May is Lupus Awareness Month
By: CARRA | May 1, 2016 | CARRA Announcements
Did you know that one out of every five people with lupus is diagnosed as a child or teen? When lupus starts in childhood, the disease tends to be more severe and to affect more organs (especially the kidneys and brain) compared to adults with lupus. Thus, children and teens with lupus often need aggressive medical treatment. CARRA is working with researchers and the pharmaceutical industry to promote research and new drug development in children with lupus. Very few clinical drug trials are performed in kids with lupus, and there is a shortage of pediatric rheumatologists. (Eleven states in the US have no pediatric rheumatologists.) One strategy to help address this shortage is a bill in Congress (H.R. 1859) that would encourage pediatricians to specialize in rheumatology by providing medical school debt relief. You can help promote children’s access to pediatric rheumatologists by encouraging your congressional representatives to support the bill. Thank you for all your efforts to support Lupus Awareness Month.