Steering Committee Chair Scope of Work

(Cross Cutting, JDM, JIA, PAIN, SLE, Small Centers, Rare Diseases, TRTC)


  • Complete an annual report including committee and workgroup progress, activities at the annual meeting, and future plans to CARRA by May 30 of each year.
  • Develop and update your committee’s scientific goals to be presented in the annual report.
  • Participate in the submission of at least one grant application yearly to support CARRA research.
  • Take a leadership role in the submission of an external funding application to support CARRA research at least once during each 3 year term (excluding RCN)
  • Identify potential successors at least one year prior to expiration of term


  • Lead the committee and oversee the general workings of the committee
  • Set and enable the scientific agenda for the committee
  • Set priorities and direction for research development for your committee
  • Manage the distribution of the group’s discretionary funds
  • Facilitate communication within the committee, including regular communication with workgroup leaders
  • Attend all monthly Steering Committee meetings (conference calls), currently held the 2nd Friday of each month from 2-3:30PM Eastern time
  • Attend all  face to face  meetings of the Steering Committee
  • Attend (in person) the CARRA Annual Scientific Meeting
  • As a member of the Steering Committee, provide direction and oversight for CARRA’s internally funded research Scientific Review Committee, Publications Committee, Data & Sample Share Committee, and CTP Committee
  • As a member of the Steering Committee, also provide oversight of CARRA membership engagement and the CARRA Annual Scientific Meeting
  • Represent CARRA as a consultant/resource to collaborators and other groups when needed
  • Participate in the planning and execution of the Annual Meeting:
    • Co-lead (with Vice Chair) the group’s committee meeting and organization of workgroup meetings (coordinating with ED and meeting planner)
    • Assist with identifying keynote and plenary program speakers
    • Provide a summary of the committee/workgroups activities in annual report
  • Workgroup Leadership:
    • Identify workgroup leaders
    • Oversee workgroup progress with regular meetings throughout the year with leaders, including assisting with organizing sessions at the Annual Meeting
    • Periodically participate in Workgroup conference calls
    • Develop new workgroups when sufficient need and interest are present and aligned with the overall strategic interests of CARRA and the committee.
  • Communicate at least monthly with Vice Chair on goals and progress of the committee and its workgroups, assign tasks to Vice Chair as appropriate
  • Provide input into the CARRA Registry data collection and operations relevant to diseases within the committee
  • Prioritize and enhance CARRA research studies and Registry enrollment and site performance, including working with his/her site as appropriate
  • Provide input into selection of CARRA scientific grant review committee members
  • Offer guidance and support to CARRA members who are developing and implementing original research ideas, especially young investigators
  • Train and orient new chair


Must be a member in good standing.

  • Member is current on membership dues and membership information (location, contact information, and membership status) is up-to-date
  • Member participates in at least one Research Committee (e.g. JDM, JIA, Rare Diseases, etc.) of CARRA
  • Member has attended at least one annual CARRA meeting over the last 3 year period


Three year term 

An estimated/average 4 hours weekly will be needed to perform these duties. This role includes compensation of 10% of salary plus fringe.