenile dermatomyositis enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Legacy Registry. Clinical Rheumatology, 2018; 37(4):1011-1015.

Rubinstein, T., et al. Delays to Care in Pediatric Lupus Patients: Data from the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry. Arthritis Care and Research (Hoboken), 2018; 70(3):420-427.

Ringold, S., et. al. The Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans: Toward Comparative Effectiveness in the Pediatric Rheumatic Diseases. Arthritis & Rheumatology, 2018; 70(5):669-678.

Angeles-Han, S., et al. Childhood Arthritis and Rheumatology Research Alliance consensus treatment plans for juvenile arthritis-associated and idiopathic chronic anterior uveitis. Arthritis Care and Research (Hoboken), 2018 May 28. doin: 10.1002/acr23610. [Epub ahead of print]

Tory, H., et al. Comparing the importance of quality measurement themes in juvenile idiopathic inflammatory myositis between patients and families and healthcare professionals. Pediatric Rheumatology Online Journal, 2018; 16(1):28.

Weitzman, E., et al. Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis. Journal of Patient-Reported Outcomes, 2018; 2.pii:16. doi:1186/s41687-017-0025-02.

Nigrovic, P., et al. Bayesian comparative effectiveness study of four consensus treatment plans for initial management of systematic juvenile idiopathic arthritis: FiRst-Line Options for Systemic juvenile idiopatic arthritis Treatment (FROST). Clinial Trials, 2018; 15(3):268-277.


2017 Publications

Full Length Articles

Boneparth, A., et al. Approach to Membranous Lupus Nephritis: A Survey of Pediatric Nephrologists and Pediatric Rheumatologists.

Orandi, A., et al. Assessment, classification and treatment of calcinosis as a complication of juvenile dermatomyositis: a survey of pediatric rheumatologists by the childhood arthritis and rheumatology research alliance (CARRA). Pediatric Rheumatology, 2017; 15:71.

Beukelman, T., et al. The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months. Pediatric Rheumatology Online Journal, 2017 Apr 17; 15:30.

Zhao, Y., et al. Physicians’ Perspectives on the Diagnosis and Treatment of Chronic Nonbacterial Osteomyelitis. International Journal of Rheumatology, 2017; 2017:7694942.

Phillippi, K., et al. Race, Income, and Disease Outcomes in Juvenile Dermatomyositis. Journal of Pediatrics, 2017; 184:38-44.e1.

Kimura, Y., et al. Pilot study comparing the Childhood Arthritis & Rheumatology Research Alliance (CARRA) systemic Juvenile Idiopathic Arthritis Consensus Treatment Plans. Pediatric Rheumatology Online Journal, 2017; 15(1):23.

Zisman, D., et al. The Juvenile Psoriatic Arthritis Cohort in the CARRA Registry: Clinical Characteristics, Classification, and Outcomes. Journal of Rheumatology, 2017; 44(3):342-351.

Boneparth, A., et al. Clinical characteristics of children with membranous lupus nephritis: the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry. Lupus, 2017; 26(3):299-306.

Minoia, F., et al. Development and Initial Validation of the Macrophage Activation Syndrome/Primary Hemophagocytic Lymphohistiocytosis Score, a Diagnostic Tool that Differentiates Primary Hemphagocytic Lymphohistiocytosis from Macrophage Activation Syndrome. Journal of Pediatrics, 2017; 189:72-78.e3.

Kim, S., et al. Childhood Arthritis and Rheumatology Research Alliance consensus clinical treatment plans for juvenile dermatomyositis with skin predominant disease. Pediatric Rheumatology Online Journal, 2017; 15(1):1.

Huber, A., et al. Childhood Arthritis and Rheumatology Research Alliance Consensus Clinical Treatment Plans for Juvenile Dermatomyositis with Persistant Skin Rash. Journal of Rheumatology, 2017; 44(1):110-116.

Zhao, Y., et al. Consensus Treatment Plans for Chronic Nonbacterial Osteomyelitis Refractory to Nonsteroidal Anti-Inflammatory Drugs and/or Active Spinal Lesions. Arthritis Care and Research (Hoboken), 2017; doi:10.1002/acr.23462. [Epub ahead of print.]

Manthiram, K., et al. Physicians' perspectives on the diagnosis and management of periodic fever, aphthous stomatitis, pharyngitis, and cervical adenitis (PFAPA) syndrome. Rheumatology International, 2017; 37(6):883-889.

Spencer, C., et al. Biologic therapies for refractory juvenile dermatomyositis: five years of experience of the Childhood Arthritis and Rheumatology Research Alliance in North America. Pediatric Rheumatology Online, 2017 Jun 13; 15(1):30.

Horton, D., et al. Attitudes and Approaches for Withdrawing Drugs for Children with Clinically Inactive Nonsystematic JIA: A Survey of the Childhood Arthritis and Rheumatology Research Alliance. Journal of Rheumatology, 2017; 44(3):352-360.


Abstracts

Horton, D., et al. Factors Related to Sustained Discontinuation of Medications for Well-Controlled JIA in the Childhood Arthritis & Rheumatology Research Alliance Registry. 2017 ACR/ARHP Annual Meeting. November 2017.

Janow, G., et. al.Cluster Analysis of Autoantibodies and Their Relationship with Demographic and Clinical Features in Pediatric Systemic Lupus Erythematosus in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry. 2017 ACR/ARHP Annual Meeting. November 2017.

Mannion, M., et al. Biologic Switching Among JIA Patients: A Cohort Study in the Childhood Arthritis and Rheumatology Research Alliance Registry. 2017 ACR/ARHP Annual Meeting. November 2017.

Ringold, S., et al. Patterns of Medication Use in Non-Systemic Polyarthritis: Data from the Childhood Arthritis and Rheumatology Research Alliance Patient Registry. 2017 ACR/ARHP Annual Meeting. November 2017.

Ringold, S., et al. The Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA Study: Interim Report of Baseline Patient Characteristics and Treatment Choices. 2017 ACR/ARHP Annual Meeting. November 2017.

Taxter, A., et al. Integration of Electronically Captured Patient-Reported Outcomes in a Pediatric Rheumatology Clinic Visit. 2017 ACR/ARHP Annual Meeting. November 2017.

Henderson, L., et al. 3-D Explant Method Facilitates the Study of Lymphocytes in Synovium and Reveals a Population of Resident Memory-Like T Cells in Rheumatoid Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Stinson, J., et al. A Randomized Controlled Trial (RCT) of an Internet-Based Self-Management Program for Adolescents with Juvenile Idiopathic Arthritis (JIA). 2017 ACR/ARHP Annual Meeting. November 2017.

Stinson, J., et al. An Internet-based Self-management Program for Adolescents with Juvenile Idiopathic Arthritis – A Randomized Controlled Trial. 2017 ACR/ARHP Annual Meeting. November 2017.

Levescot, A., et al. Autoimmune Arthritis in IL-1 Receptor Antagonist-Deficient Mice Is Associated with a Pathogenic Conversion of Foxp3+ Regulatory T Cells into Th17 Cells. 2017 ACR/ARHP Annual Meeting. November 2017.

Ringold, S., et al. Baseline characteristics of the first 123 patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA comparative effectiveness study. 2017 ACR/ARHP Annual Meeting. November 2017.

Rezaei E., et al. Biologically-Based Approach for Classifying Chronic Childhood Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Heshin-Bekenstein M., et al. Childhood-Onset Predicts Increased Steroid-Related Damage Among Adults with Systemic Lupus Erythematosus. 2017 ACR/ARHP Annual Meeting. November 2017.

Stoll, M., et al. Children with Treatment-Naive Enthesitis-Related Arthritis Have Decreased Fecal Abundance of Faecalibacterium Prausnitzii A2-165 and Bacteroides Fragilis: A Multi-Center Collaborative Study. 2017 ACR/ARHP Annual Meeting. November 2017.

Cooper, J., et al. Corticosteroid Regimen Use in the Pilot Study of Consensus Treatment Plans for Induction Therapy in Childhood Proliferative Lupus Nephritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Ardoin, S., et al. Deficiency of Complement C4A or Low Copy Number of Total C4 Genes, HLA-DRB1*15 and HLA-DRB1*03 Are Strong Genetic Risk Factors for Pediatric SLE of European Descent. 2017 ACR/ARHP Annual Meeting. November 2017.

Li, S., et al. Defining Active Features of Juvenile Localized Scleroderma. 2017 ACR/ARHP Annual Meeting. November 2017.

Consolaro, A., et al. Development of New Juvenile Arthritis Disease Activity Score Cut-Offs for Oligoarthritis and RF-Negative Polyarthritis from a Large Multinational Cohort of Children with Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Chhabra, A., et al. Effectiveness of Common Treatment Strategies for Juvenile Arthritis in Usual Practice:  Results from the Research in Arthritis in Canadian Children Emphasizing Outcomes Cohort. 2017 ACR/ARHP Annual Meeting. November 2017.

O'Neil, K., et al. Effects of Puberty on Systemic Lupus Erythematosus:  Results of a multi-center prospective longitudinal observational study in children entering puberty with SLE. 2017 ACR/ARHP Annual Meeting. November 2017.

Mallalieu, N., et al. Evaluation of a Dosing Regimen for Tocilizumab in Patients Younger Than Two Years of Age with Systemic Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Stinson, J., et al. Feasibility Testing of An Internet-Based Psycho-Educational Game for Children with Juvenile Idiopathic Arthritis and Their Parents. 2017 ACR/ARHP Annual Meeting. November 2017.

Westra, H-J., et al. Fine-Mapping Identifies Causal Variants for RA and T1D in DNASE1L3, Sirpg, MEG3, TNFAIP3 and CD28/CTLA4 Loc. 2017 ACR/ARHP Annual Meeting. November 2017.

Grevich, S., et al. Gastrointestinal Microbiota in New-Onset Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Horton, D., et al. How Young People with Juvenile Idiopathic Arthritis and Their Caregivers Weigh the Risks of the Disease and its Treatment: A Mixed-Methods Study. 2017 ACR/ARHP Annual Meeting. November 2017.

Buckley, L., et al. Improving Outcomes Using a Treat to Target Approach and Clinical Decision Support in Polyarticular Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Guzman, J., et al. Individualized Prediction of Early Remission on Medication in Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Wright, J., et al. Knowledge Translation in Juvenile Idiopathic Arthritis in Canada: A Focus on Parents of Children with JIA. 2017 ACR/ARHP Annual Meeting. November 2017.

Rose-Davis, B., et al. Knowledge Translation in Juvenile Idiopathic Arthritis Research in Canada: A Focus on Pediatric Rheumatologists and Allied Health Professionals. 2017 ACR/ARHP Annual Meeting. November 2017.

Ringold, S., et al. Methotrexate use and route of administration in JIA: Results from the Childhood Arthritis & Rheumatology Research Alliance Registry. 2017 ACR/ARHP Annual Meeting. November 2017.

Grieshaber Bouyer, R., et al. Multiplexed Characterization of Circulating and Joint-Derived Human Neutrophils in Inflammatory Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Chang, M., et al. Murine Model of Arthritis Flare Identifies CD8+ Tissue Resident Memory T Cells in Recurrent Synovitis. 2017 ACR/ARHP Annual Meeting. November 2017.

Grevich, S., et al. Oral Microbial Profile in Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.

Hershin-Bekenstein, M., et al. Peri-pubertal Onset of Systemic Lupus Erythematosus is Associated with Shorter than Expected Adult Height. 2017 ACR?ARHP Annual Meeting. November 2017.

Amarilyo, G., et al. Preliminary Consensus Treatment Plans for Periodic Fever, Aphthous Stomatitis, Pharyngitis and Adenitis: The Foundation for Capturing Treatment Responses in PFAPA from the CARRA PFAPA Subcommittee. 2017 ACR/ARHP Annual Meeting. November 2017.

Shenoi, S., et al. The Disease Burden of Systemic Juvenile Idiopathic Arthritis for Patients and Caregivers: An International Health Related Quality of Life Survey and Retrospective Chart Review. 2017 ACR/ARHP Annual Meeting. November 2017.

Deakin, C., et al. The Interaction between Genetic Risk Factors and Age of Disease Onset in Juvenile Dermatomyositis. 2017 ACR/ARHP Annual Meeting. November 2017.

Hoyt, K., et al. The Lymphocyte Repertoire in Juvenile Dermatomyositis. 2017 ACR/ARHP Annual Meeting. November 2017.

Knight, A., et al. Underutilization of Social Workers for Mental Health Care of Adolescents in Pediatric Rheumatology: A Mixed Methods Study. 2017 ACR/ARHP Annual Meeting. November 2017.

Lovell, D., et al. Validation of Biomarkers to Predict Flare in Polyarticular JIA upon Stopping Anti-TNF Therapy. 2017 ACR/ARHP Annual Meeting. November 2017.

Maksymowych, M., et al. Validation of Online Calibration Modules for the Spondyloarthritis Research Consortium of Canada MRI Scores Based on Real-Time Experiential Learning. 2017 ACR/ARHP Annual Meeting. November 2017.

Jonsson, A., et al. Vδ1, Vδ2, and Other γδT Cells in Blood and Synovium of Rheumatoid Arthritis and Other Autoimmune Arthritides. 2017 ACR/ARHP Annual Meeting. November 2017.

Orandi, A., et al.  Clinical Features and Frequency of Biologic use in Patients with Juvenile Dermatomyositis-associated Calcinosis. 2017 Pediatric Rheumatology Symposium. May 2017.

Stoll, M., et al. Akkermansia Muciniphila May Be Permissive to Arthritis in the K/BxN Mouse Model of Arthritis. 2017 Pediatric Rheumatology Symposium. May 2017.

Horton, D., et al. How Young People with Juvenile Idiopathic Arthritis and Their Caregivers Weigh the Risks of the Disease and its Treatment: A Mixed-Methods Study. 2017 Pediatric Rheumatology Symposium. May 2017.

Amarilyo, G., et al. Preliminary Consensus Treatment Plans for Periodic Fever, Aphthous Stomatitis, Pharyngitis and Adenitis: The Foundation for Capturing Treatment Responses in PFAPA from the CARRA PFAPA Subcommittee. 2017 Pediatric Rheumatology Symposium. May 2017.

Kim, H., et al. Novel Serum Broad-Based Proteomic Discovery Analysis Identifies Proteins and Pathways Dysregulated in Juvenile Dermatomyositis (JDM) Myositis Autoantibody Groups. 2017 Pediatric Rheumatology Symposium. May 2017.

Ombrello, M., et al. Examination of Reported Risk Loci from Candidate Gene Studies of Systemic Juvenile Idiopathic Arthritis Identifies Link between IL1RN Variation and both Disease Susceptibility and Response to Interleukin-1 Directed Therapy. 2017 Pediatric Rheumatology Symposium. May 2017.

Ringold, S., et al. Baseline characteristics of the first 123 patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA Comparative Effectiveness Study. 2017 Pediatric Rheumatology Symposium. May 2017.

Knight, A., et al. Underutilization of Social Workers for Mental Health Care of Adolescents in Pediatric Rheumatology: A Mixed Methods Study. 2017 Pediatric Rheumatology Symposium. May 2017.

Muscal, E., et al. Exploring the Role of Pediatric Rheumatologists in the Diagnosis and Management of Autoimmune Encephalitis. 2017 Pediatric Rheumatology Symposium. May 2017.

Ringold, S., et al. Methotrexate use and route of administration in JIA: Results from the Childhood Arthritis & Rheumatology Research Alliance Registry. 2017 Pediatric Rheumatology Symposium. May 2017.

Cooper, J., et al. Corticosteroid Regimen Use in the Pilot Study of Consensus Treatment Plans for Induction Therapy in Childhood Proliferative Lupus Nephritis. 2017 Pediatric Rheumatology Symposium. May 2017.

Henderson, L., et al. The Lymphocyte Repertoire in Juvenile Dermatomyositis. 2017 Pediatric Rheumatology Symposium. May 2017.

Wahezi, D., et al. Assessment of Endothelial Dysfunction and Atherogenic Risk Factors in Children with Juvenile Dermatomyositis. 2017 Pediatric Rheumatology Symposium. May 2017.

Woolnough, L., et al. Novel Approach to Quantifying Joint Pathology Via Musculoskeletal Ultrasound in Newly Diagnosed Juvenile Idiopathic Arthritis. 2017 Pediatric Rheumatology Symposium. May 2017.


Periodicals

Boneparth, A. et al. Approach to Membranous Lupus Nephritis: A Survey of Pediatric Nephrologists and Pediatric Rheumatologists.

Dermatologists, rheumatologists differ in management of pediatric discoid lupus erythematosus.


2016 Publications

Full Length Articles

Moorthy, L.N., et al.Efficacy of an Interinstitutional Mentoring Program Within Pediatric Rheumatology. Arthritis Care & Research.

Morgan, E.Improving care delivery and outcomes in pediatric rheumatic diseases Current Opinion in Rheumatology.

Janow, G., et al.The Systemic Juvenile Idiopathic Arthritis Cohort of the Childhood Arthritis & Rheumatology Research Alliance Registry: 2010-2013. J Rheumatology.

Knight, A.M., et al.Identifying Targets for Improving Mental Healthcare of Adolescents with Systemic Lupus Erythematosus: Perspectives from Pediatric Rheumatology Clinicians in the United States and Canada. J Rheumatology.

Fitzpatrick, L., et al.Phenotypic Characterization of Juvenile Idiopathic Arthritis in African American Children. J Rheumatology.

Driest, K.D., et al.Factors associated with thrombosis in pediatric patients with systemic lupus erythematosus. Lupus.

Prahalad, S., et al.Familial autoimmunity in the Childhood Arthritis and Rheumatology Research Alliance registry. Pediatric Rheumatology.

Henderson, L.A., et al.Medication use in juvenile uveitis patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance Registry. Pediatric Rheumatology.

Wenderfer, S.E., et al.Practice patterns and approach to kidney biopsy in lupus: a collaboration of the Midwest Pediatric Nephrology Consortium and the Childhood Arthritis and Rheumatology Research Alliance. Pediatric Rheumatology.

Nowell, W.B., et al.Reenergizing Research While Improving Patient Care Provider Magazine. June 2016.

Huber, A.M., et al.Childhood Arthritis and Rheumatology Research Alliance Consensus Clinical Treatment Plans for Juvenile Dermatomyositis with Persistent Skin Rash The Journal of Rheumatology. November 2016

Kimura, Y. and Schanberg, L.E.The Future of Pediatric Rheumatology Grounded in Evolution of Childhood Arthritis and Rheumatology Research Alliance The Rheumatologist. Dececmber 15, 2016

Fotis, L., et al.Proceedings of the 2016 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Scientific Meeting, Toronto, Canada. Pediatric Rheumatology. April 14-17, 2016


Abstracts

Ringold, S., et al.Patterns of Medication Use in Children with Juvenile Idiopathic Arthritis: Results from the Childhood Arthritis & Rheumatology Research Alliance Registry. 2016 ACR/ARHP Annual Meeting. September 2016

Hayward, K., et al.Mentoring the Pediatric Rheumatology Community through the American College of Rheumatology/Childhood Arthritis and Rheumatology Research Alliance Mentoring Interest Group Network: A Five-Year Status Update 2016 ACR/ARHP Annual Meeting. September 2016

Tory, H., et al.Comparison of Patient and Physician Reported Global Disease Activity Measures in Juvenile Dermatomyositis 2016 ACR/ARHP Annual Meeting. September 2016

Crowson, C.S., et al.Predictors of Changes in Disease Activity Among Children with Juvenile Dermatomyositis 2016 ACR/ARHP Annual Meeting. September 2016

Cooper, J.C., et al.A Pilot Study of Consensus Treatment Plans for Induction Therapy in Childhood Proliferative Lupus Nephritis 2016 ACR/ARHP Annual Meeting. September 2016

Arkin, L., et al.Practice-Based Differences Between Pediatric Rheumatologists and Dermatologists Caring for Children with Discoid Lupus 2016 ACR/ARHP Annual Meeting. September 2016

Rubinstein, T., et al.Predictors of Delays to Care and Associated Outcomes in Pediatric Lupus Patients from the Childhood Arthritis and Rheumatology Research Alliance Registry 2016 ACR/ARHP Annual Meeting. September 2016

Knight, A., et al.Mental Health Care for Adolescents with Rheumatologic Conditions: Perspectives from Pediatric Behavioral Health Providers in North America 2016 ACR/ARHP Annual Meeting. September 2016

Stevens, B., et al.JUVENILE SYSTEMIC SCLEROSIS COHORT WITHIN THE CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) LEGACY REGISTRY: BASELINE AND FOLLOW UP CHARACTERISTICS EULAR 2016; Ann Rheum Dis2016;75(Suppl2): 761. 2016

Moncrieffe, H., et al.Transcriptional profiling reveals monocyte signature associated with JIA patient poor response to methotrexate CARRA Annual Meeting 2016. 2016

Beukelman, T., et al.Clinical characteristics of the initial patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry CARRA Annual Meeting 2016. 2016

Blier, P.R., et al.Comparative performance of small and large clinical centers in a comprehensive pediatric rheumatology disease registry. CARRA Annual Meeting 2016. 2016

Boneparth, A., et al.Clinical characteristics of children with membranous lupus nephritis: The Childhood Arthritis and Rheumatology Research Alliance Legacy Registry CARRA Annual Meeting 2016. 2016

Gilbert, M., et al.Comparison of pediatric rheumatology and nephrology survey results for the treatment of refractory proliferative lupus nephritis and renal flare in juvenile SLE CARRA Annual Meeting 2016. 2016

Janow, G., et al.The Systemic Juvenile Idiopathic Arthritis Cohort of the Childhood Arthritis & Rheumatology Research Alliance Registry CARRA Annual Meeting 2016. 2016

Kimura, Y., et al.Results of the pilot study of the Childhood Arthritis and Rheumatology Research Alliance (CARRA) consensus treatment plans for new-onset systemic juvenile idiopathic arthritis CARRA Annual Meeting 2016. 2016

Oberle, E.J., et al.Clinical course of juvenile dermatomyositis presenting as skin predominant disease CARRA Annual Meeting 2016. 2016

Li, S.C., et al.Evaluating the feasibility of conducting comparative effectiveness studies in juvenile Localized Scleroderma (jLS) CARRA Annual Meeting 2016. 2016

Oberle, E.J., et al.A Survey of musculoskeletal ultrasound practices of pediatric rheumatologists in North America CARRA Annual Meeting 2016. 2016

Orandi, A.B., et al.Assessment, classification and treatment of calcinosis as a complication of juvenile dermatomyositis: A survey of pediatric rheumatologists by the Childhood Arthritis and Rheumatology Research Alliance CARRA Annual Meeting 2016. 2016

Reed, A., et al.CARRA dermatomyositis CTP pilot study CARRA Annual Meeting 2016. 2016

Stevens, B., et al.Juvenile systemic sclerosis cohort within the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Legacy Registry: Follow up characteristics CARRA Annual Meeting 2016. 2016

Stinson, J., et al.Development and usability testing of an iPad and desktop psycho-educational game for children with Juvenile Idiopathic Arthritis and their parents CARRA Annual Meeting 2016. 2016

Stinson, J., et al.iCanCope: User-centred design and development of a smartphone app to support self-management for youth with arthritis pain CARRA Annual Meeting 2016. 2016

Wenderfer, S.E., et al.Proliferative lupus nephritis in juvenile SLE: Support from the pediatric nephrology community for the definitions of responsiveness and flare in the 2012 consensus treatment plans CARRA Annual Meeting 2016. 2016

Woo, J.M.P., et al.The steroid taper app: Making of a mobile app CARRA Annual Meeting 2016. 2016


2015 Publications

Full Length Articles

Stinson JN, et al. Assessment and management of pain in juvenile idiopathic arthritisPain Research & Management?: The Journal of the Canadian Pain Society. 2012;17(6):391-396.Sobel R, et al.

Novel Method to Collect Medication Adverse Events in Juvenile Arthritis: Results From the Childhood Arthritis and Rheumatology Research Alliance Enhanced Drug Safety Surveillance ProjectArthritis Care & Research. Volume 67, Issue 4, pages 529–537, April 2015

Ruth NM, et al. Practice Patterns and Approach to Kidney Biopsy in Lupus: a MWPNC and CARRA Collaboration.  Pediatric Rheumatology 2015, DOI 10.1186/s12969-015-0024-x

Tress JL and Sherry DD. The Cost of Research: A Survey of Participating Sites in a Nationwide Registry. The Journal of Rheumatology. Volume 42, Number 4, pages 702-705. April 2015


Abstracts

A Comparison of Pain and Disability, and Their Association Between Juvenile Primary Fibromyalgia Syndrome and Pediatric Rheumatic Diseases: Results from the Childhood Arthritis and Rheumatology Research Alliance Registry. Weiss JE, Connelly M.  Arthritis Rheumatol. 2015; 67 (suppl 10).

A Description of the Transition Aged Population in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry. Hersh AO, Son MB, von Scheven E. Arthritis Rheumatol. 2015; 67 (suppl 10). 2015.

Adiposity in Children with Juvenile Psoriatic Arthritis (JPsA). Samad A, Stoll ML, Lavi I, Gupta K, Hsu J, Strand V, Mellins ED, Zisman D. Arthritis Rheumatol. 2015; 67 (suppl 10).

Associations Between Race and Income Disparity on Morbidity in Juvenile Dermatomyositis. Phillippi K, Hoeltzel M, Robinson AB, Kim S. Arthritis Rheumatol.2015; 67 (suppl 10).

Characteristics of the Juvenile Systemic Sclerosis Cohort within the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry. Stevens BE, Torok KS, Li SC, Hershey N, Curran M, Higgins GC, Moore K, Rabinovich CE, Stevens AM. Arthritis Rheumatol. 2015; 67 (suppl 10).

Current Provider Practices and Perceived Barriers for Mental Health Care of Adolescents with SLE.  Knight A, Vickery M, Muscal E, Davis A, Harris J, Soybilgic A, Onel K, Schanberg LE, Rubinstein T, Gottlieb BS, Wright T, von Scheven E. Arthritis Rheumatol. 2015; 67 (suppl 10).

Damage Develops Early and Is Common in Children with Chronic Systemic Vasculitis.  O’Neill L, Twilt M, Benseler S, Föll D, Cabral DA, Luqmani R. Arthritis Rheumatol. 2015; 67 (suppl 10).

Description of the Juvenile Localized Scleroderma Subgroup of the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry.  Wu EY, Li SC, Torok KS, Virkud Y, Fuhlbrigge RC, Rabinovich CE. Arthritis Rheumatol.2015; 67 (suppl 10).

Development of an Internationally Agreed Minimal Dataset for Juvenile Dermatomyositis (JDM) for Clinical and Research Use.  McCann LJ, Wedderburn LR, Pilkington C, Huber AM, Ravelli A, Kirkham J, Williamson P, Beresford MW. Arthritis Rheumatol. 2015; 67 (suppl 10)

Enteric Flora in Newly Diagnosed Spondyloarthritis: A Collaborative Study.  Stoll ML, Weiss PF, Weiss JE, Nigrovic PA, Punaro MG, Spencer CH, Schikler KN, Morrow CD, Lefkowitz EJ. Arthritis Rheumatol. 2015; 67 (suppl 10).

Gene Expression Profiles from Disease Discordant Twins Suggest Shared Antiviral Pathways and Viral Exposures among Multiple Systemic Autoimmune Diseases. Gan L, O’Hanlon TP, Lai Z, Fannin R, Weller ML, Rider LG, et al. (2015)  PLoS ONE 10(11): e0142486. doi:10.1371/journal. pone.0142486

Gender Differences in Pediatric Localized Scleroderma: Clinical and Patient-Reported Outcomes.  Ardalan K, Hershey N, Yabes J, Wu E, Li SC, Fuhlbrigge RC, Rabinovich CE, Torok KS. Arthritis Rheumatol. 2015; 67 (suppl 10).

Improvement in Mentoring Associated with Implementation of an Inter-Institutional Mentoring Program within Pediatric Rheumatology. Moorthy LN, Muscal E, Riebschleger M, Klein-Gitelman MS, Nigrovic LE, Rouster-Stevens KA, Ferguson PJ, Eberhard BA, Brunner HI, Prahalad S, Schneider R, Nigrovic PA. Arthritis Rheumatol. 2015; 67 (suppl 10).

Inflammatory Bowel Disease in Children with Systemic Juvenile Idiopathic Arthritis. Fox E, Hsu J, Chalom E, Sertial S, Park K, Simard JF, Quartier P, Terreri MT, Baszis K, Borocco C, Prahalad S, Reinhardt A, Schonenberg D, Mellins ED, Zisman D.  Arthritis Rheumatol. 2015; 67 (suppl 10).

Initial Results of a Pilot Juvenile Localized Scleroderma (jLS) Comparative Effectiveness Study. Li SC, Torok KS, Hong SD, Ferguson PJ, Rabinovich CE, Becker ML, Dedeoglu F, Ibarra MF, Fuhlbrigge RC, Stewart KG, Punaro MG, Mason T II, Pope E, Laxer R, Higgins GC, Feldman B. Arthritis Rheumatol. 2015; 67 (suppl 10).

Inter-Provider Reliability in Scoring the Physician Global Assessment of Disease Activity Among Patients with Juvenile Idiopathic Arthritis Patients Who Met the ACR Provisional Criteria for Clinical Inactive Disease.  Taylor J, Giannini EH, Lovell D, Morgan DeWitt EM. Arthritis Rheumatol. 2015; 67 (suppl 10).

Pediatric Rheumatologists’ Perceptions of Career Satisfaction, Confidence in Fulfilling Their Roles, and Burn-out.  Moorthy LN, Schneider R, Riebschleger M, Muscal E, Klein-Gitelman MS, Eberhard BA, Ferguson PJ, Rouster-Stevens KA, Brunner HI, Prahalad S, Nigrovic PA. Arthritis Rheumatol. 2015; 67 (suppl 10).

Physicians’ Perspectives on the Diagnosis and Treatment of Chronic Nonbacterial Osteomyelitis.  Zhao Y, Dedeoglu F, Ferguson PJ, Lapidus S, Laxer R, Li SC. Arthritis Rheumatol. 2015; 67 (suppl 10).

Racial Comparisons of Children with Idiopathic Uveitis: Results from the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry.  Angeles-Han ST, Travers C, Lo MS, Rabinovich CE, Prahalad S. Arthritis Rheumatol.2015; 67 (suppl 10).

Relationship of Race, Ethnicity, and Outcomes in Pediatric Localized Scleroderma: Possible Differences in Disease Activity.  Ardalan K, Hershey N, Yabes J, Torok KS.  Arthritis Rheumatol. 2015; 67 (suppl 10).

Results from the Childhood Arthritis and Rheumatology Research Alliance Systemic JIA Consensus Treatment Plans Pilot Study.  Kimura Y, Beukelman T, Morgan-DeWitt E, Mieszkalski KL, Graham TB, Ibarra MF, Ilowite N, Klein-Gitelman MS, Onel K, Prahalad S, Punaro MG, Ringold S, Toib D, Van Mater H, Weiss PF, Schanberg L.  Arthritis Rheumatol. 2015; 67 (suppl 10).

Treatment and Outcomes in Pediatric SLE Patients in South Africa.  Lewandowski L, Scott C, Schanberg L, Thielman N.  Arthritis Rheumatol. 2015; 67 (suppl 10).

Views and Prescribing Habits of Pneumocystis Prophylaxis in the Pediatric Rheumatology Community.  Basiaga M, Ogdie-Beatty A. Arthritis Rheumatol. 2015; 67 (suppl 10).