News

CARRA Newsletter-May 2018 Issue 1

 

The 2018 CARRA Annual Scientific Meeting Continues to Grow in Numbers and Depth

This year’s meeting once again broke the record for highest attendance with 489 attendees! In addition to an increase in CARRA member attendance, we had 53 Parent/Patient attendees.

The jam packed agenda featured 6 General Sessions with outstanding plenary speakers and panels, as well as 57 Workgroup/Committee Meetings. Additionally, 74 abstracts were presented as posters and 5 abstracts as oral presentations. This year, the cross-cutting (non-disease specific) committees met the day before the rest of the meeting, which succeeded in these committees accomplishing their work and allowed them to also attend disease committee meetings later on. We also heard some interesting and exciting updates about the projects that are being funded by the CARRA-AF Small and Large Grant awards.

In this Issue...

ASM18 Recap

Steering Committee Elections

CARRA-AF Grants

Contact Us!

Registry Update

Arthritis Foundation Update

 When not in sessions, attendees had the opportunity to engage with the 13 exhibitors and with each other during the many networking and meal activities, including the CARRA-AF Welcome & Poster Reception, and the CARRA Dinner, which featured an awards presentation and line dancing (yes, that’s right! Line dancing!).

And, in case you were wondering how attendees kept up their energy, all that effort was fueled by 250 gallons of coffee! This energy was evident in all the work that was accomplished, and in the enthusiasm of attendees to carry forth the work into the coming year.

Photos and Videos from Denver
Visit the Annual Meeting Photos page to view the opening presentation from Yukiko Kimura, as well as some photos highlighting the activities that took place in Denver. You can also find a PDF of the Annual Meeting program.

In addition, CARRA members can find videos and presentation slide decks from the general sessions posted on the Wiki.

Looking Ahead
We look forward to seeing the outputs of all this collaboration over the coming year. Be sure to mark your calendars for the 2019 CARRA Annual Scientific Meeting, April 10-14 in Louisville, KY.


A Special Thank You to our Annual Meeting Sponsors!

We would especially like to thank all of the sponsors and supporters of the 2018 CARRA Annual Scientific Meeting.  Without their support, this meeting would not be possible.

Diamond Sponsor

Gold Sponsors

                              


Congratulations to the Round 2 Election Winners!

Early Investigator Vice Chair JDM Vice Chair Pain Vice Chair SLE Vice Chair Small Centers Vice Chair

Kaveh Ardalan, MD, MS
Ann & Robert H. Lurie Children's Hospital of Chicago

Susan Kim, MD, MMSc
University of California, San Francisco, Benioff Children's Hospital

Jennifer Weiss, MD
Hackensack University Children's Hospital

Andrea Knight, MD, MSCE
Children's Hospital of Philadelphia

Matthew Hollander, MD, MHA
University of Vermont Children's Hospital


Spring 2018 CARRA-AF Grants Announced

We are pleased to announce the recipients of the Spring 2018 CARRA-AF grants. These grants are funded through the support of the Arthritis Foundation; small grants were given to pediatric rheumatologists and fellows small grant research awards were given to upcoming third year fellows.

Spring Small Grants

Three small grants of $25k each were awarded. Congratulations to:

  • Erica Lawson, University of California, San Francisco (San Francisco, CA): The Impact of Pediatric-to-adult Care Transition on Health Care Utilization and Medication Adherence among Youth
  • Sheila Angeles-Han, Cincinnati Children’s Hospital Medical Center (Cincinnati, OH): Measuring Vision-related Function and Quality of Life in Children with Uveitis
  • Kimberly Lewis, The University of Texas at Austin (Austin, TX): A Pilot of Metabolomics in Symptom Science: The intersection between Pain, Fatigue and Cardiovascular Risk in Teens with Juvenile Idiopathic Arthritis

Fellows Small Grants

Seven Fellows Small Grants of up to $25k each were awarded. Congratulations to:

  • Jessica Neely, University of California San Francisco (San Francisco, CA): Longitudinal Immune Profiling for Biomarker Discovery in Patients with Juvenile Dermatomyositis ($24,343 grant award)
  • Anna Patrick, Vanderbilt University Medical Center (Nashville, TN): Effector T Cells: An Assessment of Activity in Polyarticular Juvenile Idiopathic Arthritis ($24,998 grant award)
  • Cory Stingl, Duke University (Durham, NC): Precision Decision in the Treatment of Juvenile Dermatomyositis ($19,278 grant award)
  • Albert Chow, Seattle Children’s Hospital (Seattle, WA): Oral Health and Microbial Dysbiosis in Juvenile Dermatomyositis ($24,950 grant award)
  • Evan Mulvihill, Nationwide Children’s Hospital (Columbus, OH): Analysis of CB4 Gene Copy Number as a Predictor of Cardiovascular Disease in Systemic Lupus Erythematosus ($25,000 grant award)
  • Natalie Rosenwasser, Hospital for Special Surgery (New York City, NY): Development of Novel Urinary Biomarkers for Lupus Nephritis ($25,000 grant award)
  • Meiqian Ma, Cohen Children’s Medical Center, (Queens, NY): Validation and Usefulness of the 2012 SLICC Lupus Classification Criteria for Pediatric Lupus ($11,275 grant award)

Visit the grants page of the CARRA website for details on other funding opportunities. To stay up to date on Arthritis Foundation scientific initiatives and research projects visit them here.


Contact Us!

Check out CARRA’s new Contact Us page. You’ll find staff photos, contact information, and a listing of what each staff person can help you with.

Additionally, we’ve included some frequently asked questions and their answers.

https://carragroup.org/about-us/contact-us


Important Upcoming Dates


Registry Announcements

Enrollment Update (as of 5/18/18)

STOP-JIA Update: We need to enroll one STOP-JIA patient a day to reach the 400 patient enrollment goal by June 30. Also, remember to make every effort to enter data for the 12 month visit for STOP-JIA patients (this is the primary endpoint visit)!


Arthritis Foundation Updates

 

Research Patient Engagement Videos – Now Available

Thanks to a two-year Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award, the Arthritis Foundation has created a series of educational videos to help make patients and families aware of the opportunities available through involvement in research, whether as patient participants or as patient/family partners.

The curriculum was developed with clinicians, researchers, patient/families and presented during the parent program sessions at both Juvenile Arthritis Conference’s in 2016 and 2017 and was refined based on attendee feedback. The PCORI award enabled additional travel scholarships for 56 eligible families to attend the 2016 and 2017 JA conferences and participate in the research session, “Research: There’s a Role for You!” where the training was presented.

As a final product, a video based on the co-produced curriculum was created that can now be disseminated more widely to educate and empower patients/families to become involved in research.

View the videos

JA Camps

The Arthritis Foundation has camps and family events across the country that provide kids and teens and their families the opportunity to network, learn and play with others in their local community. To learn more about how you can get involved, please contact your local Arthritis Foundation staff. https://www.arthritis.org/get-involved/juvenile-arthritis-camps/