The Impact of Psychiatric Diagnosis and Treatment on Medication Adherence in Youth with Systemic Lupus Erythematosus

Chang, Joyce C., Alaina M. Davis, Marisa S. Klein‐Gitelman, Zuleyha Cidav, David S. Mandell, and Andrea M. Knight. "Impact of psychiatric diagnosis and treatment on medication adherence in youth with systemic lupus erythematosus." Arthritis Care & Research 73, no. 1 (2021): 30-38.

Arthritis Care & Research
2021

Carra Program:
Intramural Grant Program

Disease Area:
Lupus and Related Conditions (SLE/RC)

Publication Type:
Manuscript

Serum proteome analysis of systemic JIA and related pulmonary alveolar proteinosis identifies distinct inflammatory programs

Chen, Guangbo, Gail H. Deutsch, Grant S. Schulert, Hong Zheng, SoRi Jang, Bruce Trapnell, Pui Y. Lee et al. "Identification of Distinct Inflammatory Programs and Biomarkers in Systemic Juvenile Idiopathic Arthritis and Related Lung Disease by Serum Proteome Analysis." Arthritis & Rheumatology 74, no. 7 (2022): 1271-1283.

Annals of the Rheumatic Diseases
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Engaging patients and parents to improve mental health intervention for youth with rheumatologic disease

Fawole OA, Reed MV, Harris JG, Hersh A, Rodriguez M, Onel K, Lawson E, Rubinstein T, Ardalan K, Morgan E, Paul A, Barlin J, Daly RP, Dave M, Malloy S, Hume S, Schrandt S, Marrow L, Chapson A, Napoli D, Napoli M, Moyer M, Delgaizo V, Danguecan A, von Scheven E, Knight A; CARRA Investigators. Engaging patients and parents to improve mental health intervention for youth with rheumatological disease. Pediatr Rheumatol Online J. 2021 Feb 23;19(1):19. doi: 10.1186/s12969-021-00503-7. PMID: 33622346; PMCID: PMC7901209.

Pediatric Rheumatology Online Journal
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans for Severe Pediatric ANCA-Associated Vasculitis

Kimberly A. Morishita,Linda Wagner-Weiner,Eric Y. Yen,Vidya Sivaraman,Karen E. James,Dana Gerstbacher,Ann M. Szymanski,Kathleen M. O'Neil,David A. Cabral,for the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Antineutrophil Cytoplasmic Antibody–Associated Vasculitis Workgroup. First published: 06 March 2021 https://doi.org/10.1002/acr.24590

Arthritis Care & Research
2021

Carra Program:
Consensus Treatment Plans (CTP)

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Extracutaneous Involvement Is Common and Associated with Prolonged Disease Activity and Worse Disease Impact in Juvenile Localized Scleroderma

Li SC, Higgins GC, Chen M, Torok KS, Rabinovich CE, Stewart K, Laxer RM, Pope E, Haines KA, Punaro M, O'Neil KM; Childhood Arthritis and Rheumatology Research Alliance Localized Scleroderma Clinical and Ultrasound Study group. Extracutaneous involvement is common and associated with prolonged disease activity and greater impact in juvenile localized scleroderma. Rheumatology (Oxford). 2021 Dec 1;60(12):5724-5733. doi: 10.1093/rheumatology/keab238. PMID: 33711155.

Journal of Rheumatology
2021

Carra Program:
Intramural Grant Program

Disease Area:
Scleroderma

Publication Type:
Manuscript

Randomized Clinical Trial of Fibromyalgia Integrative Training (FIT Teens) For Adolescents With Juvenile Fibromyalgia – FIT Teens Study Design And Protocol

Kashikar-Zuck S, Briggs MS, Bout-Tabaku S, Connelly M, Daffin M, Guite J, Ittenbach R, Logan DE, Lynch-Jordan AM, Myer GD, Ounpuu S, Peugh J, Schikler K, Sugimoto D, Stinson JN, Ting TV, Thomas S, Williams SE, Zempsky W; Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Workgroup Investigators. Randomized clinical trial of Fibromyalgia Integrative Training (FIT teens) for adolescents with juvenile fibromyalgia - Study design and protocol. Contemp Clin Trials. 2021 Apr;103:106321. doi: 10.1016/j.cct.2021.106321. Epub 2021 Feb 20. PMID: 33618033; PMCID: PMC8089039.

Contemporary Clinical Trials
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Access to Care and Diagnostic Delays in Juvenile Dermatomyositis: Results from the Childhood Arthritis & Rheumatology Research Alliance Legacy Registry

Neely J, Shalen J, Sturrock H, Kim S; Childhood Arthritis and Rheumatology Research Alliance Investigators. Access to Care and Diagnostic Delays in Juvenile Dermatomyositis: Results From the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry. ACR Open Rheumatol. 2021 May;3(5):349-354. doi: 10.1002/acr2.11246. Epub 2021 May 1. PMID: 33932146; PMCID: PMC8126761.

ACR Open Rheumatology
2021

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Dermatomyositis (JDM)

Publication Type:
Manuscript

The Start Time Optimization of Biologics in Polyarticular Juvenile Idiopathic Arthritis Study (STOP-JIA): A Comparative Effectiveness Study of Childhood Arthritis & Rheumatology Research Alliance Consensus Treatment Plans for Untreated Polyarticular JIA

Kimura, Y., Schanberg, L.E., Tomlinson, G.A., Riordan, M.E., Dennos, A.C., Del Gaizo, V., Murphy, K.L., Weiss, P.F., Natter, M.D., Feldman, B.M., Ringold, S. and (2021), Optimizing the Start Time of Biologics in Polyarticular Juvenile Idiopathic Arthritis: A Comparative Effectiveness Study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans. Arthritis Rheumatol, 73: 1898-1909. https://doi.org/10.1002/art.41888

Arthritis and Rheumatology
2021

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Effectiveness and Safety of High-Dose Biologics in Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry

Correll CK, Shrader P, Dennos A, Phillips T, Shiff NJ, Verstegen RHJ, Beukelman T; Childhood Arthritis and Rheumatology Research Alliance Registry Investigators. Effectiveness and Safety of High-Dose Biologics in Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance. Arthritis Care Res (Hoboken). 2022 Nov;74(11):1770-1779. doi: 10.1002/acr.24727. Epub 2022 Jul 31. PMID: 34121344.

Arthritis Care & Research
2021

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Inflammatory Bowel Disease in Children with Systemic Juvenile Idiopathic Arthritis

Maller J, Fox E, Park KT, Paul SS, Baszis K, Borocco C, Prahalad S, Quartier P, Reinhardt A, Schonenberg-Meinema D, Shipman-Duensing L, Terreri MT, Simard J, Lavi I, Chalom E, Hsu J, Zisman D, Mellins ED; CARRA Legacy Registry Investigators. Inflammatory Bowel Disease in Children With Systemic Juvenile Idiopathic Arthritis. J Rheumatol. 2021 Apr;48(4):567-574. doi: 10.3899/jrheum.200230. Epub 2020 Jun 15. PMID: 32541073; PMCID: PMC7736056.

Journal of Rheumatology
2021

Carra Program:
Registry and Biorepository

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Telemedicine Use by Pediatric Rheumatologists during the COVID-19 Pandemic

Pooni R, Ronis T, Lee T; CARRA Investigators. Telemedicine use by pediatric rheumatologists during the COVID-19 pandemic. Pediatr Rheumatol Online J. 2021 Jun 16;19(1):93. doi: 10.1186/s12969-021-00565-7. PMID: 34134709; PMCID: PMC8206874.

Arthritis Care & Research
2021

Carra Program:
Intramural Grant Program

Disease Area:
Juvenile Idiopathic Arthritis (JIA)

Publication Type:
Manuscript

Childhood Sjögren Syndrome: Features of an International Cohort and Application of the 2016 ACR/EULAR Classification Criteria

Basiaga ML, Stern SM, Mehta JJ, Edens C, Randell RL, Pomorska A, Irga-Jaworska N, Ibarra MF, Bracaglia C, Nicolai R, Susic G, Boneparth A, Srinivasalu H, Dizon B, Kamdar AA, Goldberg B, Knupp-Oliveira S, Antón J, Mosquera JM, Appenzeller S, O'Neil KM, Protopapas SA, Saad-Magalhães C, Akikusa JD, Thatayatikom A, Cha S, Nieto-González JC, Lo MS, Treemarcki EB, Yokogawa N, Lieberman SM; Childhood Arthritis and Rheumatology Research Alliance and the International Childhood Sjögren Syndrome Workgroup. Childhood Sjögren syndrome: features of an international cohort and application of the 2016 ACR/EULAR classification criteria. Rheumatology (Oxford). 2021 Jul 1;60(7):3144-3155. doi: 10.1093/rheumatology/keaa757. PMID: 33280020; PMCID: PMC8487648.

Rheumatology
2021

Carra Program:
Intramural Grant Program

Disease Area:
Lupus and Related Conditions (SLE/RC)

Publication Type:
Manuscript