It’s hard to believe my term as President of CARRA is about to come a close. As of July 1, I will be going on to the next phase of the CARRA leadership rotation as the Past President, with Rob Fuhlbrigge stepping in as the new President and Emily von Scheven as Vice President. The new Executive Committee will be rounded out by newly elected Bob Colbert as the new Treasurer and Finance Chair (welcome!), along with our capable Executive Director, Kelly Mieszkalski. Many thanks to Laura Schanberg for her 8 years’ service on the Executive Committee as well as innumerable contributions to our organization, although her work in CARRA is not completed: her vital involvement in many important CARRA projects will continue unabated.
The fact that the last two years have flown by is a testament to the rapid-fire pace and growth of new and exciting developments and projects for CARRA. Our Annual Meeting, which is right around the corner (April 11-15 in Denver), promises to be the best ever, with terrific speakers, panelists, numerous workgroups and increasing numbers of patient and family attendees as well as other stakeholders.
CARRA is extremely thankful for our continued partnership with the Arthritis Foundation, without which much of what we have been able to accomplish would not have been possible. Here are just a few highlights of what CARRA has accomplished in the past two years:
The CARRA Registry
The progress we’ve made will move us closer to our goal of being able to understand how children with rheumatic diseases are being treated, the safety and effectiveness of the medications being used to treat children, and very importantly, allowing all patients with rheumatic diseases the opportunity to participate in research.
CARRA Consensus Treatment Plans
The CTPs are a unique concept developed by CARRA that will foster standardization of treatment as well as the ability to compare the treatments being used to treat pediatric rheumatic diseases
Our patients and families are the reason and the guiding light for our research, and should be part of the research process from start to finish
CARRA Intramural Grants and Awards
Developing ideas and supporting workgroup activities as well as our Early Investigators is critical to ensure a robust pipeline of future pediatric rheumatology researchers and solidifying CARRA’s
Pediatric rheumatologists everywhere need to work together and collaborate in order to make faster and more meaningful progress. We need to learn together and from each other.
If all this wasn’t enough to do, CARRA has been undergoing streamlining of our organizational governance structure, strengthening our ethics oversight, increasing and improving our administrative support, and engaging in developing our strategic framework for the next five years.
We could not succeed without the work and support of our entire organization and many individuals, including the Executive Committee, the Steering Committee, the Board of Directors, our superb administrative team, the support of the Arthritis Foundation, and the hard work and dedication of all the CARRA leaders and members over the past 16 years since CARRA’s inception. Thank you for allowing me to serve as President of this growing and vital organization for the past two years. I am excited at the prospect of being able to witness and be a part of CARRA’s continued growth and transformation in the years to come.
Yukiko Kimura, MD