Patients & Caregivers as Part of the CARRA-Arthritis Foundation Grant Review Team

In CARRA’s effort to include the patient voice in all research related activities, each CARRA-Arthritis Foundation Intramural Grant submission is reviewed by a caregiver or patient.  Currently there are close to 40 caregivers and patients like Jamie who serve as ad-hoc members of the Scientific Review Committee (SRC).

Patients and Caregivers score submissions using the same 1-9 scale as the rest of the Scientific Review Committee, but they evaluate projects based on different criteria.  The 3 criteria that are considered by caregivers and patients are:

  • Impact (Is the project important to the patient community?)
  • Feasibility (Would families be able to participate in the study?)
  • Patient Centeredness (Are patients/caregivers on the study team?  Is there a plan to share results back to the patient community)

Caregiver/patient reviewers are assigned based on the topic of the project and the parent’s perspective and expertise.  After reviewing the grants, they present their reviews during the SRC call and contribute to the overall discussion of the proposed grants.  While opinions of caregivers and patients can influence the final overall score of the grant, projects must be based in sound science to be considered for funding.

Caregivers and patients are ineligible to review projects from the institution where they receive care or from an investigator with whom they partner or work with on other projects.  New members are recruited and trained each cycle as needed.

Contact CARRA’s Director of Partnerships and Patient Engagement, Vincent Del Gaizo, at [email protected] or 908-303-9037 if you know a parent or young adult patient interested in becoming a grant reviewer in the future.