2017
Articles
- Chang, J.C., et al. High Health Care Utilization Preceding Diagnosis of Systemic Lupus Erythematosus in Youth. Arthritis Care Res (Hoboken), 2017; Dec 1. doi: 10.1002/acr.23485. [Epub ahead of print]
- Orandi, A., et al. Assessment, classification and treatment of calcinosis as a complication of juvenile dermatomyositis: a survey of pediatric rheumatologists by the childhood arthritis and rheumatology research alliance (CARRA). Pediatric Rheumatology, 2017; 15:71
- Beukelman, T., et al. The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months. Pediatric Rheumatology Online Journal, 2017; Apr 17; 15:30
- Zhao, Y., et al. Physicians’ Perspectives on the Diagnosis and Treatment of Chronic Nonbacterial Osteomyelitis. International Journal of Rheumatology, 2017; 2017:7694942
- Kimura, Y., et al. Pilot study comparing the Childhood Arthritis & Rheumatology Research Alliance (CARRA) systemic Juvenile Idiopathic Arthritis Consensus Treatment Plans. Pediatric Rheumatology Online Journal, 2017; 15(1):23
- Boneparth, A., et al. Clinical characteristics of children with membranous lupus nephritis: the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry. Lupus, 2017; 26(3):299-306
- Kim, S., et al. Childhood Arthritis and Rheumatology Research Alliance consensus clinical treatment plans for juvenile dermatomyositis with skin predominant disease. Pediatric Rheumatology Online Journal, 2017; 15(1):1
- Zhao, Y., et al. Consensus Treatment Plans for Chronic Nonbacterial Osteomyelitis Refractory to Nonsteroidal Anti-Inflammatory Drugs and/or Active Spinal Lesions. Arthritis Care and Research (Hoboken), 2017; doi:10.1002/acr.23462. [Epub ahead of print.]
- Spencer, C., et al. Biologic therapies for refractory juvenile dermatomyositis: five years of experience of the Childhood Arthritis and Rheumatology Research Alliance in North America. Pediatric Rheumatology Online, 2017; Jun 13; 15(1):30
- Westwell-Roper, C., et al. Clinical practice variation and need for pediatric-specific treatment guidelines among rheumatologists caring for children with ANCA-associated vasculitis: an international clinicial survey. Pediatr Rheumatol Online J, 2017; Aug 7;15(1):61. doi: 10.1186/s12969-017-0191-z
- AIE'ed, A., et al. Challenges of Diagnosing Cognitive Dysfunction with Neuropsychiatric Systemic Lupus Erythematosus in Childhood. Arthritis Care Res (Hoboken), 2017; Oct;69(10):1449-1459. doi: 10.1002/acr.23163. Epub 2017 Aug 29
- Manthiram, K., et al. Physicians' perspectives on the diagnosis and management of periodic fever, aphthous stomatitis, pharyngitis, and cervical adenitis (PFAPA) syndrome. Rheumatology International, 2017; 37(6):883-889
- Huber, A., et al. Childhood Arthritis and Rheumatology Research Alliance Consensus Clinical Treatment Plans for Juvenile Dermatomyositis with Persistant Skin Rash. Journal of Rheumatology, 2017; 44(1):110-116
- Minoia, F., et al. Development and Initial Validation of the Macrophage Activation Syndrome/Primary Hemophagocytic Lymphohistiocytosis Score, a Diagnostic Tool that Differentiates Primary Hemphagocytic Lymphohistiocytosis from Macrophage Activation Syndrome. Journal of Pediatrics, 2017; 189:72-78.e3
- Zisman, D., et al. The Juvenile Psoriatic Arthritis Cohort in the CARRA Registry: Clinical Characteristics, Classification, and Outcomes. Journal of Rheumatology, 2017; 44(3):342-351
- Phillippi, K., et al. Race, Income, and Disease Outcomes in Juvenile Dermatomyositis. Journal of Pediatrics, 2017; 184:38-44.e1
- Yen, E.Y., et al. 46-Year Trends in Systemic Lupus Erythematosus Mortality in the United States, 1968 to 2013: A Nationwide Population-Based Study. Ann Intern Med, 2017; Dec 5;167(11):777-785. doi: 10.7326/M17-0102. Epub 2017 Oct 31.
- Boneparth, A., et al. Approach to Membranous Lupus Nephritis: A Survey of Pediatric Nephrologists and Pediatric Rheumatologists. The Journal of Rheumatology, 2017; 44(11):1619-1623
- Manthiram, K., et al. Unraveling the pathogenesis of periodic fever, aphthous stomatitis, pharyngitis, and cervical adenitis through genetic, immunologic, and microbiologic discoveries: an update. Curr Opin Rheumatol, 2017; Sep;29(5):493-499. doi: 10.1097/BOR.0000000000000418
- Horton, D., et al. Attitudes and Approaches for Withdrawing Drugs for Children with Clinically Inactive Nonsystematic JIA: A Survey of the Childhood Arthritis and Rheumatology Research Alliance. Journal of Rheumatology, 2017; 44(3):352-360
Abstracts
- Wahezi, D., et al. Assessment of Endothelial Dysfunction and Atherogenic Risk Factors in Children with Juvenile Dermatomyositis. 2017 Pediatric Rheumatology Symposium. May 2017.
- Buckley, L., et al. Improving Outcomes Using a Treat to Target Approach and Clinical Decision Support in Polyarticular Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Stoll, M., et al. Akkermansia Muciniphila May Be Permissive to Arthritis in the K/BxN Mouse Model of Arthritis. 2017 Pediatric Rheumatology Symposium. May 2017.
- Arkin, L., et al. Practice-Based Differences Between Pediatric Rheumatologists and Dermatologists Caring for Children with Discoid Lupus. 2017 ACR/ARHP Annual Meeting. 2017 ACR/ARHP Annual Meeting. November 2017.
- Maksymowych, M., et al. Validation of Online Calibration Modules for the Spondyloarthritis Research Consortium of Canada MRI Scores Based on Real-Time Experiential Learning. 2017 ACR/ARHP Annual Meeting. November 2017.
- Stinson, J., et al. An Internet-based Self-management Program for Adolescents with Juvenile Idiopathic Arthritis – A Randomized Controlled Trial. 2017 ACR/ARHP Annual Meeting. November 2017.
- Hoyt, K., et al. The Lymphocyte Repertoire in Juvenile Dermatomyositis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Stinson, J., et al. A Randomized Controlled Trial (RCT) of an Internet-Based Self-Management Program for Adolescents with Juvenile Idiopathic Arthritis (JIA). 2017 ACR/ARHP Annual Meeting. November 2017.
- Wright, J., et al. Knowledge Translation in Juvenile Idiopathic Arthritis in Canada: A Focus on Parents of Children with JIA. 2017 ACR/ARHP Annual Meeting. November 2017.
- O'Neil, K., et al. Effects of Puberty on Systemic Lupus Erythematosus: Results of a multi-center prospective longitudinal observational study in children entering puberty with SLE. 2017 ACR/ARHP Annual Meeting. November 2017.
- Cooper, J., et al. Corticosteroid Regimen Use in the Pilot Study of Consensus Treatment Plans for Induction Therapy in Childhood Proliferative Lupus Nephritis. 2017 Pediatric Rheumatology Symposium. May 2017.
- Stinson, J., et al. Feasibility Testing of An Internet-Based Psycho-Educational Game for Children with Juvenile Idiopathic Arthritis and Their Parents. 2017 ACR/ARHP Annual Meeting. November 2017.
- Grevich, S., et al. Gastrointestinal Microbiota in New-Onset Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Ombrello, M., et al. Examination of Reported Risk Loci from Candidate Gene Studies of Systemic Juvenile Idiopathic Arthritis Identifies Link between IL1RN Variation and both Disease Susceptibility and Response to Interleukin-1 Directed Therapy. 2017 Pediatric Rheumatology Symposium. May 2017.
- Ringold, S., et al. Baseline characteristics of the first 123 patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA comparative effectiveness study. 2017 ACR/ARHP Annual Meeting. November 2017.
- Knight, A., et al. Underutilization of Social Workers for Mental Health Care of Adolescents in Pediatric Rheumatology - A Mixed Methods Study. 2017 Pediatric Rheumatology Symposium. May 2017.
- Amarilyo, G., et al. Preliminary Consensus Treatment Plans for Periodic Fever, Aphthous Stomatitis, Pharyngitis and Adenitis: The Foundation for Capturing Treatment Responses in PFAPA from the CARRA PFAPA Sub-committee. 2017 Pediatric Rheumatology Symposium. May 2017.
- Morishita, K., et al. Renal Disease Course in Pediatric Anti-Neutrophil Cytoplasmic Antibody Associated Vasculitis in the First 12 Months - a Pediatric Vascilitis Initiative (PedVas) Study. 2017 ACR/ARHP Annual Meeting. November 2017.
- Knight, A., et al. Underutilization of Social Workers for Mental Health Care of Adolescents in Pediatric Rheumatology: A Mixed Methods Study. 2017 Pediatric Rheumatology Symposium. November 2017.
- Ringold, S., et al. Methotrexate use and route of administration in JIA: Results from the Childhood Arthritis & Rheumatology Research Alliance Registry. 2017 ACR/ARHP Annual Meeting. November 2017.
- Henderson, L., et al. 3-D Explant Method Facilitates the Study of Lymphocytes in Synovium and Reveals a Population of Resident Memory-Like T Cells in Rheumatoid Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Chang, M., et al. Murine Model of Arthritis Flare Identifies CD8+ Tissue Resident Memory T Cells in Recurrent Synovitis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Taxter, A., et al. Integration of Electronically Captured Patient-Reported Outcomes in a Pediatric Rheumatology Clinic Visit. 2017 ACR/ARHP Annual Meeting. November 2017.
- Hershin-Bekenstein, M., et al. Peri-pubertal Onset of Systemic Lupus Erythematosus is Associated with Shorter than Expected Adult Height. 2017 ACR/ARHP Annual Meeting. November 2017.
- Consolaro, A., et al. Development of New Juvenile Arthritis Disease Activity Score Cut-Offs for Oligoarthritis and RF-Negative Polyarthritis from a Large Multinational Cohort of Children with Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Shenoi, S., et al. The Disease Burden of Systemic Juvenile Idiopathic Arthritis for Patients and Caregivers: An International Health Related Quality of Life Survey and Retrospective Chart Review. 2017 ACR/ARHP Annual Meeting. November 2017.
- Heshin-Bekenstein M., et al. Childhood-Onset Predicts Increased Steroid-Related Damage Among Adults with Systemic Lupus Erythematosus. 2017 ACR/ARHP Annual Meeting. November 2017.
- Ringold, S., et al. The Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA Study: Interim Report of Baseline Patient Characteristics and Treatment Choices. 2017 ACR/ARHP Annual Meeting. November 2017.
- Ringold, S., et al. Patterns of Medication Use in Non-Systemic Polyarthritis: Data from the Childhood Arthritis and Rheumatology Research Alliance Patient Registry. 2017 ACR/ARHP Annual Meeting. November 2017.
- Mannion, M., et al. Biologic Switching Among JIA Patients: A Cohort Study in the Childhood Arthritis and Rheumatology Research Alliance Registry. 2017 ACR/ARHP Annual Meeting. November 2017.
- Janow, G., et. al. Cluster Analysis of Autoantibodies and Their Relationship with Demographic and Clinical Features in Pediatric Systemic Lupus Erythematosus in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry. 2017 ACR/ARHP Annual Meeting. November 2017.
- Levescot, A., et al. Autoimmune Arthritis in IL-1 Receptor Antagonist-Deficient Mice Is Associated with a Pathogenic Conversion of Foxp3+ Regulatory T Cells into Th17 Cells. 2017 ACR/ARHP Annual Meeting. November 2017.
- Rezaei E., et al. Biologically-Based Approach for Classifying Chronic Childhood Arthritis. 2017 ACR/ARHP Annual Meeting. 2017 ACR/ARHP Annual Meeting. November 2017.
- Stoll, M., et al. Children with Treatment-Naive Enthesitis-Related Arthritis Have Decreased Fecal Abundance of Faecalibacterium Prausnitzii A2-165 and Bacteroides Fragilis: A Multi-Center Collaborative Study. 2017 ACR/ARHP Annual Meeting. November 2017.
- Ardoin, S., et al. Deficiency of Complement C4A or Low Copy Number of Total C4 Genes, HLA-DRB1*15 and HLA-DRB1*03 Are Strong Genetic Risk Factors for Pediatric SLE of European Descent. 2017 ACR/ARHP Annual Meeting. 2017 ACR/ARHP Annual Meeting. November 2017.
- Li, S., et al. Defining Active Features of Juvenile Localized Scleroderma. 2017 ACR/ARHP Annual Meeting. 2017 ACR/ARHP Annual Meeting. November 2017.
- Li, S., et al. Extracutaneous Involvement is Commone in Juvenile Localized Scleroderma and Associated with a Higher Level of Perceived Disease Impact. 2017 ACR/ARHP Annual Meeting. November 2017.
- Chhabra, A., et al. Effectiveness of Common Treatment Strategies for Juvenile Arthritis in Usual Practice: Results from the Research in Arthritis in Canadian Children Emphasizing Outcomes Cohort. 2017 ACR/ARHP Annual Meeting. November 2017.
- Mallalieu, N., et al. Evaluation of a Dosing Regimen for Tocilizumab in Patients Younger Than Two Years of Age with Systemic Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Westra, H-J., et al. Fine-Mapping Identifies Causal Variants for RA and T1D in DNASE1L3, Sirpg, MEG3, TNFAIP3 and CD28/CTLA4 Loc. 2017 ACR/ARHP Annual Meeting. November 2017.
- Horton, D., et al. How Young People with Juvenile Idiopathic Arthritis and Their Caregivers Weigh the Risks of the Disease and its Treatment: A Mixed-Methods Study. 2017 ACR/ARHP Annual Meeting. November 2017.
- Guzman, J., et al. Individualized Prediction of Early Remission on Medication in Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Rose-Davis, B., et al. Knowledge Translation in Juvenile Idiopathic Arthritis Research in Canada: A Focus on Pediatric Rheumatologists and Allied Health Professionals. 2017 ACR/ARHP Annual Meeting. November 2017.
- Grieshaber Bouyer, R., et al. Multiplexed Characterization of Circulating and Joint-Derived Human Neutrophils in Inflammatory Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Grevich, S., et al. Oral Microbial Profile in Juvenile Idiopathic Arthritis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Amarilyo, G., et al. Preliminary Consensus Treatment Plans for Periodic Fever, Aphthous Stomatitis, Pharyngitis and Adenitis: The Foundation for Capturing Treatment Responses in PFAPA from the CARRA PFAPA Subcommittee. 2017 ACR/ARHP Annual Meeting. November 2017.
- Deakin, C., et al. The Interaction between Genetic Risk Factors and Age of Disease Onset in Juvenile Dermatomyositis. 2017 ACR/ARHP Annual Meeting. November 2017.
- Horton, D., et al. Factors Related to Sustained Discontinuation of Medications for Well-Controlled JIA in the Childhood Arthritis & Rheumatology Research Alliance Registry. 2017 ACR/ARHP Annual Meeting. November 2017.
- Lovell, D., et al. Validation of Biomarkers to Predict Flare in Polyarticular JIA upon Stopping Anti-TNF Therapy. 2017 ACR/ARHP Annual Meeting. November 2017.
- Jonsson, A., et al. δ1, Vδ2, and Other γδT Cells in Blood and Synovium of Rheumatoid Arthritis and Other Autoimmune Arthritides. 2017 ACR/ARHP Annual Meeting. November 2017.
- Orandi, A., et al. Clinical Features and Frequency of Biologic use in Patients with Juvenile Dermatomyositis-associated Calcinosis. 2017 Pediatric Rheumatology Symposium. May 2017.
- Horton, D., et al. How Young People with Juvenile Idiopathic Arthritis and Their Caregivers Weigh the Risks of the Disease and its Treatment: A Mixed--Methods Study . 2017 Pediatric Rheumatology Symposium. May 2017.
- Kim, H., et al. Novel Serum Broad-Based Proteomic Discovery Analysis Identifies Proteins and Pathways Dysregulated in Juvenile Dermatomyositis (JDM) Myositis Autoantibody Groups. 2017 Pediatric Rheumatology Symposium. May 2017.
- Ringold, S., et al. Baseline characteristics of the first 123 patients enrolled in the Childhood Arthritis & Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA Comparative Effectiveness Study. 2017 Pediatric Rheumatology Symposium. May 2017.
- Henderson, L., et al. The Lymphocyte Repertoire in Juvenile Dermatomyositis. 2017 Pediatric Rheumatology Symposium. 2017 Pediatric Rheumatology Symposium. May 2017.
- Woolnough, L., et al. Novel Approach to Quantifying Joint Pathology Via Musculoskeletal Ultrasound in Newly Diagnosed Juvenile Idiopathic Arthritis. 2017 Pediatric Rheumatology Symposium. May 2017.
Periodicals
