As CARRA has grown, the number of positions available to our members has increased. These positions offer an opportunity to get more deeply involved, to develop valuable leadership skills and to contribute to advancing pediatric rheumatology research. I encourage you to consider applying and to disseminate to others in your community.
Emily von Scheven, MD, MAS
The CARRA Research & Registry Oversight Committee (RROC) is currently seeking applications for an Assistant Scientific Director (ASD). This role will help drive the Registry’s research direction by providing scientific input on analyses and reports and will play a crucial role in grant and business development.
The CARRA Elections Committee is seeking nominations for the Steering Committee position of interim JIA Vice Chair as the previous JIA Vice Chair has stepped down. This term will last the remainder of the current term (7/1/21-6/30/22), and the member elected will be eligible to re-stand for two full terms after their fulfillment of this current term.
The CARRA Steering Committee is seeking CARRA members to serve on the CTP Advisory Committee. The purpose of the Committee is to provide both oversight and support for the CTP development process.
PI: Jordan Roberts, MD (Boston Children’s Hospital)
PI: Stephen Balevic, MD MHS (Duke University Medical Center)
PI: Jessica Bloom, MD (Children’s Hospital Colorado)
Co-PI: Andrea Doria, MD PhD MSc MBA (The Hospital for Sick Children)
Co-PI: Ronald Laxer, MD (The Hospital for Sick Children)
Farzana Nuruzzaman, MD (Stony Brook Children’s Hospital)
The 2nd Annual CARRA Implementation Science Retreat was held virtually on May 7th and was a big success! The Friday afternoon event included presentations from our two inaugural CARRA-Arthritis Foundation Implementation Science Design grant awardee teams, a presentation on “Using Theory to Integrate Quality Improvement and Implementation Science” by Dr. Rohit Ramaswamy, in addition to discussions around Consensus Treatment Plans (CTPs) and how to study and improve their implementation. Click here to review the full agenda from the retreat and for the link to the session’s full recording (session recording is only accessible to CARRA members).
CARRA would like to extend a special thank you to Implementation Science workgroup leaders, Rajdeep Pooni, Cagri Yildirim Toruner, and Ingrid Goh for organizing such a wonderful event!
Support our Premier Partner, the Arthritis Foundation, by participating in the annual Walk to Cure Arthritis. Visit CARRA’s National Team to learn how to form a team under the CARRA umbrella. Contact Vincent Del Gaizo, Director of Partnerships & Patient Engagement, for assistance forming your team or linking your existing team.
PLEASE ENCOURAGE YOUR PATIENTS AND THEIR FAMILIES TO PARTICIPATE
The Arthritis Foundation's virtual camp program will bring the magic of summer camp to all campers with JA or pediatric rheumatic disease. We are excited to bring campers an alternative option for connection and fun again this summer. Registration is open and can be found at arthritis.org/jacamps.
National JA Conference
The Arthritis Foundation is hosting the 2021 National JA Conference virtually, July 22-25, 2021. Educational and fun sessions are planned throughout the weekend for the entire family and Young Adults. More networking opportunities and virtual "Doc in the Box" sessions are being added to the agenda. Visit arthritis.org/jaconference for more details on session topics and activities along with link to registration.