Meetings & Events

Day 2 Recap



Registration Hours

  • Friday, April 12 6:45 am - 6:00 pm
  • Saturday, April 13 6:45 am - 6:00 pm

Meals on Saturday, April 13

  • Breakfast will be served from 6:45 am - 8:00 am in the Marriott Ballroom Foyer. 
  • Lunch will be served from 12:45 pm - 2:30 pm in the Marriott Ballroom Foyer.
  • The CARRA Dinner will be served at 7 pm.
    • After dinner participants can relax, socialize, and have fun in the Marriott Ballroom!

Day 2: At a Glance

 

The second day of the 2019 CARRA Annual Scientific Meeting was jam packed with sessions! CARRA members of various disease and research committees met and attended workshops while patients, family members, and caregivers attended an orientation session.

    

 

 

The Opening Session began at 3:30 pm, and after a warm welcome by CARRA President Rob Fuhlbrigge and Arthritis Foundation Senior VP Guy Eakin, attendees enjoyed a "riff-off" between Angelo Ravelli and Daniel Solomon - a lively debate moderated by Mara Becker.

    

 

 

After all of the business had concluded, attendees were invited to the Arthritis Foundation-Sponsored Welcome & Poster Reception. Abstract posters were manned by their authors, and meeting participants could speak with them in person to learn more about current research projects.

    

 

Click here to see the Google Photo gallery from Day 2!


Patient Feature: Barb Limbach

Barb Limbach is a JDM patient from Fort Wayne, Indiana, who was diagnosed at age 5. During the time, her family lived in Ann Arbor and she was treated with prednisone at the University of Michigan. She has been in remission since age 7, and only has calcinosis as a side effect.

When Barb was first diagnosed, the mortality rate was 40%; it is now down to <2%. Things have changed a lot in 53 years, and she hopes that in 53 more years there will be a cure. Barb is currently a Minister of Word and Service for ELCA Lutheran. She met the first other person with JDM only five years ago, and was invited to attend CARRA's Annual Scientific Meeting by Dr. Susan Kim. Barb said that while the CARRA meeting is "a little intense," it's been wonderful to see the consortium of all the different practitioners, organizations, and families working together.

Barb hopes her story gives other patients and caregivers hope. "My impetus is that you can come through this and be a productive member of society. It sucks while you're going through the process, but this is not the end!"


CARRA is now on Social Media!

During the Annual Meeting, please tag CARRA in any photos, posts, or tweets!