June 20, 2016  

What Caught Our Eye
by Brian M. Feldman, MD, MSc

We often hear of the glass ceiling that prevents the rise of women in academic medicine. In 2016, there is still much gender inequality in the world, as the UN clearly pointed out late last year. I’m old enough to remember the iconic “bra-burning” episodes in the 1960s; while much has been achieved, it’s remarkable how far we still have to go.

However, in academic medicine one would have hoped that we had solved the issues of gender inequality; so many new doctors are women. In fact, in some states and provinces more the half of the medical class is female. In North America, our governments are committed to gender equality. Especially in pediatric rheumatology, one would hope that gender equality has been achieved.

Read more...

CARRA News & Announcements

Small Centers Vice Chair Election: VOTE* BY June 27th!
We have 5 candidates for the position of Small Centers Vice Chair position:

  • Theresa Wampler Muskardin, MD
  • Simona Nativ, MD
  • Kara Murphy Schmidt, MD
  • Arzu Soybilgiç, MD
  • Ali Yalcindag, MD
The candidates’ personal statements and biographical sketches are available for review here.

*All CARRA voting members must participate in elections to remain members “in good standing”. You will be asked to provide your name so that we can track members’ participation in elections. All votes remain confidential, and members from large sites (sites with more than three pediatric rheumatologists) will be given the option to opt out of voting. Election information and the voting survey link were emailed from [email protected] via SurveyMonkey on June 13. If you did not receive the email, please click here to participate. Voting will close on Monday, June 27th (5 PM PST, 8 PM EST).

Member Publication Spotlight
The June 2016 issue of Provider Magazine features an article on long-term care residents with arthritis by W. Benjamin Nowell, PhD, Peter A. Merkel, MD,  and CARRA members Laura E. Schanberg, MD, and Jeffrey R. Curtis, MD. The article is entitled “Reenergizing Research While Improving Patient Care.”

New CARRA Sub-Committee to Address Disparities in Research
Laura Lewandowski is interested in creating a sub-committee to address racial disparities in pediatric rheumatology research. In April, there were conversations about the challenges of recruiting patients from a wide array of SES, race, and education levels. This often leads to a skewing of the recruited patients. Until the issue is addressed systematically, the current recruitment patterns are unlikely to change. Laura would like to create a subcommittee to address this issue and is looking for a few other interested members to join her. If you are interested in joining this effort or have further questions, please contact Laura at [email protected].


Registry Update
Registry Enrollment: 1,389
STOP-JIA Enrollment: 41
Next STOP-JIA milestone: 54 subjects

New sites now approved to enroll!
- PI Deborah McCurdy and SC Jennifer Woo at Mattel Children's Hospital at University of California Los Angeles
- PI Kenneth Schikler and SC Kristin Klein at University of Louisville
- PI Richard Vehe and SC Leif Olson at University of Minnesota
- PI Sampath Prahalad and SC Lori Ponder at Emory-Children's Center
- PI Donald Goldsmith at Saint Christopher's Hospital for Children

Enrollment milestones
First subject
- PI Sivia Lapidus and SC Marie Fox at Goryeb Children's Hospital
- PI Mark Hoeltzel and SC Danielle Trejo at University of Michigan

50th subject
- Timothy Beukelman and Nazma Chowdhury at UAB

Workgroup Updates

The Transition Work Group, led by Erica Lawson, Aimee Hersh, and Peter Chira, is focused on conducting a qualitative transition needs assessment, the Transition Virtual Focus Group, and evaluating a recently-developed transition intervention, the iPeer2Peer virtual mentoring program.
Read more…

Early Investigators

Pediatric Rheumatology European Society Young Investigator Meeting Grant Awarded
The Early Investigator group is excited to announce that Sri Grevich, from Seattle Children’s Hospital, and Michael Ombrello, from the NIH, have been selected to receive travel grants to present their work at the Pediatric Rheumatology European Society Young Investigator Meeting in Genoa, Italy in September. Sri’s abstract is entitled “Oral Health and Anti-Citrullinated Peptide Antibodies in JIA”. Michael’s abstract is entitled “Genetic Architecture Distinguishes sJIA from Oligoarticular or Polyarticular JIA.” During the PReS Young Investigator Meeting, Jay Mehta will also be giving a talk on the work that the CARRA Early Investigator group is doing. This is part of CARRA’s efforts to create productive relationships with other international pediatric rheumatology research organizations. 

Grants and Funding

Information on CARRA grants is now available!
CARRA offers members various funding opportunities to further research that leverages the CARRA network and positively impacts the pediatric rheumatology scientific community and advances the CARRA mission. Additional information for the different grant opportunities, including the application instructions and templates, is now available on the website.

Cure JM Foundation 2016 Funding Opportunity
The Cure JM Foundation will fund research or educational awards in two different cycles in 2016. The vision of Cure JM includes increasing awareness of juvenile myositis and funding research in juvenile myositis that will ultimately lead to a cure. Proposals will be accepted through August 31st, 2016. Each cycle will fund a maximum of three different proposals for up to $50,000 each. Read more…

Arthritis Foundation News

2016 National JA Conference
The Arthritis Foundation’s annual Juvenile Arthritis Conference is where kids, teens, young adults and their families come together from across the world to get better informed about juvenile arthritis and other childhood rheumatic diseases.


Massage Envy’s #HugDrive
Tweet a Virtual Hug on Father’s Day to Benefit the Arthritis Foundation. This Father’s Day, your hug can benefit those with arthritis thanks to generous support from Massage Envy.

Local Connections
The Arthritis Foundation has camps and family events across the country that provide kids and teens and their families the opportunity to network, learn and play with others in their local community.  


Local Leadership Board
In communities nationwide, the Arthritis Foundation is working with local volunteers to build Leadership Boards to achieve our goals in fundraising, volunteer engagement, advocacy, juvenile arthritis and other pediatric rheumatic diseases, and help and support.


Read more...

Connections
ACR Call for Abstracts
The 2016 abstract submission cycle for the American College of Rheumatology meeting will close at noon ET on Tuesday, June 21. For more information, review the submission guidelines. ​

NCCIH’s New Strategic Plan: Exploring the Science of Complementary and Integrative Health
NCCIH has released its fourth Strategic Plan, Exploring the Science of Complementary and Integrative Health, which outlines the Center’s strategic direction in complementary and integrative health research.


Save the date for the 2nd Global Conference on Myositis, May 5-8, 2017
The conference will take place at the William F. Bolger Center in Potomac, MD. This year's event will feature interdisciplinary scientific presentations of state-of-the-art research in all areas of myositis, with a focus on trainees and young investigators and input from myositis patient support group leaders. The abstract submission deadline is December 16, 2016. Information on registration & fees will be published soon. 

Scleroderma Foundation National Patient Education Conference
Scleroderma Foundation announces the National Patient Education Conference in New Orleans, July 29-31. Any child, a patient or a sibling of a patient, is welcome to join the program. If the child has received a scholarship in the last three years, he/she is not eligible for another scholarship at this time. There will be programming for children, as well as workshops geared toward adults who have a juvenile patient in their lives. For more information on the conference please call Ryan Burrill at 800-722-HOPE (4673) or email him at [email protected]. Visit the conference website at www.scleroderma.org/conference.

Are you active on Twitter?  Follow @carra_inc for more news and announcements. 
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