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President's Updates

March 2017 Update
 

2017 has clearly brought many changes in our world, both internal and external to CARRA. Time will tell what the impact of political and economic forces will be on our organization, but there is one certainty: CARRA must prepare to be able to withstand the many challenges that we are likely to face in the next few years to continue and build on the progress and momentum that we have all worked to create in the last few years.

CARRA has enjoyed astounding growth and change in the last few years (http://www.the-rheumatologist.org/article/future-pediatric-rheumatology-grounded-evolution-childhood-arthritis-rheumatology-research-alliance/). Now more than ever, we must focus and align our collective energy with CARRA’s mission, core values and operating principles. This means we have to work together to build unity and consensus around our research strategies, more clearly define and standardize processes and procedures, and maintain the transparency and democratic principles upon which CARRA was founded.

We convened a leadership retreat as part of our working towards these goals in December 2016. In doing so, we identified gaps in communications and engagement and are excited to have begun work to close these gaps. We are also excited to be able to offer new research seed funding and career development opportunities, thanks in large part to our partnership with the Arthritis Foundation. These include various intramural grant programs and internship awards. We hope that many of you will take advantage of these and other opportunities (see Utrecht Summer School award, PReS travel grants, Research and Writing Group awards and Aims Page opportunity).

Most of all, we need you to be involved! Please consider writing an article for our newsletter, applying for a funding opportunity, nominating yourself or a colleague for a CARRA elected position, joining our members-only wiki and join a workgroup. There will also be an announcement soon for a new opportunity, to have dinner with Executive Committee members at the upcoming CARRA meeting in May.

Feel free to contact any of us on the Executive or Steering Committees with any suggestions for improvement. We really want to hear from you!

We look forward to seeing everyone in Houston!

More Updates


September 2016 Update

Sep 3, 2016

To follow Laura Schanberg as President of CARRA is a daunting task! Under Laura’s leadership, we successfully enrolled the CARRA Legacy Registry, formed a 501c3 organization replete with a Board of Directors, an External Advisory Council, and new by-laws. We have a new website and a partnership with the Arthritis Foundation. We funded and launched the new CARRA Registry, began the first CTP comparative effectiveness study, and are working with Novartis and Roche on post marketing surveillance. CARRA is a part of PARTNERS, a patient-powered research network and began incorporating patient engagement in research. The 2016 annual meeting was a tremendous success, had a record attendance, and the energy was palpable.

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May 2016 Update

May 23, 2016

By Laura Schanberg, MD

Over 400 CARRA members, research associates, parents, patients, Arthritis Foundation leaders, representatives from the Lupus Foundation of America, Cure JM, and NIAMS, and pharma colleagues attended the CARRA Annual Meeting in Toronto, April 14-17. It was the most well-attended CARRA meeting to date! The meeting program received highly positive evaluations from attendees. Our thanks go out to the planning committee, including Stacy Ardoin, Suzanne Li, Peter Blier, and Kelly Mieszkalski, for their hard work.

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March 2016 Update

Mar 14, 2016

Over 250 CARRA members and supporters have already registered for the Annual Meeting in Toronto, April 14-17. We are appreciative of the work Executive Director Kelly Mieskalski has done to develop the program with the planning group including Stacey Ardoin, Suzanne Li, and Peter Blier. They have designed a vibrant meeting with a schedule that includes scientific discussions, work group planning, organizational and research updates, networking, and fun.

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CARRA Annual Scientific Meeting

Feb 21, 2016

We are planning an exciting meeting this spring and are looking forward to seeing everybody again! This year the CARRA Annual Scientific Meeting will be held April 14-17, 2016 in Toronto at the Westin Harbour Castle hotel.

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