June 3, 2016  

What Caught Our Eye

What is our role in tackling mental health disparities in kids with rheumatologic diseases?
By Tamar Rubinstein, MD, MS

A month ago, the CDC came out with a report about a recent increase in suicides in the United States. The most disturbing trend was an increase of 200% among girls age 10-14 from 1999 to 2014. This statistic was quickly picked up by news outlets across the country. I heard it on NPR on my morning drive to work.

But what about our kids? Are we sufficiently treating our patients in pediatric rheumatology for depression and anxiety? Are we sufficiently identifying them in the first place? In a study just released in The Journal of Rheumatology, the authors (Andrea Knight, Ming Xie, and David S. Mandell) examine some of our most vulnerable patients and find that certain groups may be falling through the cracks.


CARRA News & Announcements

Election Reminder: Small Centers Vice Chair
Note: The deadline for nominations for Small Centers Vice Chair has been extended to June 6. The Elections Committee is accepting application materials for the CARRA Small Centers Vice Chair. Nominees must be current voting members from a CARRA small center (3 or fewer pediatric rheumatologists). Visit the CARRA website for more information and to nominate yourself or someone else for this role.

sJIA with Pulmonary Disease
Important study announcement!  Participate in a study to better understand the clinical characteristics and other factors in sJIA patients whose course has been complicated by pulmonary disease. Click here for information or contact Michal Cidon, [email protected].

Save the Date for CARRA's 2017 Annual Meeting! 
PRSYM 2017 meetings will be held May 15-17 & May 18-21, 2017, in Houston, TX. 
Registry Update

1,300 subjects are enrolled in the CARRA Registry. 40 subjects are enrolled in STOP-JIA. Congratulations to the following sites for reaching enrollment milestones:

First subject
- PI James Birmingham and SC Staci Roberson at West Michigan Rheumatology

5 subjects
- PI Ali Yalcindag and SC Paula Charpentier at Hasbro Children's Hospital 
- PI Jordan Orange and SC Chivon McMullen-Jackson at Baylor College of Medicine  
- PI Natasha Ruth and SC Katie Mimsand at Medical University of South Carolina Children's Hospital

25 subjects
PI Thomas Graham and SC Rosemary Sanders at Monroe Carell Jr. Children's Hospital at Vanderbilt

Monthly Site Call
Thursday, June 9th, at 12 pm EST via WebEx

Meeting number 733 720 071, password CARRA
Join by phone: 1-855-244-8681 (toll-free US/Canada) or 1-650-479-3207 (toll US/Canada)
Access code: 733 720 071

Research Spotlight

Young people with rheumatic and other chronic diseases often face a challenging transition from pediatric to adult health care. In a recent paper authored by CARRA members Patience White, MD, and Stacy Ardoin, MD  (Transitioning Wisely: Improving the connection from pediatric to adult health care. Arthritis & Rheumatology (2016)), the authors examine recent literature about the transition to adult care for youth with rheumatic conditions. Providers need resources to help smooth the transition process in pediatric and adult primary and specialty care settings. Read more…

Grant Mentoring Program for Early Career Investigators

The United States Bone and Joint Initiative (USBJI) and Bone and Joint Canada are dedicated to increasing research of musculoskeletal diseases.  The USBJI has developed a grant mentoring program to provide early-career investigators an opportunity to work with experienced researchers in our field to assist them in securing funding and other survival skills required for pursuing an academic career. This program is open to promising junior faculty, senior fellows or post-doctoral researchers nominated by their department or division chairs. It is also open to senior fellows or residents that are doing research and have a faculty appointment in place or confirmed. Basic and clinical investigators, without or with training awards (including K awards) are invited to apply. Investigators selected to take part in the program attend two workshops, 12-18 months apart, and work with faculty between workshops to develop their grant applications. The next workshop is scheduled to take place November 4-6, 2016 in Toronto, Ontario.  The unique aspect of this program is the opportunity for attendees to maintain a relationship with a mentor until their application is funded. Read more...

The deadline to apply for the Fall 2016 Workshop is July 15, 2016. To apply for this program, please visit the website: www.usbji.org/programs/yii/call-for-applications.

Grants and Funding

Pfizer provides grants for autoimmune and inflammatory disease research. Applications can be on basic research in the etiology of autoimmune and inflammatory diseases or clinical research. This program is available only to junior and senior investigators based in the United States. Awards can be up to a maximum of $150,000 each. Research projects are expected to be completed within two years. Larger grants may be considered depending on scope and merit of the proposal. Review the process and opportunities here.

Novartis supports investigator-initiated trials (IIT), both clinical and non-clinical studies. Guidelines for submitting a proposal for an IIT can be found here.

Bristol-Myers Squibb considers requests for non-interventional research and gives priority to proposals that support their medical plans. Find out how to apply here.

AbbVie’s investigator-initiated studies program is accepting applications. Applications received between March 15-June 15 will be reviewed in July.  Review the process here.
Arthritis Foundation News

2016 National JA Conference
The Arthritis Foundation’s annual Juvenile Arthritis Conference is where kids, teens, young adults and their families come together from across the world to get better informed about juvenile arthritis and other childhood rheumatic diseases. Attendees are given the opportunity to share stories, exchange tips that can make 
living with the condition easier, and build lifelong memories and friendships.  The JA Conference West takes place July 14-17, 2016, in Phoenix, AZ.  JA Conference East takes place August 11-14, 2016, in Philadelphia, PA.

Local Connections
The Arthritis Foundation has camps and family events across the country that provide kids and teens and their families the opportunity to network, learn and play with others in their local community.  Family Events provide more than 100 events throughout the country for encouragement, support, and opportunities to connect families. In addition, there are nearly 50 camp opportunities across the country which help kids and teens develop independence and build self-confidence.

Local Leadership Boards
In communities nationwide, the Arthritis Foundation is working with local volunteers to build Leadership Boards to achieve our goals in fundraising, volunteer engagement, advocacy, juvenile arthritis and other pediatric rheumatic diseases, and help and support. Local Leadership Boards help the Arthritis Foundation reach our annual mission and fundraising goals for local markets. For more information on how you can get involved, please contact Alison Imamura at [email protected].


ACR Call for Abstracts
The 2016 abstract submission cycle for the American College of Rheumatology meeting will close at noon ET on Tuesday, June 21. For more information, review the submission guidelines. ​

Save the date for the 2nd Global Conference on Myositis, May 5-8, 2017
The conference will take place at the William F. Bolger Center in Potomac, MD. This year's event will feature interdisciplinary scientific presentations of state-of-the-art research in all areas of myositis, with a focus on trainees and young investigators and input from myositis patient support group leaders. The abstract submission deadline is December 16, 2016. Information on registration & fees will be published soon. 

Scleroderma Foundation National Patient Education Conference
Scleroderma Foundation announces the National Patient Education Conference in New Orleans, July 29-31. Any child, a patient or a sibling of a patient, is welcome to join the program. If the child has received a scholarship in the last three years, he/she is not eligible for another scholarship at this time. There will be programming for children, as well as workshops geared toward adults who have a juvenile patient in their lives. For more information on the conference please call Ryan Burrill at 800-722-HOPE (4673) or email him at [email protected]. Visit the conference website at www.scleroderma.org/conference.

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