The competitive LOI and NIH Biosketch submission and application deadline has passed.
Term: July 1, 2019 - June 30, 2020, renewable for a second 12-month term
CARRA is pleased to announce we are accepting applications for the next Registry Informatics Internship cycle. For this cycle, we are focusing the work of the internship on a CARRA initiative to facilitate and/or enhance registry data collection using technology, particularly EHR and other point-of-care systems.
The overarching goal of this new CARRA initiative is the planning and implementation of both short- and long-term strategies to streamline and reduce the burden of registry data entry and collection while maintaining all regulatory requirements necessary for post-marketing surveillance and other phases of FDA-regulated clinical trials.
CARRA will fund one internship position for up to two years. The internship start date is July 1, 2019. Applicants must be Board Eligible or Board Certified in Pediatric Rheumatology in North America as of this date. Eligible applicants must be CARRA members. Junior faculty and early investigators are encouraged to apply.
The goal of the Registry Informatics Internship is to develop informatics leadership for CARRA through professional development of Clinical Informatics investigators. This includes advancing real world, registry informatics projects that will benefit CARRA Registry objectives and operations.
CARRA recognizes that the sustainability and longevity of the CARRA Registry is dependent upon improving the efficiency of and streamlining the workflow for registry data collection. Leveraging current and future innovations – particularly via EHR-based technologies – is likely to be critical to achieving these goals. Current opportunities exist for the introduction of new, standardized approaches for data collection via the EHR (e.g. advancements in form-based EHR data entry) as well as new mechanisms for data extraction and linkage (e.g. via EHR export, patient-based sharing of medical records, integration with claims data, etc).
Therefore, for this Registry Informatics Internship cycle, we encourage applications from eligible individuals with relevant experience who wish to become leaders and implementers for these informatics efforts. Successful applicants will propose a project of interest to the Registry leadership team; however, the final project will be finalized in collaboration with internship mentors and CARRA Registry operational teams. Examples include projects that develop EHR ‘Smart Forms’, efforts that incorporate patient-reported outcomes (PROs) standards for formats and transfer using electronic PROs, standards and approaches to link data from EHR, registry, and other data sources, etc. This opportunity may be of particular interest to individuals with expertise as EHR ‘Physician Builders’ and ‘Report Builders’, data privacy and information security interests such as eConsent, and mobile app-based approaches to data collection. In addition, opportunities for relevant professional development opportunities, including formal training and associated limited meeting and travel costs, may be made available on an individualized basis.
The Registry Informatics Intern, during the course of the internship, will:
Applicants must submit a competitive letter of intent (LOI) and NIH biosketch. (The submission deadline has passed.)
The LOI is limited to two pages and should state the applicant’s interest and desired areas of project focus, any existing or planned experience and/or expertise, current professional status (trainee vs attending physician, early investigator, etc.), how this internship fits into future career plans, and how the expected benefit from the internship.
As part of the online application, invited applicants will be required to submit the following: (The application deadline has passed.)
An invitation by CARRA to submit a full application does not constitute an endorsement for the CARRA Registry Informatics Internship. CARRA reserves the right to offer no internships based on its review of applications received. Successful applicants are expected to commit to a two-year long internship; however, the second year is not guaranteed and will be renewable based upon the demonstrated quality of the applicant’s efforts during the first year. The internship may be terminated for poor performance deemed non-remediable by CARRA Registry Leadership.
Please note that the CARRA Informatics Internship is separate from the CARRA Registry Internship and has a different focus. Individuals who have been awarded a CARRA Registry Internship to start in 2019 are not eligible to apply for this opportunity.
Applicants must be current CARRA members who are Board Eligible or Board Certified in Pediatric Rheumatology in North America. Eligible applicants must be faculty with an academic rank no greater than Associate Professor or equivalent at their institution. Graduating fellows with secured faculty positions are also eligible to apply.
Applicants must commit to the following minimum effort during the course of the internship
Following CARRA RROC review of the full applications, qualified applicants will be invited for interviews. Notification of applicants and official announcement of awardees is anticipated in early June 2019.
For any questions or additional information, please contact [email protected].
The fellowship will be customized to the research needs of the applicant, but broadly will involve a 2 year commitment (evaluated/renewable after 1 year) involving a combination of some didactic coursework and an independent, mentored project that will represent the majority of the effort during the period.
What are the specific goals of the internship?
The specific goals of the internship are to provide the individual receiving the internship with the opportunity to become, in the future, an independently funded researcher in clinical or bioinformatics that would contribute to the pediatric rheumatology community. During the internship, a project of value to CARRA and the CARRA Registry would be another goal.
Will there be a mentorship component?
Mentorship will depend upon whether the applicant is a fellow or junior faculty. At least 2 mentors will be identified and this will occur at regular, fairly frequent intervals depending upon the role of the mentor.
What will the coursework consist of?
The coursework will consist of a base of broad informatics knowledge involving understanding the basics of both clinical informatics, including population-based medicine and chronic-diseases based research, and introductory topics in genomics/proteomics/array techniques as well. More detailed studies will be tailored to the research interests and project of the intern and involve targeted coursework, either remote or local, to provide additional necessary knowledge.
What addition experience or training will the internship offer?
The fellowship training and project will be customized to the research needs of the applicant, but broadly will involve a 2 year commitment (evaluated/renewable after 1 year) involving a combination of some didactic coursework and an independent, mentored project that will represent the majority of the effort during the period. In addition, the project chosen will need to be of recognized value to CARRA and the CARRA Registry.
Is previous CARRA Registry Database or genomics/proteomics are pre-requisite?
The applicant is not expected to have such knowledge previously, but a demonstrated ability in quantitative analysis or related areas will make the applicant more competitive for the position. If a genomics/proteomics or other non-clinical informatics area is chosen, the project must be related to existing or readily obtainable adjunctive biospecimens and/or datasets relevant to CARRA and the CARRA Registry, and the research itself must be feasible within the confines of the internship budget or via outside, guaranteed funding.
How does this internship differ from the Registry Internship?
The Registry internship focuses on providing dedicated effort for researchers interested in contributing to the development of new capabilities and analyses of the CARRA Registry and to foster the involvement of new investigators in the Registry itself. It is not intended to further the training of applicants in informatics per se in pediatric rheumatology and does not include a component of formal training or mentorship in informatics, and is also not specifically intended to establish a cadre of informatics-focused independent researchers in pediatric rheumatology.