CARRA Newsletter-September 2017 Issue 2


President's Report

Yukiko Kimura, MD
Hackensack University Medical Center

The first day of autumn is always a little bittersweet: it signals the end of the long days of summer and vacations, but there’s also excitement about the new season and a fresh start. Of course the work never stops for an organization like CARRA, but the Fall season is again bringing many exciting changes! It’s clear that Arthritis Foundation support continues to be critical to the progress that we’ve made since our partnership began in 2015.

Here’s what we are expecting for CARRA in the last quarter of 2017:

  • The 4,000th enrolled patient in the CARRA Registry
  • Enrolling the first patients with JDM and scleroderma in the CARRA Registry
  • Activation of up to 10 new CARRA Registry sites (total number going up to 70 sites)
  • Activation of our first non-North American registry site at Tel Aviv University in Israel
  • Launch of a small pilot program to support research coordinator start up at a few sites (more details and call for applications available shortly)
  • Activation of the new CARRA Scientific Review Committee (led by Terry Moore)
  • 2nd 2017 cycle of Small Grants and the 2017 Large Grants to be awarded
  • Launch of the CARRA Ethics and Conflict of Interest Committee
  • Launch of the NICHD PROMOTE grant (Mara Becker and Sue Thompson, co-PIs) to study methotrexate pharmacogenetics in CARRA Registry participants

Read More>>

If you would like to contribute an article (related to pediatric rheumatology research) to our newsletter, we would love to hear from you! Please email [email protected] with details.

Early Investigator Experience at PReS

From Left: Yukiko Kimura, Hanna Kim, Rebecca Sadun,Grant Schulert, Kelly Mieszkalski, Laura Schanberg, Rob Fuhlbrigge

Drs. Hanna Kim, Rebecca Sadun, and Grant Schulert were each selected for the CARRA-PReS Travel Award, which covers up to $2500 in travel expenses related to attending the Paediatric Rheumatology European Association (PReS) Annual Scientific Congress (September 14- 17, 2017) and the preceding Young Investigators Meeting (YIM)  (September 13-14, 2017), both in Athens, Greece.  At the YIM, all young investigators had the opportunity to present their research.  All three travel award winners also presented their research at the main PReS Scientific Congress.  In addition, on behalf of the CARRA Early Investigator (EI) group, Hanna Kim presented an overview of both CARRA and the CARRA EI group, including discussing opportunities for international member involvement in CARRA.

Drs. Kim and Sadun also represented the United States at the PReS Trainee Working Group, where they learned more about the newly formed group for PReS Trainee members called EMERGE (EMErging RheumatoloGists and rEsearchers).  One key new initiative they have developed is the PRES EMERGE fellowship, which provides financial support for a fellow from any country to visit an institution in Europe to gain additional training in a clinical or research domain; more information on this opportunity can be found at  EMERGE is also developing a mentorship program similar to CARRA’s AMIGO program.

Registry Update

Site Highlights

  • Hackensack University Medical Center: Enrolled their 4th PEPR patient!
  • Duke University Medical Center: Enrolled their 9th PEPR patient!
  • University of California, SF: Enrolled their 7th PEPR patient and their 3rd FROST patient!

Enrollment Update (as of 9/22/17)

Announcements and Reminders

2018 Membership Categories & Dues

As of January 1, 2018, there will be a few changes to membership categories and dues. The first change includes transitioning current Trainee Members to Fellow Members, and adding a “new” Trainee Member category for pediatric residents and graduate or medical students. Additionally, the Health Care Associate Member category will now be separated, with Associate Physician Members (physicians) and Associate Health Care Members (primarily nurses) each an option for members. Finally, International Associate Members will be asked to join as Pediatric Rheumatologists, with full voting rights.

All members changing to a new member type will be automatically moved to their new member type on November 1, 2017, when the 2018 membership form goes live. All members will need to renew, regardless of whether or not dues are owed. For an overview of the new membership categories and dues, visit the CARRA Website.

For questions, please contact the CARRA Meetings & Membership Manager, or call 414-918-9822.

Coordinator Corner

ACR Meetings and Funding Support for CARRA Coordinators
Calling all coordinators interested in attending ACR in November! Here are some reminders about some great opportunities for seeing and networking with your fellow CARRA Coordinators:

  1. ACR  2017: November 4-8, San Diego, CA  (CEUs available through ACR)
    1. Coordinator Breakfast Meeting Mon, Nov. 6, 7-8:30AM
    2. CARRA Meeting and Reception Mon, Nov. 6, 6:30PM  (Must be a CARRA Member)
    3. Reimbursement up to $200 available for registration/travel if planning to attend ACR for CEUs

Other funding opportunities include:

  1. Continuing Education NOT covered by your site (Up to $200 reimbursed per calendar year, with RCAC pre-approval)
    1. Including ACRP/SOCRA  research certification prep course/ certification
    2. Research coordination/ped rheum continuing education

Applications must be submitted by December 1st via the CARRA Research Coordinators CE Application wiki site.

For questions contact an RCAC member or Officers:

Jennifer Woo, Chair
[email protected]
Marsha Malloy, Vice Chair
[email protected]

CURE JM Fellowship Awards in Juvenile Myositis

The mission of Cure JM is to find better treatments and a cure for Juvenile Myositis, and improve the lives of families affected by JM.

The purpose of the fellowship award is: To support the training of physicians in pediatric rheumatology to gain clinical and research expertise in Juvenile Myositis.

Award Amount:  $60,000/year for 2 years

Eligibility & Requirements: 

  • MD and completed a pediatric residency program
  • 1st, 2nd or 3rd year fellows in pediatric rheumatology at a center that trains physicians in the specialty of Juvenile Myositis.
  • A two-year award following the completion of the 1st year of a pediatric rheumatology training program.
  • The fellowship will be awarded to doctors in an academic center in the United States that has a clinical and research program in Juvenile Myositis and
  • Participation in clinic seeing Juvenile Myositis patients under the supervision of Pediatric Rheumatologists experienced with Juvenile Myositis.
  • Completion of a research project (basic science, clinical or translational) pertaining to JM within the two-year time frame of the fellowship award.
  • Must be able to devote at least 75% of their time to research.

Award Terms: 

  • A Fellowship recipient will receive $60,000/year to support salary and fringe benefits and for Cure JM annual conference.
  • The award is paid in 2 equal installments to the institution in July and January as outlined below.
  • Other trainee expenses are to be covered by the recipient’s institutional program.

Application Deadline:  Dec 15, 2017
Notification of Award:  February, 2018
Award term begins:  July 1, 2018

For more information and to apply, please visit the CureJM website.

Do You Have Good News to Share?
If you are a CARRA member and have a professional achievement (new grant awarded, a CARRA publication) you would like to share with our readership, please email the details to [email protected] with the subject “CARRA Newsletter Announcement for Consideration.”

Arthritis Foundation Updates


JINGLE BELL RUN - #JingleBellRun

The Arthritis Foundation’s original Jingle Bell Run is a fun way to get decked out and be festive, while racing to raise funds and awareness to cure arthritis. Put on your favorite holiday costume or tie jingle bells to your shoelaces. ’Tis the season to live it up and be jolly for a reason!  Form a team of friends, family and co-workers to run or walk, spread smiles and good cheer.. and be a Champion of Yes! Visit to find an event near you.

The Arthritis Foundation launched the iPeer2Peer Mentorship Program pilot at the beginning of summer!

So far, the iPeer2Peer program has matched 13 teens with young adult mentors from all over the nation. Recruitment efforts continue, with additional mentor trainings planned in 2018, this program can support many more teens during their transition from childhood to adulthood, learning to live independently, while managing their arthritis and related childhood rheumatic diseases. More details on the iPeer2Peer Program and for patients to apply, please visit and share: A special Thank You to The Hospital for Sick Children for their development of iPeer2Peer, partnership with the Arthritis Foundation, and support to launch the first US-based virtual support program for teens with childhood rheumatic diseases.