Registry Update April 11, 2017

CARRA Registry Stats
Enrollment: 2,876
8 sites have enrolled 1-5 patients
29 sites have enrolled 6-49 patients
20 sites have enrolled 50 or more patients

Top Enrolling Registry Sites:
PI Sarah Ringold/SC Luke Reichley, Seattle Children’s Hospital: 300
PI Christi Inman/SC Suzy Jones, University of Utah Hospitals: 256
PI Jennifer Weiss/SC Mary Ellen Riordan, Hackensack UMC: 185

STOP-JIA Stats:
Enrollment: 176
5 sites have enrolled 1 patient
18 sites have enrolled 2-4 patients
13 sites have enrolled 5 or more patients

Top Enrolling STOP-JIA Sites:
PI Sarah Ringold/SC Luke Reichley, Seattle Children’s Hospital: 15
PI Shoghik Akoghlanian/SC Joanne Drew, Nationwide Children’s Hospital: 15
PI Jennifer Weiss/SC Mary Ellen Riordan, Hackensack UMC: 14
PI Pamela Weiss/SC Jenna Tress, Children’s Hospital of Philadelphia: 11

FROST Stats:
Enrollment: 7

FROST Sites:
PI Pamela Weiss/SC Jenna Tress, Children’s Hospital of Philadelphia: 3
PI Emily von Scheven/SC Bhupinder Badwal, University of California at San Francisco Medical Center: 1
PI Marilynn Punaro/SC Heather Benham, University of Texas Southwestern Medical Center Dallas: 1
PI Shoghik Akoghlanian/SC Joanne Drew, Nationwide Children’s Hospital: 1