Dear CARRA Conference Attendee,
It gives me great pleasure to welcome you to CARRA’s 15th Annual Scientific Meeting in Louisville, Kentucky!
The CARRA meeting is a unique opportunity for pediatric rheumatology researchers and stakeholders to work on collaborative research projects face-to-face while networking with colleagues from around the world.
I would like to extend an especially warm welcome to the pediatric residents, patient/family attendees and our other distinguished guests. You will be learning about our pediatric rheumatology research community as well as helping us at the meeting to perform important and crucial work toward improving the lives and medical care of patients with pediatric rheumatic diseases.
We have several thought provoking and dynamic plenary speakers scheduled:
• Angelo Ravelli (Professor of Pediatrics, University of Genoa and the Giannina Gaslini Institute, Genoa, Italy) and Daniel Solomon (Professor of Medicine, Harvard Medical School and Brigham and Women’s Hospital, Boston), two favorite speakers of the Rheumatology community, will kick off the 2019 Annual Scientific Meeting with a Great Debate on Treat-to-Target as an approach to clinical practice improvement. This promises to be a lively and impactful interaction regarding the state of the field.
• James Witter (NIAMS) and Bryce Reeve (Duke University) are leaders of the PEPR (Pediatric Patient Reported Outcomes in Chronic Diseases ) consortium and will discuss the important work this organization is doing on the development and clinical evaluation of PROs (pediatric patient-reported outcomes) and use of the PROMIS measures (Patient-Reported Outcomes Measurement Information System) to capture the voice and lived experiences of children and their families coping with chronic disease.
• Gary Walco (Professor of Anesthesiology and Pain Medicine at Washington University, Director of Pain Medicine at Seattle Children’s Hospital, and the past Chair of the Pain Committee for CARRA!) is an internationally recognized expert in Pain research and will bring the CARRA community up to date on the rapidly changing State of Pain Research.
As in recent years, there are pre-meeting sessions focused on professional development for Fellows and Early Investigators. Research Coordinators will also meet in a pre-session to discuss project management and site performance and Patients and Family members attending the conference will meet for an orientation session and training on how they can help to further the mission of CARRA.
The Annual Scientific Meeting General Session will commence on Thursday afternoon, followed by a Welcome Reception on Thursday evening sponsored by the Arthritis Foundation. The reception will showcase posters featuring research projects of CARRA members and their colleagues, as well as information about Arthritis Foundation resources and programs.
The core Activities of the meeting, of course, are the concurrent Workgroup sessions on Friday and Saturday. The CARRA Update will be on Friday and is open to all attendees. The CARRA business meeting (open to CARRA members only) on Saturday is particularly important this year as we will be discussing a number of initiatives that will impact the future of CARRA.
The meeting will finish with the Annual CARRA Dinner and Awards when the winners for best abstracts will be announced,
followed by an evening of games and fun in the company of your friends and colleagues!
CARRA would like to extend a huge thank you to the Arthritis Foundation for their ongoing participation and support of CARRA. We are excited to continue and grow our partnership as we work together to improve the lives of children with rheumatic disease.
With the continued support of corporate meeting sponsors, including Novartis, AbbVie, Amgen, and Genentech, our meeting continues to grow in size and value in support of our common goals to meet the needs of pediatric rheumatology patients and the research community of CARRA.
A special thanks from all of us goes to the 2019 Annual Meeting Planning Committee, which includes Stacy Ardoin, MD, MHS, Adam Huber, MD, Laura Lewandowski, MD, Jay Mehta, MD, and Yukiko Kimura, MD (Past President), for putting together a great meeting. We are also grateful to Vincent Del Gaizo and Suz Schrandt for a tremendous amount of work organizing and orienting the patient and family participants in the meeting.
Finally, I would like to thank you all for your work and support for CARRA. It is an honor to serve as President of such an amazing community dedicated to such an important goal. These are incredibly exciting times for CARRA and I look forward to continuing the journey with you.
Robert Fuhlbrigge, MD PhD
President, CARRA, Inc.
The first day saw attendees at the first ultrasound course, several administrative meetings including the Board of Directors and Steering Committee, as well as a fellows meeting.
The Steering Committee enjoyed dinner at RIVUE, and the Fellows enjoyed a networking event with appetizers and games at Tavern on Fourth!
During the Annual Meeting, please tag CARRA in any photos, posts, or tweets!