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CARRA Related Abstracts at ACR

Below are CARRA related abstracts that will be presented at the ACR Meeting. Click the title for more information about each abstract.

SUNDAY, OCTOBER 21
9:00 – 11:00AM

B Cell Biology and Targets in Autoimmune and Inflammatory Disease Poster

Abstract 17: Kappa-Deleting Recombination Excision Circles (KREC) in B Cells and Serum B Cell Activating Factor (BAFF): Possible Aids in Predicting Juvenile Dermatomyositis Response to Rituximab

Amer Khojah1,2, Victoria Hans3, Wilfredo Marin4, Gabrielle A. Morgan4 and Lauren M. Pachman5,6,7,

1Division of Pediatric Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, 2Division of Pediatric Allergy Immunology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, 3Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, 4Cure JM Program of Excellence in Myositis Research, Stanley Manne Children’s Research Institute, affiliated with Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, 5Cure JM Program of Excellence in Juvenile Myositis Research, Stanley Manne Children’s Research Institute, affiliated with Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, 6Pediatric Rheumatology, Northwestern University Feinberg School of Medicine, Chicago, IL, 7Rheumatology/Immunology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL

Funded by a CARRA-Arthritis Foundation Grant

Pediatric Rheumatology – Clinical Poster I: Lupus, Sjögren’s Disease, and Myositis

Abstract 460: Immunomodulatory Medication Use for Youth with Newly-Diagnosed Systemic Lupus Erythematosus.

Alaina M. Davis1, Marisa S. Klein-Gitelman2, Jennifer Faerber3, Hannah Katcoff4, Zuleyha Cidav5, David Mandell6 and Andrea M. Knight7

1Division of Pediatric Rheumatology, Monroe Carell Junior Children's Hospital at Vanderbilt, Nashville, TN, 2Division of Pediatric Rheumatology/PDD PTD, Lurie Children's Hospital of Chicago/Northwestern University, Chicago, IL, 3Division of General Pediatrics, Center for Pediatric Clinical Effectiveness, The Children’s Hospital of Philadelphia, Philadelphia, PA, 4Center for Pediatric Clinical Effectiveness, The Children’s Hospital of Philadelphia, Philadelphia, PA, 5Perelman School of Medicine, Center for Mental Health Policy and Services Research, University of Pennsylvania, Philadelphia, PA, 6Psychiatry and Pediatrics, Center for Mental Health Policy and Services Research, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, 7Division of Rheumatology, Center for Pediatric Clinical Effectiveness & PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA

Funded by a CARRA-Arthritis Foundation Grant

Abstract 462: Steroid Use in Pediatric Proliferative Lupus Nephritis 

Nathalie Chalhoub1, Jianghong Deng2, Natasha M. Ruth3, Stacy P. Ardoin4, Mileka Gilbert5, Theresa Hennard6, Linda Hiraki7, Paul T. Jensen8, Andrea M. Knight9, Rebecca Kunder10, Laura Lewandowski11, Siok Hoon Lily Lim12, Angela Merritt13, Sonia Iqbal Savani14, Mary Beth Son15, Emily von Scheven16, Scott E. Wenderfer17 and Hermine I. Brunner6

1Division of Immunology, Allergy, and Rheumatology, University of Cincinnati College of Medicine, Cincinnati, OH, 2Division of Rheumatology, Beijing Children’s Hospital and Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3Rheumatology, Medical University of South Carolina, Charleston, SC, 4Division of Rheumatology, Nationwide Children’s Hospital, Columbus, OH, 5Pediatric Rheumatology, Medical University of South Carolina, Charleston, SC, 6Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 7Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada, 8Internal Medicine, The Ohio State University Wexner Medical Center, Columbus, OH, 9Division of Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA, 10Gilead Sciences, Inc, Redwood City, CA, 11NIAMS/NIH, Bethesda, MD, 12Children's Hospital Research Institute of Manitoba, University of Manitoba, Winnipeg, MB, Canada, 13Pediatric Rheumatology, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 14Medical University of South Carolina, Charleston, SC, 15Boston Children's Hospital, Harvard Medical School, Brookline, MA, 16Pediatric Rheumatology, University of California San Francisco, San Francisco, CA, 17Pediatrics-Renal, Baylor College of Medicine, Houston, TX

Abstract 467: The Prevalence and Clinical Features of Co-Occurring Autoimmunity in Children with Systemic Lupus Erythematosus: The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Legacy Registry

Ohoud AlAhmed1, Vidya Sivaraman2, Melissa Moore-Clingenpeel3, Stacy P. Ardoin4 and Sharon Bout-Tabaku5

1Pediatric Rheumatology, Nationwide Children's Hospital, Columbus, OH, 2Pediatrics, The Ohio State University, COLUMBUS, OH, 3Research, Nationwide Children's Hospital, Dublin, OH, 4Division of Rheumatology, Nationwide Children’s Hospital, Columbus, OH, 5Rheumatology, Nationwide Children's Hospital, Columbus, OH

Abstract 468: Baseline Features and Outcomes of Pediatric-Onset Discoid Lupus Erythematosus: Interim Data Analysis of a Multicenter Retrospective Cohort Study

Lisa Arkin1, Kevin A. Buhr2, Cordellia Nguyen3, Heather Brandling-Bennett4, Leslie Castelo-Soccio5, Yvonne Chiu6, Benjamin F. Chong7, Lucia Diaz8, Marisa S. Klein-Gitelman9, Amy Paller10, Jennifer Schoch11, Emily von Scheven12, Victoria P. Werth13, Julie Grossman-Kranseler14, Andrew D. Hudson15, Erin M. Ibler16, Mariana C. Marques17, Reesa L. Monir11, Elana Putterman18 and Kaveh Ardalan19

1Departments of Dermatology and Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, WI, 2Department of Biostatistics & Medical Informatics, University of Wisconsin School of Medicine and Public Health, Madison, WI, 3University of Wisconsin School of Medicine and Public Health, Madison, WI, 4Division of Dermatology; Department of Pediatrics, Seattle Children’s Hospital/University of Washington School of Medicine, Seattle, WA, 5Pediatrics, Section of Dermatology, Children's Hospital of Philadelphia, Philadelphia, PA, 6Pediatrics and Dermatology, Medical College of Wisconsin, Milwaukee, WI, 7Dermatology, University of Texas Southwestern Medical Center, Dallas, TX, 8Department of Pediatrics, Division of Dermatology, Dell Children’s Hospital, Austin, TX, 9Department of Pediatrics, Division of Rheumatology, Northwestern University Feinberg School of Medicine/Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, 10Departments of Dermatology and Pediatrics, Northwestern University Feinberg School of Medicine/Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, 11Department of Dermatology, University of Florida School of Medicine, Gainesville, FL, 12Department of Pediatrics, Division of Rheumatology, University of California at San Francisco, San Francisco, CA, 13Department of Dermatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, 14Departments of Pediatrics, Division of Dermatology, University of Washington School of Medicine, Seattle, WA, 15Texas Tech University Health Sciences Center School of Medicine, Lubbock, TX, 16Departments of Dermatology and Pediatrics, Medical College of Wisconsin, Milwaukee, WI, 17Division of Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, 18Children’s Hospital of Philadelphia, Department of Pediatrics, Section of Dermatology, Children’s Hospital of Philadelphia, Philadelphia, PA, 19Departments of Pediatrics and Medical Social Sciences, Division of Rheumatology, Northwestern University Feinberg School of Medicine/Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL

Funded by a CARRA-Arthritis Foundation Grant

Abstract 470: Pro-Inflammatory High Density Lipoprotein Function Is Associated with Accelerated Carotid Intimal Medial Thickness Progression in Childhood-Onset SLE.

Jennifer C. Cooper1, Stacy P. Ardoin2, Emily von Scheven3, Laura E. Schanberg4, Brian Skaggs5 and Maureen A. McMahon6

1Pediatrics, Division of Rheumatology, University of California, San Francisco, San Francisco, CA, 2Division of Rheumatology, Nationwide Children’s Hospital, Columbus, OH, 3Pediatric Rheumatology, University of California San Francisco, San Francisco, CA, 4Duke University Medical Center, Durham, NC, 5Rheumatology, UCLA David Geffen School of Medicine, Los Angeles, CA, 6University of California, Los Angeles, Los Angeles, CA

Funded by a CARRA-Arthritis Foundation Grant

Abstract 482: The Association of Short-Term Ultraviolet Radiation Exposure and Calcinosis in Juvenile Dermatomyositis in the Childhood Arthritis & Rheumatology Research Alliance Registry 

Jessica Neely1, Craig S. Long2, Hugh Sturrock3 and Susan Kim4

1Pediatric Rheumatology, University of California, San Francisco, San Francisco, CA, 2National Oceanic and Atmospheric Administration (NOAA)/Climate Prediction Center, College Park, MD, 3Epidemiology and Biostatistics, University of California, San Francisco, San Francisco, CA, 4Pediatric Rheumatology, University of California, San Francisco School of Medicine, San Francisco, CA


SUNDAY, OCTOBER 21
4:30 – 6:00PM

3S115 ACR/ARHP Abstract: Pediatric Rheum (976–981)

Abstract 979: Stopping Medicines for Inactive Juvenile Idiopathic Arthritis: What Do Patients and Families Consider? 

Daniel B. Horton1,2, Jomaira Salas3, Aleksandra Wec4, Timothy Beukelman5, Alexis Boneparth6, Jaime Guzman7, Ky Haverkamp8, Melanie Kohlheim9, Melissa L. Mannion5, Nandini Moorthy1, Elizabeth Stringer10, Lori Tucker7, Sarah Ringold11 and Marsha Rosenthal2

1Pediatrics, Rutgers Robert Wood Johnson Medical School, New Brunswick, NJ, 2Rutgers Institute for Health, Health Care Policy and Aging Research, New Brunswick, NJ, 3Department of Sociology, Rutgers, the State University of New Jersey, New Brunswick, NJ, 4Mathematica Policy Research, Princeton, NJ, 5Pediatrics, University of Alabama at Birmingham, Birmingham, AL, 6Pediatrics, Columbia University Medical Center, New York, NY, 7Rheumatology, BC Children's Hospital and University of British Columbia, Vancouver, BC, Canada, 8Family Medicine, University of Washington School of Medicine, Seattle, WA, 9Pediatric Rheumatology Care and Outcomes Improvement Network, Cincinnati, OH, 10IWK Health Centre, Dalhousie University, Halifax, NS, Canada, 11Pediatrics, Seattle Children's Hospital, Seattle, WA

Funded by a CARRA-Arthritis Foundation Grant


MONDAY, OCTOBER 22
9:00 – 11:00AM

Pediatric Rheumatology – Clinical Poster II: Autoinflammatory Disorders, Scleroderma, and Miscellaneous

Abstract 1422: Impact of Juvenile Localized Scleroderma on Longitudinal Quality of Life 

Vidya Sivaraman1, Kathryn S. Torok2, Melissa Moore-Clingenpeel3, Fatma Dedeoglu4, Polly Ferguson5, Elena Pope6, Thomas G. Mason II7, Mara L Becker8, Gloria Higgins9, C. Egla Rabinovich10, Sandy Hong11, Maria Ibarra12, Ronald M. Laxer13, Robert Fuhlbrigge14, Katie Stewart15, Marilynn Punaro16 and Suzanne Li17

1Nationwide Children’s Hospital and The Ohio State University, Columbus, OH, 2Pediatric Rheumatology, University of Pittsburgh Med Ctr, Pittsburgh, PA, 3Research, Nationwide Children's Hospital, Dublin, OH, 4Rheumatology, Boston Children's Hospital, Boston, MA, 5Pediatrics, University of Iowa, Iowa City, IA, 6Section of Dermatology, The Hospital for Sick Children, Hospital for Sick Children, Toronto, ON, Canada, 7Division of Rheumatology - Department of Medicine, Mayo Clinic Rochester, Rochester, MN, 8Rheumatology, Children's Mercy Kansas City, Kansas City, MO, 9Pediatrics and Rheumatology, Nationwide Children's Hospital and The Ohio State University, Columbus, OH, 10Duke University Medical Center, Durham, NJ, 11Pediatrics-Rheumatology, U of Iowa Children's Hosp, Iowa City, IA, 12Children's Mercy Hospital, Kansas City, MO, Kansas City, MO, 13Div of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, 14Children's Hospital Colorado, Aurora, CO, 15UT Southwestern, Dallas, TX, 16Texas Scottish Rite Hospital for Children, Dallas, TX, 17Pediatrics, Hackensack University Medical Center, Hackensack, NJ

Abstract: 1430: Research Priorities for Addressing Mental Health Needs of Pediatric Patients with Rheumatologic Disease.

Tamar Rubinstein1, Lindsay Waqar2, Jennifer Woo3, Ekemini Ogbu4, W. Blaine Lapin5, Lawrence Ng6, Erin Treemarcki7 and Andrea M. Knight8

1Pediatric Rheumatology, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, 2Children's Hospital of Philadelphia, Philadelphia, PA, 3University of California Los Angeles, Los Angeles, CA, 4Pediatrics, Emory University, Atlanta, GA, 5Baylor College of Medicine, Houston, TX, 6The Hospital for Sick Children, Toronto, ON, Canada, 7Hospital for Special Surgery Weill Cornell Medical College, New York, NY, 8Center for Pediatric Clinical Effectiveness & PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA

Abstract 1432: Engaging Patients and Parents to Improve Mental Health for Youth with Rheumatologic Disease

Oluwatunmise Fawole1, Michelle Vickery2, Lauren Faust3, Tamar Rubinstein4, Julia Harris5, Aimee O. Hersh6, Karen Onel7, Erica Lawson8, Emily von Scheven9, Kaveh Ardalan10, Esi Morgan11, Anne Paul12, Judith Barlin13, R. Paola Daly13, Mitali Dave14, Shannon Malloy15, Shari Hume15, Suzanne Schrandt16, Laura C. Marrow17, Angela Chapson3, Donna Napoli3, Michael Napoli3, Miranda Moyer3, Rachel Adamski3, Vincent Del Gaizo18, Martha Rodriguez19 and Andrea M. Knight20

1The Children's Hospital of Philadelphia, Philadelphia, PA, 2Hershey Medical Center, Hershey, PA, 3Children's Hospital of Philadelphia, Philadelphia, PA, 4Pediatric Rheumatology, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, 5Children's Mercy - Kansas City, Kansas City, MO, 6Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT, 7Division of Pediatric Rheumatology, University of Chicago, Chicago, IL, 8Pediatrics/Rheumatology, University of California, San Francisco, San Francisco, CA, 9Pediatric Rheumatology, University of California San Francisco, San Francisco, CA, 10Division of Rheumatology; Department of Pediatrics, Ann & Robert H. Lurie Children’s Hospital of Chicago/Northwestern University Feinberg School of Medicine, Chicago, IL, 11University of Cincinnati, Cincinnati, OH, 12Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 13Lupus Foundation of America, Washington, DC, 14Cure JM Foundation, Encintas, CA, 15Cure JM Foundation, Encinitas, CA, 16Arthritis Foundation, Saint Paul, MN, 17Arthritis Foundation, Atlanta, GA, 18Parent Partner, Whitehouse Station, NJ, 19Riley Children’s Hospital at Indiana, Indianapolis, IN, 20Center for Pediatric Clinical Effectiveness & PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA

Funded by a CARRA-Arthritis Foundation Grant


MONDAY, OCTOBER 22
2:30 – 4:00PM

4M084 ACR Abstract: Pediatric Rheum–Clinical I: Outcomes & Comorbidities (1846–1851)

Abstract 1847: Screening Youth with Lupus for Depression and Anxiety in Pediatric Rheumatology Clinics

Tamar Rubinstein1, Marija Dionizovik-Dimanovski2, Chelsey Smith3, Raphael Kraus4, Jordan T. Jones5, Julia Harris6, Martha Rodriguez7, Lauren Faust8, Beth Rutstein8, Rebecca Puplava9, Melissa Tesher9, Alaina M. Davis10, Karen Onel11, Sangeeta Sule12, Emily von Scheven13 and Andrea M. Knight14

1Pediatric Rheumatology, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, 2Pediatric Rheumatology, Children's Hospital at Montefiore, Bronx, NY, 3Children's Mercy Kansas City, Kansas City, MO, 4Children's Hospital at Montefiore, Bronx, NY, 5University of Kansas, Kansas City, KS, 6Children's Mercy - Kansas City, Kansas City, MO, 7Riley Children’s Hospital at Indiana, Indianapolis, IN, 8Children's Hospital of Philadelphia, Philadelphia, PA, 9University of Chicago Medicine, Chicago, IL, 10Division of Pediatric Rheumatology, Monroe Carell Junior Children's Hospital at Vanderbilt, Nashville, TN, 11Hospital for Special Surgery, New York, NY, 12Pediatrics, Johns Hopkins University, Baltimore, MD, 13Pediatric Rheumatology, University of California San Francisco, San Francisco, CA, 14Center for Pediatric Clinical Effectiveness & PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA

Funded by a CARRA-Arthritis Foundation Grant


TUESDAY, OCTOBER 23
9:00 – 11:00AM

Pediatric Rheumatology – Clinical Poster III: Juvenile Idiopathic Arthritis and Uveitis

Abstract 2385: The Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA Study: Updated Report of Baseline Patient Characteristics and Treatment Choices.

Sarah Ringold1, George A. Tomlinson2, Pamela F. Weiss3, Laura E. Schanberg4, Mary Ellen Riordan5, Anne C. Dennos6, Vincent Del Gaizo7, Katherine Murphy8, Brian M. Feldman9 and Yukiko Kimura5

1Pediatric Rheumatology, Seattle Children's Hospital, Seattle, WA, 2Institute for Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada, 3Division of Rheumatology, Center for Pediatric Clinical Effectiveness, Children's Hospital of Philadelphia, Philadelphia, PA, 4Duke University Medical Center, Durham, NC, 5Hackensack University Medical Center, Hackensack, NJ, 6Duke Clinical Research Institute, Durham, NC, 7Parent Partner, Whitehouse Station, NJ, 8Parent Partner, San Francisco, CA, 9Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada


WEDNESDAY, OCTOBER 24
11:00 – 12:30PM

6W019 ACR Abstract: Measures of Healthcare Quality II: QI in SLE, Gout & JIA (2958–2963)

Abstract 2961: Differences in Healthcare Transition Views, Practices, and Barriers Among North American Pediatric Rheumatology Providers from 2010 to 2018

Kiana Johnson1, Cuoghi Edens2, Peter Chira3, Aimee O. Hersh4, Y. Ingrid Goh5, Joyce Hui-Yuen6, Rebecca E. Sadun7, Nora G. Singer8, Lynn R. Spiegel9, Jennifer N. Stinson10, Patience H. White11 and Erica Lawson12

1Department of Pediatrics, East Tennessee State University, Johnson City, TN, 2Division of Pediatric Infectious Diseases and Rheumatology and Division of Rheumatology, Rainbow Babies and Children's Hospital and University Hospitals Cleveland Medical Center, Cleveland, OH, 3Pediatric Rheumatology, Rady Children's Specialists of San Diego, San Diego, CA, 4Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT, 5Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada, 6Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY, 7Adult and Pediatric Rheumatology, Duke University Medical Center, Durham, NC, 8Departments of Medicine and Pediatrics, Division of Rheumatology, MetroHealth Medical Center, Cleveland, OH, Cleveland, OH, 9Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada, 10Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada, 11Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC, 12Pediatrics/Rheumatology, University of California, San Francisco, San Francisco, CA