CARRA December 2020 Newsletter - Issue 2


CARRA at ACR Convergence

CARRA members had another successful ACR meeting! At this year’s ACR Convergence, CARRA researchers presented over 65 abstracts, including 17 on CARRA-specific research. Click here for details.  SLE Vice Chair (and incoming Chair) Andrea Knight gave the distinguished Edmond L. Dubois, MD Memorial Lecture on Psychiatric Comorbidity in Childhood-Onset SLE and Insights for Advancing Care. CARRA’s Past President, Norm Ilowite was one of three CARRA members honored for outstanding contributions to pediatric rheumatology by receiving the distinction of ACR Master.

Click here to see the full list of CARRA members receiving awards at ACR!  

CARRA Members Receiving ACR Awards

In addition to our research accomplishments, CARRA would like to congratulate our members who were honored by ACR with the awards noted below.


ACR Masters

Recognition as a Master of the American College of Rheumatology is one of the highest honors that the College bestows on its distinguished members. The designation of Master is conferred on ACR members, age 65 or older, who have made outstanding contributions to the field of rheumatology through scholarly achievement and/or service to their patients, students, and the rheumatology profession.

Congratulations to:

  • Norman T. Ilowite, MD, CARRA Past President (Retired, The Children’s Hospital at Montefiore)
  • Kathleen M. O'Neil, MD, Past CARRA Steering Committee Member (Retired, Indiana University School of Medicine / Riley Children’s Hospital)
  • Ciarán M. Duffy, MB, BCh, MSc (Children's Hospital of Easter Ontario / University of Ottawa)


ACR Award of Distinction: Distinguished Clinical Scholar

Congratulations to:

  • Robert W. Warren, MD, PhD, MPH, (Medical University of South Carolina, Charleston, South Carolina)


Distinguished Fellow Awards

The Distinguished Fellow Award recognizes clinical and research fellows who are in a rheumatology fellowship training program and have performed meritoriously. Congratulations to:

  • Nicole Bitencourt, MD (UT Southwestern Medical Center, Dallas, Texas)
  • Rosemary Peterson, MD, MSCE (Children's Hospital of Philadelphia, Philadelphia, Pennsylvania)


Henry Kunkel Early Career Investigator Award

Congratulations to:

  • Pamela F. Weiss, MD, MSCE, Past CARRA Steering Committee Member (University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania)


Excellence in Investigative Mentoring Award

Congratulations to:

  • Daniel Solomon, MD, MPH, CARRA Board Member (Brigham and Women's Hospital, Harvard Medical School, Boston, Massachusetts) 

Reminder: CARRA-Arthritis Foundation Small & Fellow Grants

Small and Fellow Grant Applications Due: February 15, 2021

**IMPORTANT REMINDER:  Grant applications that propose collection of any new data or biosamples via the CARRA Registry and/or via CARRA sites must include a letter of support (LOS) from CARRA’s Research and Registry Oversight Committee (RROC). We ask that you please plan early and submit your request no less than 6 weeks in advance.  For the Spring Grant Cycle, RROC requests are due no later than February 1st. Complete this form and submit your request online here. For questions about RROC requests, please contact Leslie Hanrahan ([email protected]). For all other questions about CARRA-Arthritis Foundation grants, email [email protected].

CARRA - Arthritis Foundation Small Grant

This opportunity is available to support projects in development. The research project can be a pilot, continuation of ongoing research, or other projects that move forward clinical or translational research that furthers the CARRA mission. New or early investigators are encouraged to apply. Preference will be given to research that is collaborative in nature, which leverage current CARRA network resources, and/or will further develop the CARRA network.

  • Funding limit: $50,000
  • Project period: 2 years (July 1, 2020 - June 30, 2022)

Full Small Grant Details

CARRA - Arthritis Foundation Fellow Grant

This grant mechanism is exclusively available for fellows entering their third year who wish to perform a CARRA-related research project (utilizing the CARRA network, the CARRA Registry, or data and/or samples from other CARRA studies). The project must not be necessary to meet the ABP requirement for scholarly work product, but it may be supplemental. The intent of this funding program is to augment the fellow’s research portfolio by supporting a project that extends, enhances, or is distinct from their primary scholarly project, as defined and required by the ABP for Board eligibility.

  • Funding limit: $25,000
  • Project period: 1 year (July 1, 2020 - June 30,2021

Full Fellow Grant Details

Questions? Email [email protected]

Eureka Virtual School Experience

Also known as the Utrecht Sumer School Program, this year’s program went virtual. CARRA members Hanna Kim and Kader Cetin Gedik were selected to participate and share their experiences below.

Hanna Kim

“This was an incredible opportunity to connect with PhD and clinical trainees and early investigators from around the world, including UAE, Netherlands, UK, and Sudan, interested in building careers in translational medicine… The skills and concepts discussed emphasize the broad goals of translational medicine, focusing on helping patients as well as learning strategies necessary in collaborative team science that we can all bring back to our own projects.”

Read Hanna’s full account of her experience here.

Kader Cetin Gedik

“The course far exceeded my expectations and proved to be a truly inspirational experience for me. The curriculum was way beyond teaching various skills and technical knowledge for performing translational medicine. I felt one of the main goals was to assist young investigators through the navigation of finding their “why,” and to encourage participants to become their own drivers, so to speak, in their journey towards achieving their career goals.”

Read Kader’s full account of her experience here.

Reminder: CARRA Outstanding Service Award

Nominations due: January 15

This award recognizes an individual that has made meaningful contribution to the organization and consistently demonstrates a high degree of excellence in teamwork and collaboration. This individual demonstrates generosity and willingness to assist others in the CARRA community.


  • Individual must be an active CARRA member in good standing.
  • Current members of the Executive Committee, Steering Committee, and RROC are not eligible for nomination.

Click here for more information.

Click here to submit a nomination.

News and Notes

CARRA Registry Stats (as of 12/21/20)

This amounts to an increase of 986 enrolled patients and 213 biosamples over the course of 2020. It has been an incredibly difficult year - but this news gives us something to celebrate. Thank you all for your help with the CARRA Registry!

CARRA Welcomes 5 New Sites to the CARRA Registry Network!

This month, we welcome 5 new Registry sites to the CARRA Registry network! This will bring us to a total number of 76 Registry sites. Please help us welcome the below institutions to the CARRA Registry:

  • Children’s Hospital of the Kings Daughters, Norfolk, VA (PI: Cassyanne Aguiar, MD)
  • Children’s Hospital Los Angeles, Los Angeles, CA (PI: Katherine Marzan, MD)
  • The University of Mississippi Medical Center, Jackson, MS (PI: Charles Spencer, MD)
  • Golisano Children’s Hospital, Rochester, NY (PI: Christina Schutt, DO)
  • Johns Hopkins University, Baltimore, MD (PI: Ekemini Ogbu, MD, MSc) 


Call for New Registry Associates

Application deadline: January 31

CARRA is currently accepting applications for Registry Research Associate positions.

The CARRA Registry Associate position is designed to immerse the applicant in the operational, scientific and leadership aspects of the CARRA Registry. This is a unique opportunity for the associate to interact intensively with the CARRA Registry leadership team, other Associates and early investigators, and to learn skills and gain knowledge that will enrich pediatric rheumatology research and practice.

Applicants must be current CARRA members, have completed a pediatric rheumatology fellowship and be employed as a pediatric rheumatologist in the United States or Canada. Graduating Fellows and Early Investigators are encouraged to apply. The deadline for applications is January 31st, 2021.

If you are interested, please visit our website here for more information. If you have any questions, please reach out to Nick Rogall, Research Administrative Manager at [email protected].

Important Dates and Deadlines:

Annual Scientific Meeting: