CARRA Registry Informatics Associate: Now Accepting Applications!


Application Deadline: March 1, 2021

CARRA is pleased to accept applications for the next Registry Informatics Associate position. 

CARRA will fund this position for up to two years. The start date is July 1, 2021. Applicants must be Board Eligible or Board Certified in Pediatric Rheumatology in North America as of this date, or entering their 2nd or 3rd year of Pediatric Rheumatology fellowship in a Board-accredited fellowship program in North America as of this date. Eligible applicants must be CARRA members. Junior faculty and early investigators, and graduating fellows with secured faculty positions are encouraged to apply.


The overarching goal of the Registry Informatics Associate position is planning and implementation of both short- and long-term strategies that will streamline and reduce the burden of registry data entry and collection while maintaining all of the regulatory requirements necessary for post-marketing surveillance and other phases of FDA-regulated clinical trials. This position will foster the professional development and leadership of Clinical Informatics investigators within CARRA and the CARRA Registry while advancing real world, registry informatics projects that will benefit CARRA Registry objectives and operations. 

CARRA recognizes that the sustainability and longevity of the CARRA Registry is dependent upon improving the efficiency of and streamlining the workflow for registry data collection. We are looking to expand the scope of currently utilized electronic health record (EHR)-based technologies to support this goal. Competitive applications will address one of the following:

  1. To build local expertise utilizing Epic Systems Corporation (“Epic”) native tools, such as questionnaires, flowsheets, data elements, homunculus documentation, and/or reporting functionality to systemically capture Registry data.
  2. To develop non-Epic EHR vendor (ie: Cerner, Allscripts) approaches to systemically capture, utilize, and report upon Registry data.
  3. To leverage informatics to integrate Consensus Treatment Plans and other Clinical Decision Support tools within the EHR.
  4. To integrate Registry patient-reported outcome (PRO) data at point-of-care to inform clinical care and decision making.

In addition, opportunities for attending relevant professional development opportunities, including formal training and associated limited meeting and travel costs, may be made available on an individualized basis.


The Registry Informatics Associate will: 

  • Plan and design a major and minor project, in collaboration with CARRA mentors in clinical informatics and registry research, and present the plans and results of their project to the Registry leadership.
  • Be mentored by the CARRA Director of Research Informatics (Marc Natter) and CARRA Registry PI (Laura Schanberg), as well as by the CARRA Registry Scientific Director (Tim Beukelman) and former Registry Informatics Associates.
  • Work directly within various CARRA Registry teams to gain a detailed understanding of Registry informatics operations, overall registry operations, and project-specific requirements and operations.
  • Actively participate in bimonthly Registry Operations team calls (2nd Monday of each month at 11:00 am ET), Registry Associate conference calls (twice per month), and occasional colloquia or program workshops.
  • Attend the CARRA Annual Meeting and annual Operations Team Retreat, as well as any additional meetings regarding the CARRA Registry.
  • Be responsible for preparing manuscripts, abstracts, and delivering presentations in support of the CARRA Registry as directed by the Registry team and based on the associates own interests.
  • Be required to acknowledge their Associate position in any publications that result from work related to the registry done during their tenure.

For any questions, please email [email protected].