CARRA Newsletter - August 2019 Issue 1


Late-Breaking RFA                                  

CARRA-Arthritis Foundation Transdisciplinary Research Grant: 
$150k, 2-Year Award
Letter of Intent due September 15
Final Application due October 1 

We are pleased to announce a NEW funding opportunity for the Fall 2019 Grant Cycle! This late-breaking RFA is intended to support the development and implementation of a clinical or translational project capable of advancing knowledge applicable to multiple pediatric rheumatic diseases. Examples of transdisciplinary areas of study appropriate for this grant mechanism include, but are not limited to, mental health, reproductive health, implementation science, cardiovascular health, transition, and telemedicine/informatics. Applications comprising multidisciplinary, multi-specialty, and/or multi-organization collaborations are particularly encouraged. 

In this Issue...

Late-Breaking RFA

Utrecht Travel Award Recipients

New Registry Associates

Registry Update

Upcoming Events

Arthritis Foundation Updates

Full Transdisciplinary Research Grant Submission Details



Grant applicants that intend to utilize the CARRA Registry or CARRA-related data and/or samples (including Legacy Registry and APPLE data/samples) must receive approval from the CARRA Data Sample Share Committee (DSSC) prior to submitting their grant applications. For the upcoming grant cycle, October 1 deadline, it is recommended that you submit your data/sample request no later than August 26. If you have any questions regarding this requirement, email [email protected].

In addition, if your application will propose collection of any new data or biosamples via the CARRA Registry and/or via CARRA sites, you must include a letter of support (LOS) from CARRA's Research and Registry Oversight Committee (RROC). Email [email protected] with a brief summary of your proposal and CARRA will work to schedule a call with you to discuss your application as soon as possible.



CARRA-Arthritis Foundation Large Grants:

  • Letter of Intent due September 1
  • Applications due October 1 
  • Click here to access full details regarding large grant submissions.

CARRA-Arthritis Foundation Small Grants:

  • Applications due October 1
  • Click here to access full details regarding small grant submissions.

Utrecht Travel Awards

CARRA provided an exciting opportunity for early investigator members Julie Chase, Natalie Rosenwasser, and Jessica Turnier to attend this year’s Utrecht Summer School program course entitled “Translational Medicine: Doing the Right Research Right.” The course took place July 7 – July 12, 2019 in Utrecht, Netherlands. CARRA supported their tuition and travel costs.

This course tackled the intrinsic difficulties of effective translational medicine in rare and orphan diseases and is meant for early stage researchers with an interest in this field. A full course description can be found on Utrecht’s Summer School program’s website. This course was open to participants from a wide range of disciplines and led by a pediatric rheumatologist. Click here to read more about their experiences!

Julie Chase, MD, PhD
The Children’s Hospital of Philadelphia

Natalie Rosenwasser, MD
Hospital for Special Surgery

Jessica Turnier, MD
Mott Children’s Hospital

Congratulations to our New Registry Associates!

The goal of Registry Associate positions is to develop leadership for CARRA through professional development of clinical investigators. This includes advancing real world, registry projects that will benefit CARRA Registry objectives and operations. Congratulations to our new CARRA Registry Associates, Stephen Balevic and Dan Zhao, and to our new Registry Informatics Associate, Alysha Taxter. 

Stephen Balevic, MD
Duke University School of Medicine

Alysha Taxter, MD
Wake Forest Baptist Health

Yongdong (Dan) Zhao, MD, PhD, RhMSUS
Seattle Children’s

Read more about these exciting opportunities and be on the lookout for the 2019 RFAs later this year!

Registry Update

As of August 2nd, CARRA has 8,919 patients enrolled in the CARRA Registry! Highlights include:

  • 7,959 patients with JIA, 562 patients with SLE and related conditions, 111 patients with JDM or JPM, and 1 scleroderma patient have been enrolled!
  • 258 biosamples have been collected!
  • 64 of 100 patients are now enrolled in the FROST study!

Thank you to all of our CARRA Registry sites for all of your hard work!

Save the Date!

CARRA is holding its second annual CARRA Registry Retreat for principal investigators, sub-investigators, and site coordinators on February 23-24, 2020, in Dallas. More details will be sent to sites in the coming weeks!

Important Upcoming Dates

Arthritis Foundation Updates


Jingle Bell Run

The Arthritis Foundation’s Jingle Bell Run is the original festive race for charity, bringing people from all walks of life together to champion arthritis research and resources. All events have a timed 5K race with a USA Track & Field-certified course, but if you prefer to walk, no problem! There are also 1-mile options and kids runs at many events.

Put on your favorite holiday costume, enjoy fun activities and spread good cheer along with family, friends and co-workers. Jingle All the Way to a Cure for the 1 in 4 Americans with arthritis. 100 percent of your registration fee and fundraising efforts go to a great cause!

Learn More

Live Yes! Connect Groups

Arthritis Foundation Live Yes! Connect Groups provide support for parents with children living with juvenile arthritis and other childhood rheumatic disease! These groups are part of an expanding range of Arthritis Foundation resources that provides personalized help & support to parents who have a child/teen with a childhood rheumatic disease. The Live Yes! Connect Groups for JA Parents offers connection, education, and empowerment.

Learn More


In the second July issue of the CARRA newsletter, there was an error in the listing of Small Grant Recipients. Christian Hedrich, MD, PhD, works at the University of Liverpool and Polly Ferguson, MD, works at the University of Iowa. Our apologies for this error.