News

CARRA May 2021 Newsletter - Issue 2

 

A Message from the CARRA President

As CARRA has grown, the number of positions available to our members has increased. These positions offer an opportunity to get more deeply involved, to develop valuable leadership skills and to contribute to advancing pediatric rheumatology research. I encourage you to consider applying and to disseminate to others in your community.

Thank you,

Emily von Scheven, MD, MAS
President, CARRA

CARRA Open Positions

 

Assistant Scientific Director

Letter of Intent (LOI) due May 24, 2021

The CARRA Research & Registry Oversight Committee (RROC) is currently seeking applications for an Assistant Scientific Director (ASD). This role will help drive the Registry’s research direction by providing scientific input on analyses and reports and will play a crucial role in grant and business development.

Click here to learn more and submit a LOI.

 

Interim JIA Vice Chair

Nominations due May 25, 2021

The CARRA Elections Committee is seeking nominations for the Steering Committee position of interim JIA Vice Chair as the previous JIA Vice Chair has stepped down. This term will last the remainder of the current term (7/1/21-6/30/22), and the member elected will be eligible to re-stand for two full terms after their fulfillment of this current term.

Learn more and submit a nomination today!

 

CTP Advisory Committee

Applications due June 4, 2021

The CARRA Steering Committee is seeking CARRA members to serve on the CTP Advisory Committee. The purpose of the Committee is to provide both oversight and support for the CTP development process.

Learn more and submit an application.


2021 Spring Cycle CARRA-Arthritis Foundation
Grant Recipients!

Fellow Grant Recipient

Insurance Status and Delays in Care Among Children with JIA

PI: Jordan Roberts, MD (Boston Children’s Hospital)

Small Grant Recipients

PRECISE (Precision Biologics in Rheumatology)

PI: Stephen Balevic, MD MHS (Duke University Medical Center)

Clinical Characterization of Eosinophilic Granulomatosis with Polyangiitis in Children

PI: Jessica Bloom, MD (Children’s Hospital Colorado)

Elastography Ultrasound in Localized Scleroderma (Morphea): A Prospective, Longitudinal, Multicentric Pilot Study‚Äč

Co-PI: Andrea Doria, MD PhD MSc MBA (The Hospital for Sick Children)

Co-PI: Ronald Laxer, MD (The Hospital for Sick Children)

Development and Validation Testing of Web-based Standardized Scoring System for MRI Images in Chronic Nonbacterial Osteomyelitis

Farzana Nuruzzaman, MD (Stony Brook Children’s Hospital)

Learn more about their research projects.


2nd Annual Implementation Science
Retreat is a Success

The 2nd Annual CARRA Implementation Science Retreat was held virtually on May 7th and was a big success! The Friday afternoon event included presentations from our two inaugural CARRA-Arthritis Foundation Implementation Science Design grant awardee teams, a presentation on “Using Theory to Integrate Quality Improvement and Implementation Science” by Dr. Rohit Ramaswamy, in addition to discussions around Consensus Treatment Plans (CTPs) and how to study and improve their implementation. Click here to review the full agenda from the retreat and for the link to the session’s full recording (session recording is only accessible to CARRA members).

CARRA would like to extend a special thank you to Implementation Science workgroup leaders, Rajdeep Pooni, Cagri Yildirim Toruner, and Ingrid Goh for organizing such a wonderful event!


Reminder: Join CARRA's National Team for the 2021 Walk to Cure Arthritis

Support our Premier Partner, the Arthritis Foundation, by participating in the annual Walk to Cure Arthritis. Visit CARRA’s National Team to learn how to form a team under the CARRA umbrella. Contact Vincent Del Gaizo, Director of Partnerships & Patient Engagement, for assistance forming your team or linking your existing team.

 Join Team CARRA!


Arthritis Foundation Updates

PLEASE ENCOURAGE YOUR PATIENTS AND THEIR FAMILIES TO PARTICIPATE

JA Camps

The Arthritis Foundation's virtual camp program will bring the magic of summer camp to all campers with JA or pediatric rheumatic disease. We are excited to bring campers an alternative option for connection and fun again this summer. Registration is open and can be found at arthritis.org/jacamps.

National JA Conference

The Arthritis Foundation is hosting the 2021 National JA Conference virtually, July 22-25, 2021. Educational and fun sessions are planned throughout the weekend for the entire family and Young Adults. More networking opportunities and virtual "Doc in the Box" sessions are being added to the agenda. Visit arthritis.org/jaconference for more details on session topics and activities along with link to registration.


Important Dates and Deadlines