CARRA Newsletter - June 2019 Issue 1


CARRA Special Elections


Elections for Cross Cutting Research Committee Chair and Finance Committee Member positions are now open.

Ballots were distributed via Survey Monkey to eligible voting members (Pediatric Rheumatologist Members, Sponsored Voting Members, and Emeritus Members). If you did not receive a ballot, please contact Brian Mondragon Jones ([email protected]).

Please visit the Candidate Guide to view candidate bios and personal statements.

Voting will remain open through June 13.

In this Issue...

CARRA Elections

Publications Review Requirements

Manuscript RFA: Analyses of CARRA Registry Data

Walk With Team CARRA

Registry Enrollment Update

Upcoming Events

Arthritis Foundation Updates

Cross Cutting Committee Chair Finance Committee Member Finance Committee Member
Tova Ronis, MDCM Stacy Ardoin, MD, MS John Bohnsack, MD

Call for Nominations

The election for Cross Cutting Research Committee Vice Chair will be held in July. Visit the Elections page of the CARRA website to submit a nomination and view the elections timeline.

Don’t Forget: Publications Review Requirements

All CARRA-related publications and presentations are subject to the CARRA Publication and Presentation Guidelines.  These include publications or presentations that derive from or utilize:

  • CARRA infrastructure such as mailing lists, conference calls, annual meeting space, or funding
  • Data and/or bio specimens from CARRA studies such as the CARRA Registry, Registry substudies, APPLE, TREAT, or RAPPORT, or from studies funded by funded by CARRA-Arthritis Foundation grants
  • Other projects funded by CARRA-Arthritis Foundation grants
  • Data from surveys of CARRA members

Papers/manuscripts, abstracts, meeting proceedings, posters, press releases, and slides that are CARRA-related (as defined above) must be submitted for review by the Publications Committee prior to submission to journals or conferences (or before you make a presentation).  In order to expedite the review process, you must submit your materials for review via this online Publication Review Submission Form.

As you plan your publication or presentation, keep in mind the time needed for review by the CARRA Publications Committee and submit to the committee well in advance of your publication submission deadline:

Time Needed for CARRA Publications Committee Review

Paper/Manuscript: 3 Weeks
Abstracts:     7 Days
Meeting Proceedings: 7 Days
Poster:   7 Days
Press Release: 7 Days
Slides: 7 Days

If you have any questions about the publication review process, please contact CARRA Director of Administration, Brian Mondragón Jones ([email protected]).

Manuscript RFA: Analyses of CARRA Registry Data

Applications Due: June 14

CARRA is pleased to announce the availability of funds to support production of a manuscript by funding statistical analyses of existing CARRA Registry data by biostatisticians and data analysts at the Duke Clinical Research Institute (DCRI), the Data Coordinating Center (DCC) for the CARRA Registry. The purpose of this opportunity is to engage the CARRA community in highly relevant clinical research and accelerate the publication of sophisticated high-impact analyses of Registry data by utilizing DCRI’s familiarity with the CARRA Registry database.

Walk With Team CARRA!

CARRA is very grateful for our partnership with the Arthritis Foundation. As you may know, the Arthritis Foundation has been a steadfast supporter of CARRA since its inception and is a major partner in support of our research to improve outcomes for children with rheumatic diseases. 

There are several Walk to Cure events running through the end of June. They are held all over the country– from North Carolina to California, with many sites in between! If you do not have a Walk event in your area, please consider donating to our CARRA National Team by clicking here. We hope you will share this link with your friends, family and patient families, as well!

Participants at the Denver, Colorado, Walk Event
May 19, 2019

Kudos to Current Top Performing Teams & Individuals!

CARRA would like to extend a special thank you to all of our CARRA-affiliated Walk teams, and provide a special “shout-out” to our current top teams, team captains, and top fundraisers.

Top CARRA-Affiliated Teams (as of June 4, 2019)

  • Hackensack-Meridian Health Heroes at HUMC /$18,403 (Orange, NJ; Team Captain: Doreen Tabussi)
  • CCMC Rheumatology Team/$5,960 (Hartford, CT; Team Captain: Ann Mendicino-Wrynn)
  • JIA Walkers/$2,441 (Salt Lake City, Utah; Team Captain: Debbie Durkee)

Top Individual Fundraisers (as of June 4, 2019)

  • Yuki Kimura ($7,400)
  • Aalia Ghodiwala ($2,541)
  • Jennifer Weiss ($2,145)
  • Karly Green ($2,100)
  • Kristi Ajaeb ($1,308)

Click here to view our top fundraising teams, and click here to view all of our top fundraisers.


Thank you to everyone who participated from Hackensack Meridian Health at the
Walk Event in West Orange, New Jersey!


If you are interested in hosting a CARRA table at your local Walk event and would like CARRA materials (such as CARRA and CARRA Registry bracelets, CARRA pens, CARRA Registry newsletters and brochures) to hand out to Walk participants, contact the CARRA business office at least two weeks prior to your event at [email protected]. Send us your photos so we can include them in our next newsletter!

Thank you for your support of CARRA and the Arthritis Foundation!

Registry Enrollment Update (as of 5/31/19)

Important Upcoming Dates

Arthritis Foundation Updates


Save the Dates!

The Arthritis Foundation will host the 2019 National Juvenile Arthritis Conference locations from July 18 - 21 in Houston, TX and August 1 - 4 in Minneapolis, MN. Click here to learn more!

JA Camps & Family Days

The Arthritis Foundation has camps and family events across the country that provide kids and teens and their families the opportunity to network, learn and play with others in their local community. To learn more about how you can get involved, please contact your local Arthritis Foundation staff. Please refer patients to visit for more details. Teen retreat and family camps are offered in the fall throughout the country.