May 20, 2016

President's Message
By Laura Schanberg, MD

Over 400 CARRA members, research associates, parents, patients, Arthritis Foundation leaders, representatives from the Lupus Foundation of America, Cure JM, and NIAMS, and pharma colleagues attended the CARRA Annual Meeting in Toronto, April 14-17. It was the most well-attended CARRA meeting to date! Read more…

What Caught Our Eye
By Jay Mehta, MD

“What about dietary changes?” I’m sure I’m not alone in getting this question more and more frequently with each passing year. It’s interesting that as our drugs get more effective at treating patients, families seem to be more interested in trying to treat with non-pharmacologic means. You may remember The New York Times Magazine column “The Boy With a Thorn in His Joints" from 3 years ago, which set off a bit of a firestorm within our community, about a boy with JIA whose parents tried various alternative and complementary therapies. A rebuttal in Slate discussed the “chemophobia” that is prevalent among our families. The Slate piece was notable for its comparison of the molecular structure of the “chemical” methotrexate with that of the “natural” four-marvels powder (at the risk of ruining the surprise for you: both are pretty complex). Read more...


Registry Update


With 1,230 subjects enrolled in the CARRA Registry at 50 sites, we are on track to enroll approximately 3,300 by the end of the year. We have posted two articles with enrollment tips: https://carragroup.org/chop-tips/ and https://carragroup.org/profile-seattle-childrens-hospital/), and we will continue to profile successful sites and learn from their experiences. Read more...

1,230 patients are enrolled in the Registry.
34 patients are enrolled in STOP-JIA.


Congratulations to Hasbro Children’s Hospital, New York Langone Medical Center, Gory Children’s Hospital, and West Michigan Rheumatology for enrolling their first patients!

Mary Beth Son, MD


Sarah Ringold, MD, MS
2016-2017 Registry Fellows
The CARRA Registry Executive Committee is pleased to announce the inaugural Registry Fellows for 2016-2017. Starting July 1, Mary Beth Son, MD, Assistant Professor of Pediatrics, Boston Children’s Hospital, Harvard Medical School, and Sarah Ringold, MD, MS, Assistant Professor of Pediatrics, Seattle Children’s Hospital, will serve as Registry Fellows. The Registry Fellows are expected to support overall strategy and operations as CARRA expands the Registry to include additional diseases, implements new comparative effectiveness studies and interventional studies, and operationalizes links to other databases. Through this process, the Registry Fellows will also gain expertise regarding the inner workings and operational aspects of the Registry, as well as have the opportunity to create new projects within the Registry, participate in designing various reports and authoring Registry manuscripts. Read more…
CARRA News & Announcements

 Call for Nominations for Small Centers Vice Chair
The Elections Committee is seeking nominations for the CARRA Small Centers Vice Chair. Nominees must be current voting members from a CARRA small center (3 or fewer pediatric rheumatologists). Visit the CARRA website for more information and to nominate yourself or someone else for this role.

sJIA with Pulmonary Disease
Important study announcement!  Participate in a study to better understand the clinical characteristics and other factors in sJIA patients whose course has been complicated by pulmonary disease. Click here for information or contact Michal Cidon, [email protected].

Save the Date for CARRA's 2017 Annual Meeting! 
CARRA and
PRSYM 2017 meetings will be held May 15-17 & May 18-21, 2017, in Houston, TX. 

Grants and Funding

Pfizer provides grants for autoimmune and inflammatory disease research. Applications can be on basic research in the etiology of autoimmune and inflammatory diseases or clinical research. This program is available only to junior and senior investigators based in the United States. Awards can be up to a maximum of $150,000 each. Research projects are expected to be completed within two years. Larger grants may be considered depending on scope and merit of the proposal. Review the process and opportunities here.

Novartis supports investigator-initiated trials (IIT), both clinical and non-clinical studies. Guidelines for submitting a proposal for an IIT can be found here.

Bristol-Myers Squibb considers requests for non-interventional research and gives priority to proposals that support their medical plans. Find out how to apply here.

AbbVie’s investigator-initiated studies program is accepting applications. Applications received between March 15-June 15 will be reviewed in July.  Review the process here.
Arthritis Foundation News

Arthritis Awareness Month
The Arthritis Foundation encourages online supporters to #SeeArthritis by turning their social media profile photos green during May to honor Arthritis Awareness Month. Visit the #SeeArthritis site (http://www.arthritis.org/seearthritis/) and connect with the Arthritis Foundation on Facebook (https://www.facebook.com/Arthritis.org/) and follow them on Twitter (https://twitter.com/ArthritisFdn).

Walk to Cure Arthritis
We hope everyone will participate in the Arthritis Foundation's annual 5K Walk to Cure Arthritis! The funds raised from these nationwide events will support the critical missions of the Arthritis Foundation and CARRA and generate support for research and new treatments. For Walk to Cure Arthritis events near you, please visit the walktocurearthritis.org to sign up, form a team and start fundraising!

National Gathering

With a theme of "Grow Together”, the Arthritis Foundation and Arthritis Introspective will hold the 9th Annual National Gathering Conference on May 20, 2016, in Nashville, Tennessee. The National Gathering Conference brings together young- and middle-aged adults living with rheumatic disease (and their loved ones) from across the country for a weekend of education, empowerment, and relationship building. Learn more about the 9th Annual National Gathering Conference.

Connections

Lupus Awareness Month
For more information on Lupus Awareness Month, please visit The Lupus Initiative on the web (thelupusinitiative.org) and on Twitter (@LupusInitiative).

Scleroderma Foundation National Patient Education Conference
Scleroderma Foundation announces the National Patient Education Conference in New Orleans, July 29-31. Any child, a patient or a sibling of a patient, is welcome to join the program. If the child has received a scholarship in the last three years, he/she is not eligible for another scholarship at this time. There will be programming for children, as well as workshops geared toward adults who have a juvenile patient in their lives. 
For more information on the conference please call Ryan Burrill at 800-722-HOPE (4673) or email him at [email protected]. Visit the conference website at www.scleroderma.org/conference.

Are you active on Twitter?  Follow @carra_inc for more news and announcements. 
Connect with CARRA!
Follow us on Twitter, LinkedIn, and carragroup.org
Copyright © *|CURRENT_YEAR|* *|LIST:COMPANY|*, All rights reserved.

*|IFNOT:ARCHIVE_PAGE|* *|LIST:DESCRIPTION|*

*|HTML:LIST_ADDRESS_HTML|* *|END:IF|*

Want to change how you receive these emails?

You can update your preferences or unsubscribe from this list.

*|IF:REWARDS|* *|HTML:REWARDS|* *|END:IF|*