Research & Registry

Registry Informatics Associate


Not Currently Accepting Applications

CARRA will fund this position for up to two years. Applicants must be Board Eligible or Board Certified in Pediatric Rheumatology in North America as of this date, or entering their 2nd or 3rd year of Pediatric Rheumatology fellowship in a Board-accredited fellowship program in North America as of this date. Eligible applicants must be CARRA members. Junior faculty and early investigators, and graduating fellows with secured faculty positions are encouraged to apply.


The overarching goal of the Registry Informatics Associate position is planning and implementation of both short- and long-term strategies that will streamline and reduce the burden of registry data entry and collection while maintaining all of the regulatory requirements necessary for post-marketing surveillance and other phases of FDA-regulated clinical trials. This position will foster the professional development and leadership of Clinical Informatics investigators within CARRA and the CARRA Registry while advancing real world, registry informatics projects that will benefit CARRA Registry objectives and operations. 

CARRA recognizes that the sustainability and longevity of the CARRA Registry is dependent upon improving the efficiency of and streamlining the workflow for registry data collection. We are looking to expand the scope of currently utilized electronic health record (EHR)-based technologies to support this goal. Competitive applications will address one of the following:

  1. To build local expertise utilizing Epic Systems Corporation (“Epic”) native tools, such as questionnaires, flowsheets, data elements, homunculus documentation, and/or reporting functionality to systemically capture Registry data.
  2. To develop non-Epic EHR vendor (ie: Cerner, Allscripts) approaches to systemically capture, utilize, and report upon Registry data.
  3. To leverage informatics to integrate Consensus Treatment Plans and other Clinical Decision Support tools within the EHR.
  4. To integrate Registry patient-reported outcome (PRO) data at point-of-care to inform clinical care and decision making.

In addition, opportunities for attending relevant professional development opportunities, including formal training and associated limited meeting and travel costs, may be made available on an individualized basis.


The Registry Informatics Associate will: 

  • Plan and design a major and minor project, in collaboration with CARRA mentors in clinical informatics and registry research, and present the plans and results of their project to the Registry leadership.
  • Be mentored by the CARRA Director of Research Informatics (Marc Natter) and CARRA Registry PI (Laura Schanberg), as well as by the CARRA Registry Scientific Director (Tim Beukelman) and former Registry Informatics Associates.
  • Work directly within various CARRA Registry teams to gain a detailed understanding of Registry informatics operations, overall registry operations, and project-specific requirements and operations.
  • Actively participate in bimonthly Registry Operations team calls (2nd Monday of each month at 11:00 am ET), Registry Associate conference calls (twice per month), and occasional colloquia or program workshops.
  • Attend the CARRA Annual Meeting and annual Operations Team Retreat, as well as any additional meetings regarding the CARRA Registry.
  • Be responsible for preparing manuscripts, abstracts, and delivering presentations in support of the CARRA Registry as directed by the Registry team and based on the associates own interests.
  • Be required to acknowledge their Associate position in any publications that result from work related to the registry done during their tenure.

Those who wish to apply for this position must submit an online application by March 01, 2021.  

As part of the online application, you will be required to submit the following: 

  1. NIH Biosketch (5 pages maximum)
  2. Proposed plan (2 pages maximum): Briefly describe your interest and qualifications for the Informatics Associate role, as well as any EHR-based projects that you believe you would be interested in pursuing to improve the efficiency of and streamlining the workflow for registry data collection. The plan should leverage CARRA Registry resources and should ultimately be scalable across a significant number of CARRA Registry sites. You are encouraged to contact the Registry Associate applications committee by emailing [email protected] to address any questions you may have in preparing your plan. Please provide a brief project timeline describing anticipated progress during the 2-year position period. Please include a description of your qualifications for developing and implementing the plan and any anticipated resource needs.
  3. Institutional Letter of Support: Letter signed by division chief or chair stating that they will guarantee the needed protected effort (25% for Instructor/Faculty, or 50% for fellows) for these activities.
  4. Letter of Recommendation: Signed letter of recommendation in support of your candidacy for the position, from a CARRA member other than the division chief or chair supporting this application.
  5. References: Provide the names and contact information for two references to call. At least one reference must be a CARRA member outside their institution who has worked with the candidate on CARRA activities.

CARRA reserves the right to offer fewer or no positions based on its review of applications received. Successful applicants are expected to commit to a two-year long position; however, the second year is not guaranteed and will be renewable based upon the demonstrated merit of the applicant’s efforts during the first year. The position may be terminated for poor performance that is deemed non-remediable by CARRA.

**Please note that the CARRA Informatics Associate is separate from the CARRA Registry Associate and has a different focus. Individuals who have been awarded a CARRA Registry Associate role for 2021 are not eligible for this opportunity.


Applicants must be currently Board Eligible or Board Certified in Pediatric Rheumatology in North America with an academic rank no greater than Associate Professor or equivalent at their institution, or entering their 2nd or 3rd year of Pediatric Rheumatology fellowship in a Board-accredited fellowship program in North America. Eligible applicants must be CARRA members.


Applicants must commit to the following minimum effort during the course of the position.

  1. Instructor/Faculty: 25% full-time effort. Institutional certification of protected time is required.
  2. Fellows: 50% effort. Your effort, research informatics training, and proposed project must be approved by your Scholarship Oversight Committee prior to beginning the position.
  3. Attendance at periodic CARRA meetings, conferences with mentors, and in didactic activities (seminars and classes). Travel expenses will be covered or substantially offset by funding provided by the Informatics Associate position.


  1. Instructor/Faculty: 25% salary (salary cap of $200,000), including fringe. Up to 8% indirect costs is allowed on salary support. Discretionary support may additionally be provided to cover tuition for relevant classes and seminars pending pre-approval by CARRA.
  2. Fellows: No salary support. Support will be provided for certain project-related expenses and tuition for relevant classes and seminars, including those mandatory to the role, up to $12,500 per year.
  3. Travel and lodging expenses for pre-approved meetings and conferences relevant to the role will be covered or offset to the extent not covered by other available funding sources.


Following CARRA review of the full applications, qualified applicants will be invited for interviews. Notification of applicants and official announcement of awardees is anticipated in early April 2021.

ADDITIONAL INFORMATION. For any questions or additional information, please contact [email protected].