Newsletter: February 7, 2017

What Caught Our Eye

You’re Asking Me?!?!?
By Harry Gewanter, MD, FAAP, FACR


Harry Gewanter, MD, FAAP, FACR"Isn’t there something natural or a diet we can use instead of these poisons?" This is a question all of us hear on a regular basis. And while we may believe we are recommending treatments utilizing the best evidence that may not be the perception of some families. It is understandable that the parental desire to protect their child results in appropriate anxiety and fear over what they may believe to be overaggressive, or even experimental, treatment regimens.
Read more...

The History and Future of Pediatric Rheumatology via CARRA

CARRA’s Chair and Past Chair (Yuki Kimura and Laura Schanberg) recently published an article highlighting the history of CARRA and the future of pediatric rheumatology. Read it now in The Rheumatologist.

Congratulations to CARRA Large Grant Awardees

CARRA is excited to announce the award recipients for our first large grants. Applications were received and evaluated by a 5-member review panel who made recommendations to the Executive Committee (EC) and Guy Eakin of the Arthritis Foundation. The following two applications were selected to receive $50,000 awards:
  • “The Impact of Mental Health Disorders on Medication Adherence & Health Care Utilization in Youth with Lupus”: Andrea Knight, PI
  •  “Clinical and translational investigation of parenchymal lung disease in sJIA: A planning grant”: Betsy Mellins & Vivian Saper, co-PIs
CARRA will continue with the large grants program in 2017. The deadline for the next round of large grants will be December 1, 2017. Check the CARRA website for details on other funding opportunities.

Important Opportunity for Early Investigators and Fellows: The Utrecht Summer School Program Sponsorship Program

CARRA is pleased to announce an exciting opportunity for 2 early investigators to receive sponsorship to participate in the Utrecht summer school program course entitled “Why Translational Medicine Fails – And What to do About it.” Fellows with established translational research interests will also be considered for this opportunity. The course will take place July 3 – July 7, 2017 in Utrecht, Netherlands. Deadline to apply is March 8. For more information, click here.

Reminder: Renew your CARRA Membership by February 20

This year, all members (including trainee, research associate, and emeritus members who do not pay membership dues) must renew their memberships no later than February 20, 2017 in order to be eligible for travel support to the CARRA annual meeting and to avoid any applicable late fees. In addition to paying any applicable membership dues, we need you to verify your current contact information and answer a few questions.

Emails with renewal instructions were sent out to all members on January 20, 2017 from “[email protected]” Please see the CARRA website for more information and contact Jon Gilmore at [email protected] with questions about renewing your CARRA membership.

CARRA Annual Scientific Meeting Updates

  • Registration for the 2017 CARRA Annual Scientific Meeting will launch on February 28.  
  • CARRA members may reserve their hotel rooms now by clicking here
  • Industry supporters, please make your reservations via the hotel’s main reservation website and do not reserve within the CARRA room block at this time. 
  • The deadline for applications to the CARRA Pediatric Residents program is February 15.
  • Check the CARRA website for additional information and further updates.
Receiving Unwanted Emails from the CARRA Wiki?

The new CARRA members-only collaboration site (wiki.carragroup.org) is a great way to work with other CARRA members. The site is built to alert you to new content, changes, and events by email so you don’t have to be logged in all the time to see what’s going on. However, the quantity of email it sends you can be overwhelming. Click here to find out how to control your email from the site.

CARRA Registry Updates

CARRA Registry
The CARRA Registry is enrolling children with new onset JIA in addition to children who have started a new arthritis medication. Currently we have 2560 subjects enrolled.

STOP-JIA (Start Time Optimization of biologics in Poly-JIA)
  • 138 of 400 subjects enrolled

FROST (FiRst Line Options in Systemic JIA Treatment)

  • 32 sites are approved to enroll
  • 4 of 200 subjects enrolled
PLEASE CONTINUE TO BE ON THE ALERT FOR NEW POLY JIA AND SYSTEMIC JIA PATIENTS if you are participating in STOP-JIA or FROST.

Click here for more detailed information about site enrollment!
 
Arthritis Foundation Local Leaderboards
In communities nationwide, the Arthritis Foundation is working with local volunteers to build Leadership Boards to achieve our goals in fundraising, volunteer engagement, advocacy, juvenile arthritis and other pediatric rheumatic diseases, and help and support. To get involved on your Local Leadership Board, please contact your local Arthritis Foundation staff.
 
2017 JA Conference Announcements
Save The Date for the Arthritis Foundation's 2017 National Juvenile Arthritis Conferences! 2017 JA Conference Houston, Texas – July 13-16, 2017 and 2017 JA Conference Indianapolis, Indiana – August 10-13, 2017. Scholarship applications will open this month, and Registration will open in early February!
Connect with CARRA!
Follow us on Twitter, LinkedIn, and carragroup.org
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