Phone: (414) 918-9822    Email: [email protected]

Registry Update April 14, 2017

CARRA Registry Stats
Enrollment: 2,926
8 sites have enrolled 1-5 patients
29 sites have enrolled 6-49 patients
20 sites have enrolled 50 or more patients

Top Enrolling Registry Sites:
PI Sarah Ringold/SC Luke Reichley, Seattle Children’s Hospital: 300
PI Christi Inman/SC Suzy Jones, University of Utah Hospitals: 256
PI Jennifer Weiss/SC Mary Ellen Riordan, Hackensack UMC: 186

STOP-JIA Stats:
Enrollment: 177
5 sites have enrolled 1 patient
17 sites have enrolled 2-4 patients
14 sites have enrolled 5 or more patients

Top Enrolling STOP-JIA Sites:
PI Sarah Ringold/SC Luke Reichley, Seattle Children’s Hospital: 15
PI Shoghik Akoghlanian/SC Joanne Drew, Nationwide Children’s Hospital: 15
PI Jennifer Weiss/SC Mary Ellen Riordan, Hackensack UMC: 14

FROST Stats:
Enrollment: 6
4 sites have enrolled 1 patient
1 site has enrolled 2 or more patients

FROST Sites:
PI Pamela Weiss/SC Jenna Tress, Children’s Hospital of Philadelphia: 3
PI Emily von Scheven/SC Bhupinder Badwal, University of California at San Francisco Medical Center: 1
PI Marilynn Punaro/SC Heather Benham, University of Texas Southwestern Medical Center Dallas: 1
PI Shoghik Akoghlanian/SC Joanne Drew, Nationwide Children’s Hospital: 1