Meetings & Events

Telehealth: Tools for Successful Registry Visits


The “Telehealth: Tools for Successful Registry Visits” Power Hour webinar kicked off with a review of the literature around telemedicine’s effectiveness and preliminary results from the iPERSONAL study by Steven Balevic. Jon Hausmann discussed the results of his telemedicine survey describing some common barriers faced by physicians and identifying the pGALS as a tool with widespread use. An overview of the video pGALS was given by Helen Foster, outlining how it has been adapted to telemedicine and current validation status. Kristen Hayward then provided a live demonstration of how to conduct a video pGALS. Q&A and a discussion with the speakers & hosts followed.

For those unable to attend, you can watch the recording of the session here. 

To access the presentation slides, click here.

Date: February 25, from 3:30-5pm ET 

CARRA Member Speakers 

Jon Hausmann, MD at Boston Children's Hospital

Stephen Balevic, MD, MHS at Duke University Medical Center

Guest Speakers

Professor Helen Elisabeth Foster, MBBS (Hons), MD, FRCP, FRCPCH, Diploma Child Health, Certificate Clinical Education. Professor Paediatric Rheumatology Newcastle University and Honorary Consultant Newcastle Hospitals NHS Foundation Trust.

Kristen Hayward, MD, MS, Associate Professor Pediatric Rheumatology, Seattle Children's Hospital and University of Washington School of Medicine