Meetings & Events

2020 Registry Retreat

CARRA hosted its 2nd Annual CARRA Registry Retreat last month in Dallas, TX. Coordinators, Principal investigators and sub-investigators from 60 CARRA Registry sites were represented, along with patient and family representatives, DCRI and CARRA staff. 

The objective of the annual retreat was to facilitate and improve the experience of participating in the Registry by actively engaging with participants through small group discussions, panel presentations, brainstorming, problem solving, and training. This year’s retreat focused on ways to enhance the collection of data, biosamples, and Patient Reported Outcomes (PROs) as well as how to improve the long term follow-up of our patients through the use of the CARRA call center. The results from the discussions are being used to set future strategy and help take the CARRA Registry to the next level. 

The CARRA Registry set out with a goal of enrolling 10,000 patients, which CARRA has now surpassed! Thank you to all of our members, coordinators, providers, partners, and patients and caregivers who have helped us reach this milestone, and thank you to everyone who helped make our 2nd annual CARRA Registry Retreat a great success!

Take a peek at our attendees in action! For more photos from the retreat, click here.


Travel & Reimbursement

In order to be eligible for reimbursement, attendees must fill out the corresponding evaluation link for the sessions attended.

Coordinator Session Survey (Sunday, 2/23)

Registry Retreat Survey (Monday, 2/24)

The full reimbursement policy can be found here.