Grants & Funding

2016 CARRA-Arthritis Foundation Grant Awardees


Data Analysis Support Grant


Awardee: Suzanne Li
Institution: Hackensack University Medical
Project Title: 3 publications from the juvenile localized scleroderma (jLS) Consensus Treatment Plan (CTP) pilot study data

Awardees: Sarah Ringold & Timothy Beukelman
Institution: Seattle Children's / University of Alabama at Birmingham
Project Title: Sequence of Medication Use in JIA

Awardee: Emily von Scheven 
Institution: University of CA - San Francisco
Project Title: A Pilot Study of Consensus Treatment Plans (CTPs) for Induction Therapy in Childhood Proliferative Lupus Nephritis (cLN)

Large Grant


Awardee: Andrea Knight
Institution: The Hospital for Sick Children
Project Title: The Impact of Mental Health Disorders on Medication Adherence & Health Care Utilization in Youth with Lupus

Awardees: Elizabeth Mellins & Vivian Saper
Institution: Stanford University
Project Title: Clinical and Translational Investigation of Parenchymal Lung Disease in sJIA: a Planning Grant

Small Grant


Awardees: Kaveh Ardalan & Lisa Arkin
Institution: Ann & Robert H. Lurie Children's Hospital / University of Wisconsin-Madison
Project Title: Investigation of Pediatric-onset Discoid Lupus: A Multi-Center Retrospective Cohort Study

Awardee: Mara Becker
Institution: Children's Mercy Kansas City
Project Title: Pharmacogenomic Predictors of MTX Polyglutamation

Awardee: Alexis Boneparth
Institution: Columbia University Medical Center
Project Title: Small Fiber Neuropathy in Juvenile Fibromyalgia

Awardee: Mark Connelly
Institution: Children's Mercy Hospital
Project Title: Registry-Assisted Dissemination of Mobile Pain Management for Youth with Arthritis

Awardee: Jennifer Cooper
Institution: University of Colorado Denver 
Project Title: Predicting Early Atherosclerosis in Childhood-onset Systemic Lupus Erythematosus (PEACE), an APPLE Sub-Study

Awardee: Dierdre De Ranieri
Institution: Ann & Robert H. Lurie Children’s Hospital of Chicago 
Project Title: Subclinical Synovitis in Oligoarticular JIA: A Risk Factor for Polyarticular Disease?

Awardee: Kristen Hayward
Institution: Seattle Children's Hospital
Project Title: Early Investigator Writing Group Pilot Project

Awardee: Jonathan Hausmann
Institution: Boston Children's Hospital
Project Title: Continuous temperature monitoring to improve diagnosis and treatment of PFAPA

Awardee: Linda Hiraki
Institution: The Hospital for Sick Children
Project Title: Discovering genetic variants for early onset and familial lupus in the thousand faces of systemic lupus erythematosus (SLE)

Awardee: Daniel Horton 
Institution: Rutgers, The State University of New Jersey
Project Title: Medication Discontinuation in JIA: Perspective for Patients and Families

Awardee: Amer Khojah
Institution: Ann & Robert H. Lurie Children's Hospital of Chicago
Project Title: Can we predict the effectiveness of B cell depletion after Rituximab therapy in children with juvenile dermatomyositis?

Awardee: Susan Kim
Institution: Harvard University
Project Title: PeDRA-CARRA Collaboration in JDM

Awardee: Susan Kim
Institution: University of CA - San Francisco
Project Title: Crowdsourcing and Improving Assessment of Skin Disease in Pediatric Rheumatology

Awardee: Andrea Knight
Institution: Children's Hospital of Philadelphia
Project Title: Behavioral Health Provider Perspectives on Mental Health Intervention for Youth with SLE

Awardee: Lily Lim
Institution: University of Manitoba
Project Title: Identifying Trajectories of Disease Activity States in Juvenile Idiopathic Arthritis (JIA) Early After Treatment: Shortening Time to Decision to Change Treatment

Awardee: Sherene Mason
Institution: Connecticut Children's Hospital
Project Title: Maintenance Therapy Discontinuation of Mycophenolate Mofetil in Pediatric Proliferative Lupus Nephritis: A Multi-Centered Retrospective Cohort Study

Awardee: Kimberly Morishita
Institution: BC Children's Hospital and University of British Columbia
Project Title: Early Renal Outcomes in Pediatric ANCA Associated Vasculitis

Awardee: Eyal Muscal
Institution: Texas Medical Center
Project Title: Pediatric Autoimmune Encephalitis Network Planning

Awardee: Eyal Muscal
Institution: Texas Children's Hospital, Baylor College of Medicine
Project Title: Developing CTPs and Family-Centered Functional Outcome Measures in Pediatric Autoimmune Encephalitis

Awardee: Tamar Rubinstein
Institution: Children's Hospital at Montefiore
Project Title: Screening for mood disorder in youth with Lupus

Awardee: Anne Stevens
Institution: Seattle Children's Hospital
Project Title: Simultaneous Nutritional Assessment and Microbiotic Phenotyping in Kawasaki Disease

Awardee: Alysha Taxter
Institution: Wake Forest Baptist Health Brenner Children's Hospital
Project Title: Optimizing the electronic health record to capture CARRA data

Awardee: Melissa Tesher
Institution: University of Chicago Comer Children’s Hospital
Project Title: Utility of the Pain Symptom Assessment Questionnaire (PSAQ) in assessing for fibromyalgia in JIA patients

Awardee: Kathryn Torok
Institution: Children's Hospital of Pittsburgh of UPMC
Project Title: Identifying juvenile scleroderma immunophenotype

Awardee: Heather Tory
Institution: Connecticut Children's Hospital
Project Title: Patient Reported Outcomes and Functional Status Measures in JDM: Part 1

Awardee: Marinka Twilt
Institution: Alberta Children's Hospital
Project Title: Improving Care for Children with Autoinflammatory Diseases

Awardee: Patricia Vega Fernandez
Institution: Emory University
Project Title: Limited vs comprehensive standardized musculoskeletal ultrasound examination in Juvenile Idiopathic Arthritis

Awardee: Yongdong Zhao 
Institution: Seattle Children's Hospital
Project Title: Standardized Assessment of the Inflammation in Bone and Soft Tissue in Chronic Nonbacterial Osteomyelitis from MRI Images

Awardee: Yongdong Zhao 
Institution: Seattle Children's Hospital
Project Title: Pilot Study to Develop Urinary Biomarker of Disease Activity in Chronic Nonbacterial Osteomyelitis