Phone: (414) 918-9822    Email: [email protected]

CARRA Newsletter-October 2017 Issue 2

 

Just a few days left to register for CARRA Meeting, the CARRA-AF Reception, and Additional Meetings at the 2017 ACR Conference!

CARRA hopes to see you at our annual meeting on Monday 11/6 followed by a reception at the Hard Rock Hotel during the ACR conference! We will hold a one hour meeting from 6:30-7:30 PM and provide attendees with brief updates from CARRA and the Arthritis Foundation, followed by an interactive panel discussion with a few of our interns, grant awardees, and travel award recipients.

Immediately following the meeting, we are co-hosting a reception with the Arthritis Foundation. Please join us for drinks and h'ors d'oeuvres from 7:30-10:00 PM!

A number of CARRA workgroups will be holding additional meetings during the ACR conference, as well. You must pre-register to attend each meeting. The registration deadline is October 30.

Click here for more information about the meetings and details on how to register.

Presenting a Poster at ACR utilizing CARRA Registry data?
Be sure to use the new poster template, available here.

In this Issue...

    

Open Research Positions

The positions below are currently open and seeking candidates. If you or anyone you know is interested in applying, please visit the position description linked below.

Director of Research Operations, CARRA
This position will oversee the portfolio of CARRA research projects and works closely with CARRA and Registry leadership to advance CARRA’s research related programs.
View full online posting

Research Administrator, CARRA
This position will work closely with the CARRA Director of Research Operations to administer CARRA’s grants and research related projects.
View full online posting


Contribute to the CARRA Research Resource Library: Information for Families about Research Participation

How does your site educate patients and families about research at your site? Do you mention research when you mail letters to your patients?  Do you have general research information posted on your clinic or hospital website? Do you have a handout that describes research opportunities available at your site?

CARRA is creating a library of research resources FROM sites, FOR sites.  Information will be compiled and posted on the members-only section of the website.  CARRA members may access the information and use to create their own site-specific materials.  We are currently looking for general information about research participation: scripts that you may use when speaking with patients/families, sentences that you include in patient-related communications, and stand-alone documents or brochures.  Please email us at [email protected] with your materials and/or questions.


BE A GUEST NEWSLETTER CONTRIBUTOR!
If you would like to contribute an article (related to pediatric rheumatology research) to our newsletter, we would love to hear from you! Please email [email protected] with details.


Registry Update

4,100 patients are currently enrolled in the Registry!

  • Congratulations to the Registry team at Boston Children’s Hospital for enrolling 3 PEPR patients this week!

Enrollment Update (as of 10/20/17)


CARRA Ethics Committee Election Results Are In!

Congratulations to (pictured from left to right, top to bottom) Gloria Higgins, The Ohio State University College of Medicine; Edward Oberle, Nationwide Children’s Hospital; Karen Onel, Hospital for Special Surgery; and Egla Rabinovich, Duke University Medical Center.

The new ethics committee will begin their work in the coming weeks.

Thank you to everyone who voted!


Upcoming Event
Advances in Childhood Rheumatic Diseases, an International Symposium

The Division of Rheumatology at the Hospital for Sick Children will be hosting their inaugural Advances in Childhood Rheumatic Diseases, an International Symposium, which will take place on Sunday, April 29th, 2018 at the Westin Harbour Castle in Toronto.

This year’s theme is very special as we celebrate the retirement of Dr. Earl Silverman, for whom we will dedicate the day and celebration dinner. This full-day symposium will feature both international and local leading experts who will speak on the diagnosis, treatment and current research endeavors relating to rheumatic diseases. The audience will consist of both national and international rheumatologists (adult and pediatric) as well as pediatricians, nephrologists and internists.

If you would like to receive regular symposium updates, please contact Tanya Lorenc at [email protected].


Do You Have Good News to Share?
If you are a CARRA member and have a professional achievement (new grant awarded, a CARRA publication) you would like to share with our readership, please email the details to [email protected] with the subject “CARRA Newsletter Announcement for Consideration.”


Fall 2017 Educational Webinar
Avoiding Common Caregiver Mistakes When Your Child Has Arthritis

The added stress that comes with being a JA parent can affect your child’s quality of care and the quality of care you give yourself. This webinar will address some common caregiver mistakes, and offer real-life solutions so you can better manage and advocate for your child’s health; care emotionally and physically for yourself, your child, and your family; and maintain healthy relationships and career performance.

Join Catherine Boswell, PhD to learn about common caregiver mistakes and how to solve them so you can better manage the health and wellbeing of your child, your family and yourself.

WHEN: Wednesday, November 1, 2017

TIME:  7:30 pm EST

REGISTER HERE

Register and view past Educational Webinars Online!

www.kidsgetarthritistoo.org/resources/webinars