CARRA Newsletter-March 2018 Issue 1


Annual Meeting Registration is Open! Register Now!

Registration is now open for the CARRA Annual Scientific Meeting in Denver, CO, April 12-15.  Pre-conference meetings include Fellows sessions (starting on Wednesday, April 11) and sessions for CARRA Fellows, Early investigators, coordinators and participants in the Translational Research & Technology Committee (TRTC) beginning early on Thursday April 12. The opening session starts at 6:00 PM (MT) on Thursday. The AF-sponsored Poster Reception will be Friday evening, the CARRA Dinner & Line Dancing will be Saturday, and the CARRA oral abstract presentation session will be Sunday morning. For more information about the meeting, including the full meeting schedule, session descriptions, registration categories and the link to register, please visit the Annual Meeting portion of the CARRA website. If you have any questions about registration or the Annual Meeting, please contact CARRA Meetings & Membership Manager, Nicole Dahms ([email protected]). The registration deadline is March 19.  We hope to see you in Denver!

Registration Deadline: March 19

Reserve your Hotel Room Soon!

Hotel reservations are now open! Rooms are available at the group rate of $199.00 plus tax until Monday, March 19 or when the room block is sold out, whichever comes first. Rooms fill up fast, be sure to reserve yours early! Note: A deposit of one night's stay (room plus tax) is required to hold your room reservation.

Hyatt Regency Denver at Colorado Convention Center
650 15th Street
Denver, Colorado, USA, 80202
Tel: +1-303-436-1234

In this Issue...

Annual Meeting Registration is Open

Registry Intern Applications: Due March 14

Utrecht Summer School CARRA Sponsorship RFA: Due March 26

CTP Guidelines and AM Session

CARRA Election Results!

New CARRA Staff!

Registry Update

Lupus Foundation RFAs

Arthritis Foundation Update


Call for Applications
CARRA Registry Internship

Applications Due: March 14, 2018

CARRA is now accepting applications for up to two CARRA Registry Internship positions. The CARRA Registry Internship will fund 25% effort for one year. The internship may be eligible for a one year renewal, depending on availability of funds and intern productivity.  This opportunity is supported through funds received via our partnership with the Arthritis Foundation.

Call for Applications
2nd Annual Utrecht Summer School CARRA Sponsorship Program

Applications due: March 26, 2018

CARRA is pleased to announce an exciting opportunity for up to 2 early investigators to receive sponsorship to participate in this year’s Utrecht summer school program course entitled “Translational Medicine: Doing the Right Research Right.” Fellows with established translational research interests will also be considered for this opportunity. The course will take place July 9 – July 13, 2018 in Utrecht, the Netherlands. The sponsorship will cover the 800 Euro tuition (which includes housing and lunches), round trip coach airfare and $250 for incidental expenses. See the article about last summer’s program here.

Revised CTP Guidelines and Annual Meeting Session

The CARRA Consensus Treatment Plan (CTP) Advisory Committee has recently revised the guidelines for developing and disseminating CTPs with formal CARRA endorsement. The guidelines can be found here, under the CARRA CTP tab. You are invited to meet with the CTP Advisory Committee (Emily von Scheven, Kaveh Ardalan, Brian Feldman, Adam Huber, Andrea Knight, and Sarah Ringold) at the upcoming CARRA Annual Meeting on Friday, April 13 from 12:30-1:45 pm. We will review the guidelines and provide an opportunity for you to meet with the committee and ask questions. Our goal is to provide guidance and support to CARRA investigators and workgroups at all stages of the process. If your workgroup is currently developing a CTP, or plans to do so in the future, please consider attending. Sign up for this session when you register for the Annual Meeting.

Congratulations to the Round 1 CARRA Steering Committee Election Winners!

Finance Chair JDM Chair SLE Chair Small Centers Chair

Robert A. Colbert, MD, PhD
National Institutes of Health*

Adam M. Huber, MSc MD FRCPC
IWK Health Centre

Aimee Hersh, MD
University of Utah
Health Sciences Center

Theresa Wampler Muskardin, MD
NYU Langone Health

*Dr. Colbert will be serving in his personal capacity

Nominations for Steering Committee Vice Chair Positions Due 3/5

Nominations are being accepted for Early Investigator Vice Chair, JDM Vice Chair, Pain Vice Chair, SLE Vice Chair & Small Centers Vice Chair.

Scope of Work
To view the Scope of work for each position, please click the position title. Vice Chair positions receive 5% salary support.

Submitting a Nomination
Submit the name and contact information of your nominee via the online nomination form. Nominations can be self-nomination or nomination of someone else.

Welcome to CARRA’s Newest Staff Member: Portlynne Joseph!

Portlynne Joseph
CARRA Research Administrator
[email protected]

Portlynne graduated from the University of Wisconsin-Milwaukee in 2000 with a degree in Fine Arts having an emphasis in Stage Management.  Prior to CARRA, she worked as a Grant Administration Specialist at the Blood Research Institute/Blood Center of Wisconsin, Inc. where she was responsible for assisting investigators with submitting grants and reports as well as tracking compliance of publications. She enjoys the world of Research Administration and is excited about the opportunity of working with CARRA in this capacity.

Portlynne is available to help with questions about CARRA grants, invoices, and conference call scheduling.

Registry Announcements

Congratulations to...

  • The Registry team at Mattel Children’s Hospital at University of California for enrolling their first four subjects.
  • Hackensack University School of Medicine for enrolling the Registry’s first JDM patient.
  • The Registry teams at Boston Children’s Hospital and University of Louisville School of Medicine for enrolling their first FROST patients.
  • Brand new Registry site at Nicklaus Children’s Hospital in Miami, Florida.

Enrollment Update (as of 3/2/18)

Remember to make every effort to enter data for the 12 month visit for STOP-JIA patients (this is the primary endpoint visit)!

LUPUS Foundation RFAs

The Lupus Foundation of America is reissuing the Novel Pilot Therapeutic Approaches in Childhood Lupus Award. On behalf of the Michael Jon Barlin Pediatric Research Program, this award will now provide one (1) three-year grant award in the amount of $600,000 for a study that addresses the key issues relevant to treatment options for childhood lupus research. Applications are due on March 16, 2018.

The purpose of the Gary S. Gilkeson Career Development Award (CDA) is to facilitate the professional development of second or third year rheumatology, nephrology and dermatology fellows in the U.S. and Canada, interested in lupus research towards a career as an independent, clinician-scientist at an academic, medical, or research institution, with a research program having considerable focus on the investigation of basic, clinical, translational, behavioral or epidemiological lupus research.  The Gina M. Finzi Student Summer Fellowship Award (Finzi) seeks to cultivate an interest in lupus research among young scientists by funding studies conducted under the supervision of an established lupus investigator. Applications for the CDA and Finzi are due on April 9, 2018.

Please visit the LFA’s RFA page for more information.

Arthritis Foundation Updates


2018 JA Camps

Registration for many of our 2017 camp programs are now open! View our brand-new JA Camps website to browse our camps and register today! If you have additional questions, please contact your nearest Arthritis Foundation office.

Champion of Yes

The Arthritis Foundation is the Champion of Yes. We exist to conquer arthritis and other childhood rheumatic diseases. We’ve been meeting the unique and urgent needs of families for nearly 70 years. Working closely with such great research partners as the Childhood Arthritis and Rheumatology Research Alliance (CARRA) (, we’re investing millions of dollars in outreach and collaborative research that advances prevention, care and a cure for kids and teens with rheumatic diseases. Our tools and resources help more children say Yes to making life better.