Phone: (414) 918-9822    Email: [email protected]

2018 Schedule

 

Printable Schedule (PDF)

Wednesday, April 11, 2018

11:00 am – 6:00 pm            Registration

1:00 pm – 5:00 pm              Pediatric Ultrasound Course - Advanced MSK

4:00 pm – 7:00 pm              Fellows Meeting

7:30 pm – 9:30 pm              Fellows Networking Event

Thursday, April 12, 2018

7:00 am – 6:00 pm              Registration

7:00 am – 7:55 am              Breakfast

7:00 am -- 7:55 am              Research Coordinator Breakfast

8:00 am – 12:00 pm            Pediatric Ultrasound Course - Introduction to MSK

8:00 am – 1:00 pm              Research 101 Course (EIs, Fellows, Coordinators, Small Centers) (Including lunch)

8:00 am – 2:00 pm              TRTC Meeting (Including lunch)

11:30 am – 12:30 pm          Lunch

12:00 pm – 3:30 pm            Fellows Meeting

1:00 pm – 5:00 pm              Research Coordinators: Disease Overviews, JDM/CMAS Workshop, and Understanding Site Metrics

1:00 pm – 3:00 pm              Small Centers Meeting

2:30 pm – 4:30 pm              Early Investigator Meeting – Aims Review Session with Senior Faculty (Research-Focused Career Track)

2:30 pm – 4:30 pm              Early Investigator Meeting – Making Your Work for CARRA Work for You (Clinical Career Track)

3:00 pm - 5:30 pm               Parent/Patient Orientation

3:30 pm - 5:30 pm               Pediatric Residents Orientation

6:00 pm – 7:30 pm              General Session
                                            CARRA Annual Scientific Meeting Opening Session

Dinner on your own

Friday, April 13, 2018                           

7:00 am – 5:30 pm              Registration

6:30 am – 7:30 am              Breakfast

7:30 am - 8:25 am                General Session
                                             "Uveitis Trials in the UK - What We Have Learned From Them"
                                             Professor A.V. Ramanan, FRCPCH, FRCP

8:30 am – 9:20 am              Concurrent Disease Group Research Committee Meetings (6 – 7 committee meetings)  

  • Juvenile Dermatomyositis (JDM) Research Committee Meeting
  • Juvenile Idiopathic Arthritis (JIA) Research Committee Meeting
  • Pain Research Committee Meeting
  • Systemic Lupus Erythematosus (SLE) Research Committee Meeting
  • Scleroderma, Vasculitis, Auto-Inflammatory and Rare Disease (SVARD) Research Committee

9:30 am - 12:30 pm             Concurrent Workgroup Sessions #1    

  • JIA: Inactive Disease
  • JIA: Ultrasound Meeting #1
  • JIA: Uveitis
  • SLE: Mental Health
  • SVARD: Juvenile Scleroderma Working Group (Localized Scleroderma and SCORE)
  • SVARD: Kawasaki Disease
  • SVARD: Sjogren’s Syndrome
  • JDM: Brainstorming JDM in the CARRA Registry
  • Pain: CARRA Pain Research Priorities/Pain in JIA
  • Transition
  • CARRA Wiki Tutorial & Q&As and Introduction to Analyzing CARRA Registry Data for Your Study with R

12:40 pm – 2:00 pm            Lunch

12:40 pm – 2:00 pm            Lunch Meetings

  • Meet with the CTP Advisory Committee

2:15 pm – 5:15 pm              Concurrent Workgoup Sessions #2

  • JIA: Systemic Juvenile Idiopathic Arthritis (sJIA)
  • JIA: Ultrasound Meeting #2
  • JIA: Spondyloarthritis
  • SVARD: Inflammatory Brain Disease
  • SVARD: Juvenile Scleroderma Working Group Systemic Sclerosis
  • SVARD: ANCA-Associated Vasculitis
  • SLE: Nephritis
  • JDM: Biologics in JDM-CTP
  • JDM: Skin Disease & JDM
  • Pain: Decision Support Intervention for Pain Management in JIA
  • Biospecimen Collection (with the TRTC) and CARRA Studies Part 1

5:15 pm                               Parent Regroup

5:15 pm                               Coordinator Regroup

6:00 pm – 7:00 pm              General Session
                                             Enhancing Members' Conception of Patient-Centered Research

                                             “The Win-Win of Advocacy: Empowering Patients and Families To Take Part”
                                             Jennifer Horonjeff, PhD

                                             "#WeAreNotWaiting: Solving the Problem as a Patient"
                                              Dana Lewis, Founder, #OpenAPS

7:00 pm - 10:00 pm             AF-Sponsored Welcome & Poster Reception

Saturday, April 14, 2018

7:00 am – 6:00 pm              Registration

7:00 am – 7:55 am              Breakfast

  • Coordinator/Small Centers Breakfast
  • AMIGO Networking Breakfast

8:00 am – 8:50 am              General Session
                                            “Putting Names to Faces: Defining Pathologic Cell Functions in Rheumatic Diseases”
                                            Deepak Rao, MD, PhD

9:00 am – 12:00 pm            Concurrent Workgroup Session #3

  • JIA: Ultrasound Meeting #3
  • JIA: TMJ Interest Group
  • JIA: Outcomes
  • SLE: Dermatology
  • SVARD: CNO/CRMO
  • SVARD: PFAPA Work Group
  • JDM: Calcinosis in JDM
  • JDM: Quality Measures Workgroup
  • Pain: Epidermal Nerve Fiber Density in Juvenile Fibromyalgia
  • CARRA Studies Part 2
  • CARRA Site Feedback Report and Introduction to Analyzing CARRA Registry Data for Your Study with R

12:05 pm – 12:50 pm          Lunch

12:05 pm – 12:50 pm          Lunch Meetings

  • CARRA Auto-Inflammatory Registry Meeting
  • TRTC Meeting
  • STOP-JIA Stakeholders Advisory Council Meeting

1:00 pm – 2:15 pm              General Session
                                             CARRA Data: Stories of Success and Opportunities for Your Research

2:30 pm - 4:00 pm               CARRA Business Meeting (CARRA members, only)

4:15 pm – 6:00 pm              Concurrent Research Committee Meetings (I)

  • Juvenile Dermatomyositis (JDM) Research Committee Meeting
  • Juvenile Idiopathic Arthritis (JIA) Research Committee Meeting
  • Pain Research Committee Meeting
  • Systemic Lupus Erythematosus (SLE) Research Committee Meeting
  • Scleroderma, Vasculitis, Auto-Inflammatory and Rare Disease (SVARD) Research Committee

7:00 pm – 10:00 pm            CARRA Dinner & Line Dancing

Sunday, April 15, 2018

6:30 am – 7:30 am              Breakfast                                      

6:30 am – 7:30 am              Coordinator Breakfast

7:30 am – 10:00 am            Plenary Session, Final Thoughts