Research & Registry

Abstracts

  • Adverse Events in Juvenile Idiopathic Arthritis: Results From the Enhanced Drug Safety Surveillance (EDSS) Pilot Project. Sarah Ringold, Audrey F. Hendrickson, Carol A. Wallace and Rachel E. Sobel,Pediatrics, Seattle Children’s Hospital/Univ of Washington, Seattle, WA, Rheumatology, Seattle Children’s Research Institute, Seattle, WA, Pediatrics, Seattle Childrens Hospital, Seattle, WA, Epidemiology, Worldwide Safety Strategy, Pfizer, Inc., New York, NY. 2012
     
  • Ancestral Group Differences in Pediatric SLE Early Disease Severity: An Analysis of the Carranet Registry. Jennifer M.P. Woo, Alice DC Hoftman, Emily von Scheven, Deborah K. McCurdy, Ornella J. Rullo and CARRA Registry Investigators, Pediatric Rheumatology, Mattel Children’s Hospital, University of California, Los Angeles, Los Angeles, CA, Pediatric Rheumatology, University of California, San Francisco, San Francisco, CA, Pediatric Rheumatology, UCLA Division of Pediatric Rheumatology, Los Angeles, CA, Durham, NC. 2012
     
  • Choice of Systemic JIA Treatment Among Childhood Arthritis and Rheumatology Research Alliance (CARRA) Rheumatologists. Jennifer E. Weiss, Esi M. Morgan DeWitt, Timothy Beukelman, Laura E. Schanberg, Rayfel Schneider and Yukiko Kimura, Pediatric Rheumatology, Hackensack University Medical Center, Hackensack, NJ, Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, Pediatric Rheumatology, University of Alabama at Birmingham, Birmingham, AL, Pediatrics, Duke University Medical Center, Durham, NC, Pediatric Rheumatology Collaborative Study Group (PRCSG), Cincinnati, OH, Canada, Pediatric Rheumatology, Joseph M. Sanzari Children’s Hospital, Hackensack University Medical Center, Hackensack, NJ. 2012
     
  • Distribution of Vasculitides in Childhood Arthritis and Rheumatology Research Alliance-Affiliated Pediatric Rheumatology Centers in the United States. Melissa A. Lerman, Peter A. Merkel and for the CARRA Registry Investigators,Division of Rheumatology, Children’s Hospital of Philadelphia, Philadelphia, PA,University of Pennsylvania, Philadelphia, PA, Stanford, CA. 2012
     
  • Pediatric Rheumatology Practitioners Experience with Biologics in Juvenile Dermatomyositis: Survey Results. Anjali Patwardhan, Kelly A. Rouster-Stevens, Harry L. Gewanter, Grant D. Syverson, Renee F. Modica, Kara M. Schmidt and Charles H. Spencer, Pediatric Rheumatology, Nationwide Childrens Hospital, Columbus, OH, Pediatric Rheumatologist, Emory-Children’s Center, Atlanta, GA, Pediatric & Adolescent HP, Pediatric & Adolescent HP, Midlothian, VA, Pediatric Rheumatology, Medical College of Wisconsin, Wauwatosa, WI,Pediatric Rheumatology, University of Florida, Gainesville, FL, Pediatric Rheumatology, Univ of Louisville, Louisville, KY, Rheumatology, Nationwide Childrens Hospital, Columbus, OH. 2012
     
  • Potentially Fatal Pulmonary Complications in Systemic Juvenile Idiopathic Arthritis. Yukiko Kimura, Jennifer E. Weiss, Kathryn L. Haroldson, Tzielan C. Lee, Marilynn G. Punaro, Sheila K. Feitosa de Oliveira, C. Egla Rabinovich, Meredith P. Riebschleger, Jordi Anton, Peter R. Blier, Valeria Gerloni, Melissa M. Hazen, Elizabeth Kessler, Karen Onel, Murray H. Passo, Robert M. Rennebohm, Carol A. Wallace, Patricia Woo, Nico M. Wulffraat and CARRAnet Investigators, Pediatric Rheumatology, JM Sanzari Children’s Hospital, Hackensack University Medical Center, Hackensack, NJ,Pediatric Rheumatology, Joseph M Sanzari Children’s Hospital, Hackensack University Medical Center, Hackensack, NJ, Pediatric Rheumatology, Stanford University School of Medicine, Stanford, CA, Pediatric Rheumatology, Texas Scottish Rite Hospital, Dallas, TX,Pediatric Rheumatology, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil,Pediatric Rheumatology, Duke University Medical Center, Durham, NC, Pediatric Rheumatology & Health Services Research, University of Michigan, Ann Arbor, MI,Rheumatology, Hospital Sant Joan de Deu, Barcelona, Spain, Pediatrics, Baystate Children’s Hospital, Springfield, MA, Pediatric Rheumatology, Gaetano Pini Chair of Rheum, Milan, Italy, Division of Immunology, Boston Children’s Hospital, Boston, MA,Pediatric Rheumatology, Medical College of Wisconsin, Milwaukee, WI, Pediatric Rheumatology, University of Chicago Hospitals, Chicago, IL, Pediatrics, Medical University of South Carolina, Charleston, SC, Pediatric Rheumatology, Alberta Children’s Hospital, University of Calgary, Calgary, AB, Canada, Pediatrics, Seattle Childrens Hospital, Seattle, WA, Division of Infection and Immunity, University College London, London, United Kingdom, Pediatric Immunology, University Medical Center Utrecht, Utrecht, Netherlands, Durham. 2012
     
  • Provisions of Quality Driven Care in Childhood-Onset Systemic Lupus Erythematosus. Matthew C. Hollander, Jessica M. Sage, Alexandria J. Greenler, Tadej Avcin, Michael W. Beresford, Graciela Espada, Marisa S. Klein-Gitelman, Michael Henrickson, Tsz-Leung Lee, Joshua D. Pendl, Marilynn G. Punaro, Jennifer L. Huggins, Anne M. Stevens and Hermine Brunner, Division of Rheumatology, Seattle Children’s Hospital, Seattle, WA, Division of Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, International Investigator Consortium for MAS Diagnostic Criteria, Ljubljana, Slovenia, Paediatric Rheumatology, Alder Hey Children’s NHS Foundation Trust, Liverpool, United Kingdom, Rheumatology Section, Childrens Hosp Ricardo Gutierrez, Buenos Aires, Argentina, Division of Rheumatology, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, MLC , Division of Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, Paediatrics and Adolescent Med, Queen Mary Hospital, Hong Kong, Hong Kong, Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, Pediatric Rheumatology, Texas Scottish Rite Hospital, Dallas, TX, Pediatric Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, Pediatrics, University of Washington, Seattle, WA. 2012
     
  • The Current State of Mentoring Among Pediatric Rheumatology Fellows and Junior Faculty in the United States and Canada. Meredith P. Riebschleger, Eyal Muscal, Matthew M. Davis, Hermine Brunner, B. Anne Eberhard, C.J. Inman, Marisa S. Klein-Gitelman, Lakshmi N. Moorthy, Marc D. Natter, Sampath Prahalad, Rayfel Schneider and Peter A. Nigrovic, Pediatric Rheumatology & Health Services Research, University of Michigan, Ann Arbor, MI, TCH Pediatric Rheum Center, Baylor College of Medicine, Houston, TX, University of Michigan, Ann Arbor, MI, Pediatric Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, Cohen Children’s Hospital Medical Center, New Hyde Park, NY,Pediatric Administration, University of Utah, Salt Lake City, UT, Division of Rheumatology, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL,Pediatric Rheumatology, Robert Wood Johnson Medical School-Rutgers University, New Brunswick, NJ, Intelligent Health Labs, Children’s Hospital Boston, Boston, MA,Pediatrics, Emory Children’s Center, Atlanta, GA, Pediatric Rheumatology Collaborative Study Group (PRCSG), Cincinnati, OH, Canada, Division of Rheumatology, Immunology, and Allergy, Brigham and Women’s Hospital, Boston, MA. 2012
     
  • Diagnostic evaluation and medication usage in a cohort of subjects with juvenile dermatomyositis from the CARRAnet registry. Angela B Robinson, Mark F Hoeltzel , Ann M Reed , Adam Huber , Brian M Feldman , Juvenile Myositis CARRA Subgroup. 2012