Scope of Work for Chair of the CARRA Research Coordinator Network (RCN)




  • Submit an annual report (template to be provided) detailing a summary of the committee/workgroups activities, including assessment of and recommendations for the CARRA Coordinator Mentor Program and CARRA Research Coordinator Orientation Program by May 30 of each year,
  • Develop and update the committee’s goals to be presented in the yearly report,
  • Identify potential successors at least one year prior to expiration of term,


  • Develop and lead the CARRA Research Coordinator Network (RCN) and oversee the general workings of the Network,
  • Set and enable the annual agenda (to accomplish the goals) for the RCN,
  • Set priorities and direction for research protocol training and skills development for the RCN,
  • Participate in the development and review of Registry coordinator and site training materials,
  • Serve as primary facilitator of communications within the RCN,
  • Ensure maintenance of the Coordinator wiki space,
  • Provide input into the CARRA Registry data collection and operations,
  • Prioritize and enhance CARRA research studies and Registry enrollment and site performance, including working with his/her own site as well as others as appropriate,
  • Manage the distribution of the RCN’s discretionary funds,
  • Facilitate communication within the committee, including regular communication with workgroup leaders,
  • Attend and contribute to monthly CARRA Registry Operations Team calls, currently held monthly on the second Monday of each month from 11am to 12pm Eastern time,
  • Participate in yearly CARRA Registry Operations Meetings (in person in Durham, NC or virtually),
  • Attend monthly Steering Committee meetings (conference calls), currently held the 2nd Friday of each month from 2-3:30PM Eastern time,
  • Attend face to face meetings of the Steering Committee,
  • Attend (in person) the CARRA Annual Scientific Meeting,
  • As a member of the Steering Committee, provide direction and oversight for CARRA’s Internally funded research Scientific Review Committee, Publications Committee, Data & Sample Share Committee, and CTP Committee,
  • As a member of the Steering Committee, provide oversight of CARRA membership engagement and the CARRA Annual Scientific Meeting,
  • Represent CARRA as a consultant/resource to collaborators and other groups as needed,
  • Participate in coordinator-related meeting planning:
    • Actively participate in yearly Registry Retreat planning and coordination of related programs (e.g., Registry Power Hours, any coordinator programming at the Annual Scientific Meeting). This includes serving on planning teams, developing agendas, programming and materials development.
  • Workgroup Leadership:
    • Develop new workgroups when need and interest are present and aligned with the overall strategic interests of the CARRA  coordinator network and CARRA Registry
    • Identify workgroup leaders,
    • Oversee workgroup progress, meeting regularly with workgroup leaders, including assisting with organizing sessions during CARRA related meetings (e.g., Registry Retreat, the Annual Scientific Meeting),
    • Periodically participate in workgroup conference calls,
  • Communicate at least monthly with Vice Chair on goals and progress of the committee and its workgroups, assigning tasks to Vice Chair as appropriate,
  • Train and orient new Chair,
  • Maintain eligibility requirements for this position throughout the term*
    • Serve as a study coordinator for the Registry or a Registry-based CARRA study at his/her site
    • Actively recruit, consent, enroll and follow participants for the CARRA Registry and other CARRA studies
    • Participate in biosample collection
    • Enroll new patients into CARRA studies on a regular basis (for the CARRA Registry, this is defined as a minimum of one new subject enrolled per month)
    • Remain up to date on data entry and regulatory requirements for all CARRA studies that the coordinator is staffing
    • Attend/Participate in DCRI CARRA Registry Site Calls
    • Remain responsive to CARRA and DCRI queries and communications, participating in DCRI-led CARRA Registry site calls

An estimated/average 4 hours weekly will be needed to perform these duties.  This role includes compensation of 10% of salary plus fringe.

*time required to maintain eligibility is not funded effort through this position